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glen jenkins
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just in a day
« on: Jan 4th, 2007, 2:41am » |
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hi , i sit and write to disconnect from the pain as i have another dance with the beast ,i realize that i won`t sleep til morning.and i m tired walking the floors with ice packs.my dog is old but with me every step,sometimes she stops til i come back around but she by my side!!!!!!!she understands but then shes confused with me.
how fast it can come on!!!!!!i pray that i will have releif soon , have my senses back ,my thoughts and yes some sleep , the ice does help but we all know the only relief is never to get them again !!!!!!my last was april 2005 , i see for some reason but look forward to this old friends return ,, if i can last 2 more hrs i will sleep , wish me and everyone best luck for all painless days and nights .
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Mattrf
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Re: just in a day
« Reply #1 on: Jan 4th, 2007, 11:36am » |
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Sorry to heir it has returned, sure hope you got some sleep last night and that this will be a short cycle and you will be PF soon.
Good luck.
Matt
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There is no stronger a person then one who can deal with brain pain and still function.
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glen jenkins
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Re: just in a day
« Reply #2 on: Jan 4th, 2007, 1:07pm » |
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thanks
i did get some sleep ,but i know that in time i will be right back to where i was dreading but only knowing for sure that its going to be happening again.not looking forward to another 3 month cycle,... to old for that now !!!!!!!!! its wearing me down but,....... hopeful it won`t be as bad,,,,,,, i might wish myself dead maybe 80 times til then but lets say it was said in haste few times.. ...i won`t let me down ,i try not to think of whats to come ...just hoping to be pf soon ,i do feel blessed to be among the group and blessed also that i know others have it far more sevre than me,........to` all the suffers` ........ /and supporters ........my prayers with you
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LeeS
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Re: just in a day
« Reply #3 on: Jan 4th, 2007, 1:18pm » |
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Hey Glen - I don't know you but I know how you're feeling.
Keep battling, get the right meds to suit you, and stay strong. We all have our differences, but we're all in here together.
Prayers to you too.
-Lee
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glen jenkins
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Re: just in a day
« Reply #4 on: Jan 4th, 2007, 1:28pm » |
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thanks brother been on meds for 16 yrs,lithium ,it works good but it takes awhile to work bout 3 weeks,and then there are not nearly as bad , i usually only get 1 every 2 or 3 days nowhere near what some get ,i truely i`m blessed that way , but all the same they really really suck ........ 
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Charlie
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Re: just in a day
« Reply #5 on: Jan 4th, 2007, 4:57pm » |
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Sorry you're getting hit. Here is something that I used successfully most of the time:
Dr. Wright’s Circulatory Technique:
I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.
I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.
Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.
This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.
Charlie
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glen jenkins
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Re: just in a day
« Reply #6 on: Jan 4th, 2007, 7:34pm » |
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thanks i will try anything , anyone ever think about a stationary bike , ice and a lot of name calling lol , i find a pace alot and ice on the head ,just long enough to feel that ice cream headache effect and remove the ice , going to different throbbing spots have helped alot
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TxBasslady
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Re: just in a day
« Reply #7 on: Jan 5th, 2007, 12:53am » |
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Sending you lots of PF vibes, sweetie.
Hang in there...it'll get better.
Jean
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glen jenkins
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Re: just in a day
« Reply #8 on: Jan 9th, 2007, 11:34am » |
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hey, thanks all for the concern,happy to report that i`ve had several ch`s since my last post, and all have been not to bad , bad enough but i`m learning to dealing with them a little better, its been 20 months since my last cycle, the beast finally showed up again ,,, like i was ever going to forget him, but i manage to think of it in time ,,, in time it goes away !!!!!!!, i know this as i know my cycle , when i`m here suffering with that pain i feel for the people who have it so far worse than i do !!!!!!!!!!!!
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Callico
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Re: just in a day
« Reply #9 on: Jan 9th, 2007, 7:47pm » |
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Try slamming a red bull when it hits. Get to it as soon as you can, and slam it down as fast as you can. It really helps me.
Hang in there. They will pass.
jc
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glen jenkins
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Re: just in a day
« Reply #10 on: Jan 11th, 2007, 11:34pm » |
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well i thank you for the advice , i`m sure it may work for others as well as yourself , only i have a hard time drinking them on a good day lol , but i did pick up a can , and i will try it and i do thank you for the advice whole heartedly, i`ll let you know how things work out , i have had a few more ch`s since then but all were alot less sevre than the others , hopefully the meds are starting to kick in now and they will no longer be a terrible thing to worry about , i thank everyone for the support and to the gentleman who suggested i try oxygen , i never did try that but i think it would be something i would certainly try ,if i had the means to get it ,not sure how to go about that , my doctors not keen on that idea for some reason , thanks everyone once again ,it really is nice to know your not alone with this terrible condition , thanks ,may you all rest well and free from the beast
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glen jenkins
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Re: just in a day
« Reply #11 on: Jan 16th, 2007, 12:45am » |
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i sit and write this with the most sever ch since i have started my cycle ,and i try to be strong and numb my fellings to the pain hoping that it will be over as fast as it started but it doesn`t matter because on friday i experience pain for worse then anything that these ch`s could throw at me , and that was the death of my best friend my dad ,it been the hardest weekend of my life but knowing i could get threw that , i know i will get through these ch`s much quicker then the lose of my dad !!!!!!!!!!!!!!!!!!
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chewy
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Quote:| i sit and write this with the most sever ch since i have started my cycle |
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That is truely amazing.
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Shaz
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Re: just in a day
« Reply #13 on: Jan 16th, 2007, 8:49am » |
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Oh Glen
Poor old you. My heart really goes out to you and wish I could make the pain go away. Just hang on in there.
