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Mattrf
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Lidocaine drops? Update
« on: Jan 11th, 2007, 11:57am » |
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Not sure if it would help CH or not but wanted to share.
My SUNCT ramped up last week and got really bad, now remember I get a constant HA that does not go away. I went to the doctor on Monday and he prescribed me Lidocaine 4% drops, I put two drops up each side of my nose while on my back and have to lie like that for 15 minutes to let it soak in. For the first time in over a year I was actually PF and I mean 100% PF, it was incredible, I had forgotten what it felt like to be PF. Now I can only use it three times in a day and it only lasts for about 4 hours but it does work for me. I am going in this Monday and getting the same stuff through an IV for about four hours in the hopes that it will brake my cycle but even if it doesn’t I finally have a weapon that works on the monster, just hope it keeps working.
I am not sure if this would work on CH or not, has anyone ever had this stuff and tried it for CH?
I want to thank everyone for there support over the last few weeks especially Cyn (Cynjeep89) who is my support angle and has helped me so much in the last few weeks.
Matt
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| « Last Edit: Jan 16th, 2007, 6:52pm by Mattrf » |
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There is no stronger a person then one who can deal with brain pain and still function.
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vietvet2tours
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Re: Lidocaine drops?
« Reply #1 on: Jan 11th, 2007, 12:01pm » |
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Yep I stole some from the clinic and poured it in my nose and it didn't work.
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tanner
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Re: Lidocaine drops?
« Reply #2 on: Jan 11th, 2007, 12:01pm » |
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Good to hear from you Matt 
Happy you got some PF time and I know Cyn will be pleased.
..................Tim
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JeffB
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Re: Lidocaine drops?
« Reply #3 on: Jan 11th, 2007, 12:07pm » |
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Good deal, Matt.
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" It's been my experience that people who have no vices have very little virtues."
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Mattrf
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Re: Lidocaine drops?
« Reply #4 on: Jan 11th, 2007, 12:10pm » |
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on Jan 11th, 2007, 12:01pm, vietvet2tours wrote:| Yep I stole some from the clinic and poured it in my nose and it didn't work. |
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Did you do it while on your back with your head tilted back and stay that way for 15 minutes?
The doctor told me it was very important to do this so the Lidocaine would be in the right spot and have time to soak through the membrane.
Matt
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LeeS
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Re: Lidocaine drops?
« Reply #5 on: Jan 11th, 2007, 12:47pm » |
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Hi Matt – glad you found some relief with it
PG still has some faith in lignocaine for CH: in liquid form it can be given as either nose drops or nasal spray, and as you say, deep in the nostril on the painful side. This can bring mild to moderate relief in some CH sufferers though only a few experience complete pain relief. This drug, therefore, is very rarely useful on its own but can be helpful when taken with other preventative and abortive drugs (allegedly - I've never tried it myself).
All the best with the IV version.
-Lee
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vietvet2tours
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Re: Lidocaine drops?
« Reply #6 on: Jan 11th, 2007, 12:51pm » |
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on Jan 11th, 2007, 12:10pm, Mattrf wrote:
Did you do it while on your back with your head tilted back and stay that way for 15 minutes?
The doctor told me it was very important to do this so the Lidocaine would be in the right spot and have time to soak through the membrane.
Matt
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Well of course I did.I also snorted a shitload of cola and that didn't work either.Oxygen works for me though.
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DonnaHar
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My son tried Lidocaine drops without success.......but the doc didn't tell him to lay down and let it soak in. That is probably the secret, as I don't remember any one else who used it saying that they waited either.
I will be sure to pass this on.....thank you!
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Mattrf
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Re: Lidocaine drops?
« Reply #8 on: Jan 11th, 2007, 1:15pm » |
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I didn’t have much hope in it being helpful for CH since SUNCT does not respond to CH medications or preventatives, I would assume that the opposite is also true but wanted to pass it on.
Matt
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Guiseppi
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Re: Lidocaine drops?
« Reply #9 on: Jan 11th, 2007, 1:25pm » |
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Always worth a try to pass stuff on, keep it coming!! I tried Lidocain about 20 years ago. It would rack it down 2-3 clicks on the KIP scale but it usually caused me to barf and left me feeling crummy. Fortunately I found more succesful treatments that didn't have the side affects.
Hope life's treating you well!
Guiseppi
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E-Double
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Re: Lidocaine drops?
« Reply #10 on: Jan 11th, 2007, 1:47pm » |
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I can't believe that I have to bang my
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Mattrf
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Re: Lidocaine drops? Update
« Reply #11 on: Jan 16th, 2007, 7:00pm » |
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Well I went yesterday and had the IV treatment with Lidocaine for my SUNCT, well it made my headache go away right off the bat then after about an hour and a half the tightness in the left side of my face that has been there from the beginning went away and for the first time in over a year both sides of my face felt the same and pain free.
Then they turned off the IV and within five minutes the tightness came back letting me know that this treatment did not brake my cycle and that the monster was not done with me just yet. I can’t tell you what a let down that was for me and my wife, we tried not to get our hopes up but guess we did because it hit us both very hard that it did not work.
I love my doctor though he refuses to give up, He is putting me on a pill form and hope once we ramp up that maybe we will get the same results but lasting so again back to hoping.
Just wanted to give everyone an update.
Matt
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JeffB
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Re: Lidocaine drops? Update
« Reply #12 on: Jan 16th, 2007, 7:39pm » |
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Sorry to hear it didn't break the cycle Matt. Keep your chin up bud and keep fighting that fucking beast!
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E-Double
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Re: Lidocaine drops? Update
« Reply #13 on: Jan 16th, 2007, 9:19pm » |
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Still sounds promising though!
Chin up brother
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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