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LeLimey
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NEW Daily Mail Article..
« on: Nov 26th, 2006, 12:40pm » |
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Which Roy and I had a part in! Just goes to show that the last crappy article was crappy because of what the interviewee said rather than the paper..
They left out an awful lot of what was said but at least what they printed made sense (and no I don't live in Merseyside but I didn't want my real location in a National Newspaper!)
Medical Myth that’s a headache for women.
Headaches are often seen as a minor condition but sufferers of so-called “Cluster Headaches” (CH) which affect between 1 and three people per thousand worldwide, describe recurring bouts of pain which can reduce grown men to tears.
Roy Collins, 60, from Norfolk, says “ The extreme pain wakes me from sleep and lasts from 20 minutes to two hour, usually with reddening and tearing of the eye on the affected side (CH is almost always one-sided) a runny nose, high temperature and sweating. “It goes as suddenly as it came – but I might have another attack the same night”
Until recently it was thought to affect mainly men. Now it’s clear that many more women suffer than was previously thought, and also children.
Unfortunately the legacy of what Professor Peter Goadsby of the Institute of Neurology in London calls this “medical myth” is that many women and children are still not accurately diagnosed. “It’s sad enough to think of adults having this dreadful condition but for children with it to be given inappropriate treatment or told they’re “nutters” brings tears to your eyes” he says.
Nine out of ten sufferers have episodic CH where attacks come in bouts lasting perhaps nine to ten weeks, once or twice a year. Chronic CH gives sufferers virtually no remission.
Helen Kemp, 41, from Merseyside recalls her first acute experience three years ago: “I was at a friend’s house when I had this excruciating pain around my left eye. As my husband drove me home I was banging my head on the dashboard with the pain” Her doctor and dentist diagnosed sinusitis and prescribed antibiotics. Once she was hospitalised with an attack that sent her blood pressure soaring. After extensive tests, she was finally diagnosed with cluster headaches.
Sadly, CH can run in families and Helen’s son Jasper, five, was diagnosed with it two years ago. So far treatment is limited to controlling the pain with vaso (blood vessel) constricting drugs. Helen finds that breathing in pure oxygen via a mask that delivers 15 litres per minute is the most effective “abortive” therapy for herself and Jasper.
“Drinking strong coffee or Red Bull at the beginning of an attack also helps constrict the blood vessels, as do ice or heat-packs on the back of your neck and eyes”
Alcohol is the only known trigger and must be avoided.
The best hope for treatment is to understand the brain dysfunction which causes attacks says Professor Goadsby.
“Since they typically occur at the same time of the day and year, we know they’re aligned to the circadian or circannual rhythms (the daily and annual cycles of our internal body clock). Brain-imaging suggests they emanate from the suprachiasmatic nucleus in the hypothalamus gland, which controls the human body clock. Meanwhile doctors must be better informed so they can help sufferer’s to cope”
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Shedz
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Re: NEW Daily Mail Article..
« Reply #1 on: Nov 26th, 2006, 1:00pm » |
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Read this article today,found this website today!Coincidence or Karma? Whatever it is im glad of it  Day 3for me,they came back Fri night 
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I push my fingers into my eyes, It's the only thing that slowly stops the ache, But it's made of all the things I have to take, Jesus it never ends it just works its way inside, If the pain goes on, I AM gonna make it.... http://www.youtube.com/watch?v=Xps7AM8HbjE
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LeLimey
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Re: NEW Daily Mail Article..
« Reply #2 on: Nov 26th, 2006, 1:05pm » |
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Hi shedz it's nice to meet you, tell us a bit more about yourself hon, how long have you had CH? What meds have you tried/work for you? how long do your episodes usually last? lets see what we can do to help
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CaSS
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Re: NEW Daily Mail Article..
« Reply #3 on: Nov 26th, 2006, 1:08pm » |
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nice work.
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Viking007
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Re: NEW Daily Mail Article..
« Reply #5 on: Nov 26th, 2006, 1:13pm » |
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Hi Helen, well done, love 
Was that article in the Mail's "You" magazine?
Can't find it on the website, will try again for a
link.
Take care
Curt
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LeLimey
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Re: NEW Daily Mail Article..
« Reply #6 on: Nov 26th, 2006, 1:27pm » |
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Its not on the website Curtie you cutie thats why I had to type it up  Its in YOU on page 143
Cheers Dapey, I've been and gorn 'n found 'im already! 
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| « Last Edit: Nov 26th, 2006, 1:28pm by LeLimey » |
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sandie99
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Re: NEW Daily Mail Article..
« Reply #7 on: Nov 26th, 2006, 1:37pm » |
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Helen,
thanks for typing it up!