Lots of love and hugs
Shaz 
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kcopelin
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Re: just in a day
« Reply #14 on: Jan 16th, 2007, 9:29am » |
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Glen,
So sorry to hear of your dad's death. Happy to hear that CH are getting less intense-do try to get O2-its safe, works for many and has given several people their lives back. I pray that you receive comfort in the middle of the physical and emotional pain you are expereincing now.
God bless ya,
PFDAN y'all
kathy
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glen jenkins
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Re: just in a day
« Reply #15 on: Jan 18th, 2007, 8:47pm » |
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just letting you know that haven`t had any ch`s in a few days ,since my dad`s funeral on monday maybe the beast is sparing me while i grieve the lost of dad!!! who knows but one thing for sure i`ll gladly take the sleep in this trying time!!!!!!!!! wishing you all pfd&n
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Jonny
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Re: just in a day
« Reply #16 on: Jan 18th, 2007, 8:52pm » |
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Sorry for the loss of your Dad, Glen.......hope you get some sleep soon, Brother!!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Brew
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Re: just in a day
« Reply #17 on: Jan 18th, 2007, 9:19pm » |
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on Jan 18th, 2007, 8:47pm, glen jenkins wrote:| just letting you know that haven`t had any ch`s in a few days ,since my dad`s funeral on monday maybe the beast is sparing me while i grieve the lost of dad!!! who knows but one thing for sure i`ll gladly take the sleep in this trying time!!!!!!!!! wishing you all pfd&n |
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Maybe, as his last parting gift to you, he took your pain with him. Don't think that kind of thing hasn't crossed my mind.
Please accept my condolences. Stay strong.
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artonio7
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Re: just in a day
« Reply #18 on: Jan 18th, 2007, 11:21pm » |
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Glenn,
I'm so sorry to hear that you've lost your father. I know what that feels like and you may not think so now, but with time the pain will fade and be replaced with the fond memories you have of him.
Please know that you're in my prayers.
with warm regards,
Tony
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| « Last Edit: Jan 18th, 2007, 11:22pm by artonio7 » |
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barry_sword
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Re: just in a day
« Reply #19 on: Jan 19th, 2007, 6:46am » |
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I lost my dad to cancer in 1988(news years eve) and that was very painful. My mom is still with us but I sure do miss my dad. Time heals but still there is that void.
Take care Glen and my prayers and thoughts go to you during this very difficult time.
From a fellow Canuck 
Barry
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Jackie
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Re: just in a day
« Reply #20 on: Jan 19th, 2007, 7:21am » |
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Deepest condolences, Glen. The loss of a parent is so very difficult. Hold him close in your heart, Sweetie....he's never very far away.
Pain free days ahead......
Love & Hugs,
Jackie
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| « Last Edit: Jan 19th, 2007, 7:22am by Jackie » |
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glen jenkins
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Re: just in a day
« Reply #21 on: Jan 20th, 2007, 2:41pm » |
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thanks all for the kind words , it means so much ,just to know that people are there for you !!!!!!!!!!!!!
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B14CK5H33P
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Re: just in a day
« Reply #22 on: Jan 20th, 2007, 2:51pm » |
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I'm sorry for your loss, and will keep you and your family in my thoughts and prayers. I hope your CH's and Insomnia break soon. I know what insomnia does to a person all too well.
Peace,
Carl D
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glen jenkins
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Re: just in a day
« Reply #23 on: Jan 31st, 2007, 9:02am » |
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good day all, first i like to say a great big thank you to all for the support and encourgement giving to me , believe me it does make a difference , as one wrote here in the forums ,knowing your not a freak is a positive thing  haha. the ch`s are less painful now ,actually kinda bearable if that makes sense ,like we all enjoy a pain in the head, i think the meds are starting to work  now if i can get back to a fairly normal life things wouldn`t be to bad ,except for the empty spot that`s left from the passing of my dad, but it`s getting better ,the people in my life are all great caring people and they do look for my best interest ,kinda like people here , so i think things will be ok in the long run .was reading many of the forums here and i realized that this is a very speacil group that does care about everyone who does end up here , which i sure many of us prefer that we never had to but we are . to all these people that help us in any way ,shape or form please except from me a heart felt thank you ,you may not know it but it may have saved someone`s life !!!! thanks again all and wishes of pfdan`s to all
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artonio7
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Re: just in a day
« Reply #24 on: Jan 31st, 2007, 9:08am » |
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on Jan 31st, 2007, 9:02am, glen jenkins wrote:| good day all, first i like to say a great big thank you to all for the support and encourgement giving to me , believe me it does make a difference , as one wrote here in the forums ,knowing your not a freak is a positive thing haha. the ch`s are less painful now ,actually kinda bearable if that makes sense ,like we all enjoy a pain in the head, i think the meds are starting to work now if i can get back to a fairly normal life things wouldn`t be to bad ,except for the empty spot that`s left from the passing of my dad, but it`s getting better ,the people in my life are all great caring people and they do look for my best interest ,kinda like people here , so i think things will be ok in the long run .was reading many of the forums here and i realized that this is a very speacil group that does care about everyone who does end up here , which i sure many of us prefer that we never had to but we are . to all these people that help us in any way ,shape or form please except from me a heart felt thank you ,you may not know it but it may have saved someone`s life !!!! thanks again all and wishes of pfdan`s to all |
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Glen,
I'm really glad things are starting to look up a bit for you. Thank you for posting an update. If you every need to talk please don't hesitate to pm me.
Keep your chin up.
with warm regards,
Tony
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