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Topic: Facebook group-CLUSTERHEADS (Read 402 times) |
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pfunk
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For anyone interested, I have created a group on Facebook for cluster headches on Facebook.com. All you have to do is go to www.facebook.com and creat a profile for yourself. After you have done that, just says find a group and type in CLUSTERHEADS and join that group. I thoguh that this might be another cool way for us to communicate, share photos and other stuff. Who knows, it may even be a way for us to inform other sufferers and add new members to our evergrowing closely knit, support family. You can write notes from person to person, write on each other wall and join other groups provided from all over the world. I even found a group called CIMINO nation which had 196 meber of people allover the US with the same las name as me(kind of strange). When someone has psoted on you wall, you will be notified by e-mail as well as if someone has requested to add you as a friend, at which time you must log on and give permission to add that person or not.
I did not add a picture to identify the group because I remember some really cool artwork from a few months back that Jonny and some others had posted here and thoguht it would be cool to use one of those if we can all come together on which one to use.
Let me know if you are interested and/or if I was otu of line by doing this. It just sounded like another good way toget information out there. Much luv to all.
 Pfunk
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Woobie
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Re: Facebook group-CLUSTERHEADS
« Reply #1 on: Dec 8th, 2006, 1:38pm » |
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You werent out of line - silly!
I will do this tomorrow...........
now - POST A PICTURE! 
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pfunk
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Re: Facebook group-CLUSTERHEADS
« Reply #3 on: Dec 9th, 2006, 2:55am » |
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I still have not gotten the hang of this posting picture thing. However, I have manged to post lots of picture on facebook.
http//facebook.com
Create your own profile and join thr goup:CLUSTERHEADS.
You will then be able to view picture of me, my family and friends from Cofc,et.
Hell, you may even be able to join other groups of interest to you and gain friend from all over the country and/or world,
Pfunk
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sailpappy
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Re: Facebook group-CLUSTERHEADS
« Reply #5 on: Dec 9th, 2006, 8:27am » |
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Hey,
Hope you don't take it the wtong way, but I sent the instructions for posting a photo to your Hotmail account.
I also noticed you dont live far from Me and Tanner! I am in Augusta Georgia, whenever I drive to Florida to visit my daughter I go right by your place!
Pappy
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