I visit Daily Mail's website regularly. They should put that in there! Now I'm thinking about forcing my pal Gwen to go and bye that mag for me!
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Pinkfloyd
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Re: NEW Daily Mail Article..
« Reply #8 on: Nov 26th, 2006, 1:53pm » |
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on Nov 26th, 2006, 12:40pm, LeLimey wrote:(and no I don't live in Merseyside but I didn't want my real location in a National Newspaper!)
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Chicken!!
Nice job Helen & Roy
Bobw
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
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LeLimey
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Re: NEW Daily Mail Article..
« Reply #9 on: Nov 26th, 2006, 2:15pm » |
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Not for any reason other than I have a psychotic first ex who isn't allowed by the courts to have my address Bobski! I haven't seen him since March of 2001 thankfully (he now lives in Ohio) but he has family here still and they are all nucking futs. I'd still vomit in fear if I saw him now.
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roy21302
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Re: NEW Daily Mail Article..
« Reply #10 on: Nov 26th, 2006, 2:31pm » |
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Helen,
Thanks for putting that up for us, I looked for the mail link, glad you typed it out. Its better than nothing, but not as good as I'd hope for. Still perhaps we will have better luck next time
Cheers Roy 
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pattik
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Re: NEW Daily Mail Article..
« Reply #11 on: Nov 26th, 2006, 2:33pm » |
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Way to go Helen and Roy, and Helen, thanks for your effort of typing all that out for us.
patti
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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LeLimey
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Re: NEW Daily Mail Article..
« Reply #12 on: Nov 26th, 2006, 2:35pm » |
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Roy it might not be as comprehensive as we'd have liked but it's a lot more accurate than the last load of guff article so give yourself a pat on the back my little sossidge! Eww.. food  You can be my little flower til I'm feeling better instead okay blossom?!
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chewy
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Re: NEW Daily Mail Article..
« Reply #13 on: Nov 26th, 2006, 5:00pm » |
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Nice job guys.
Quote:| Alcohol is the only known trigger |
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?????????????????????
Was that the reporters conclusion?
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LeLimey
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Re: NEW Daily Mail Article..
« Reply #14 on: Nov 26th, 2006, 5:03pm » |
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Yup. She asked about triggers and I said the most consistant one was alcohol but not for all of us by a long shot. I told her I could drink anything but red wine myself. I DID tell her about nitro but she obviously didn't listen.
I ALSO told her that whilst some things like paint and booze COULD trigger a cycle we would get hit anyway even without those - it wasn't perfect but over all at least it wasn't a complete pile of poo.
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Viking007
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Re: NEW Daily Mail Article..
« Reply #15 on: Nov 26th, 2006, 5:21pm » |
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Helen, can I copy your transcript to to OUCHUK/MB?  ?
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LeLimey
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Re: NEW Daily Mail Article..
« Reply #16 on: Nov 26th, 2006, 5:24pm » |
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Curt of course you can honeybun.
I did email it to Tom (and rang him) so that it could be distributed to the other helpliners etc which I know he did as he cc'd me in on it. Post it over there with pleasure
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Viking007
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Re: NEW Daily Mail Article..
« Reply #17 on: Nov 26th, 2006, 5:26pm » |
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Thanks Honey xx
Curt
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Grandma_Sweet_Boy
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Re: NEW Daily Mail Article..
« Reply #18 on: Nov 26th, 2006, 5:29pm » |
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Great job folks.
Carol
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Kevin_M
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Re: NEW Daily Mail Article..
« Reply #19 on: Nov 26th, 2006, 7:09pm » |
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on Nov 26th, 2006, 12:40pm, LeLimey wrote:NEW Daily Mail Article..
Which Roy and I had a part in! Just goes to show that the last crappy article was crappy because of what the interviewee said rather than the paper.. |
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no crappy from scrappy chappies
thanks for deliverin'
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Barry_T_Coles
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Re: NEW Daily Mail Article..
« Reply #20 on: Nov 26th, 2006, 9:05pm » |
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Well done.
Cheers
Barry
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George_J
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Re: NEW Daily Mail Article..
« Reply #21 on: Nov 26th, 2006, 9:13pm » |
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Roy and Helen, you rock. Great job.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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jon019
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Re: NEW Daily Mail Article..
« Reply #22 on: Nov 26th, 2006, 9:44pm » |
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Thanks Helen and Roy,
Two more voices, two more voices shouting from the wilderness of CH, two more voices added to the chorus that someday will be heard...
Best
Jon
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mrs mac
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Re: NEW Daily Mail Article..
« Reply #23 on: Nov 27th, 2006, 4:21pm » |
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well done!!!
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