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Topic: Brain Hospital (Read 1363 times) |
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cathy
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Brain Hospital
« on: Nov 22nd, 2006, 2:36pm » |
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Just so you all know in case you didn't already tonight on BBC One at nine o clock UK time called Brain Hospital and one of the patients featured is a clusterhead sufferer, don't know if you can get our channels but if you can then this is just a heads up!!!
Hope your all well.......
http://www.radiotimes.com
Hi Jonny 
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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Cathi04
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Re: Brain Hospital
« Reply #1 on: Nov 22nd, 2006, 3:23pm » |
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CATHYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYYY!!!!!
Come BAAACK!!!!!!!!!!!!!!!!!!
Nan and I were just talking about you yesterday!
Honey, we miss you terribly!!!!
Please???
Cathi
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Life is not measured by the number of breaths we take but by the moments that take our breath away.
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Opus
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Re: Brain Hospital
« Reply #2 on: Nov 22nd, 2006, 3:34pm » |
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Hey Cathy,
Great to see you post. Thanks for the heads up. I will look out for this and post a torrent link if I find one.
Paul
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Zed-Zed-nine plural-Zed alpha,
There is no place like home.
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goof1031
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Re: Brain Hospital
« Reply #3 on: Nov 22nd, 2006, 3:52pm » |
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I would like to see it. What is the time difference from eastern time?
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In CLusterHead Friends we TRUST!!!!
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Linda_Howell
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Re: Brain Hospital
« Reply #4 on: Nov 22nd, 2006, 3:58pm » |
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I sure wish I could get that program here but I was very happy to read that they are using a WOMAN to depict the cluster headache sufferer.
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Charlie
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Re: Brain Hospital
« Reply #5 on: Nov 22nd, 2006, 4:02pm » |
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Might show up months or perhaps longer on BBC America.
Cool and good to hear from you. 
Charlie
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LeLimey
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Re: Brain Hospital
« Reply #6 on: Nov 22nd, 2006, 4:04pm » |
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I'm taping it so we'll see what we can do about getting copies etc if it's worth it! I'll tell you in an hour when its over!
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JeffB
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Re: Brain Hospital
« Reply #7 on: Nov 22nd, 2006, 4:08pm » |
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Brain Hospital...........?
I am glad they are not doing a show on rectal exams, hate to think what the name of that hospital is! 
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" It's been my experience that people who have no vices have very little virtues."
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Jonny
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Re: Brain Hospital
« Reply #8 on: Nov 22nd, 2006, 4:11pm » |
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on Nov 22nd, 2006, 2:36pm, cathy wrote:| Hi Jonny |
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Hi Honey
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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LeLimey
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Re: Brain Hospital
« Reply #9 on: Nov 22nd, 2006, 4:13pm » |
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on Nov 22nd, 2006, 4:08pm, JeffB wrote:Brain Hospital...........?
I am glad they are not doing a show on rectal exams, hate to think what the name of that hospital is! |
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The JeffB(utt) Memorial ??
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JeffB
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Re: Brain Hospital
« Reply #10 on: Nov 22nd, 2006, 4:16pm » |
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" It's been my experience that people who have no vices have very little virtues."
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Tara Ann
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Re: Brain Hospital
« Reply #11 on: Nov 23rd, 2006, 7:37pm » |
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on Nov 22nd, 2006, 4:04pm, LeLimey wrote:I'm taping it so we'll see what we can do about getting copies etc if it's worth it! I'll tell you in an hour when its over!
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Yah I'm interested let me know if it's any good!
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http://www.myspace.com/taraann77
 
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LeLimey
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Re: Brain Hospital
« Reply #12 on: Nov 24th, 2006, 5:05am » |
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Biggest load of bollocks I've ever seen in my life. There's an hour I won't get back 
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mrs mac
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Re: Brain Hospital
« Reply #13 on: Nov 24th, 2006, 5:20am » |
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hmm a few of us think the same Helen!!!!
her attack seemed very minor (to say the least) interesting to see how the ONSI is performed though!!!
sandra xxxxx
added to say, i did find the guy with Parkinsons getting DBs interesting too!!!
and it did give CH a bit of a mention on National TV!!!!
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| « Last Edit: Nov 24th, 2006, 5:26am by mrs mac » |
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LeeS
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Re: Brain Hospital
« Reply #14 on: Nov 24th, 2006, 7:01am » |
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Programme transcript:
Quote:Name: Barbara Cullen: UK Cluster Headache Sufferer for three years, up to eight attacks per day
LW = Laurence Watkins (Neurosurgeon)
BC = Barbra Cullen (Sufferer)
FC = Fred Cullen (Husband)
LW: CH is not a headache that most people experience now and again. It is a very difficult type of headache pain to control and is described as a “Suicide Headache”, so severe patients cannot see any end to it. It will stop you in your tracks, even if you are crossing the road. It is a severe pain, usually behind one eye, “Like a needle being stuck behind one eye” is usually how patients describe it.
FC: To actually watch somebody like this, getting down on their knees, on the floor and literally holding their head and shaking, you think, god this is not a normal headache. I assumed initially this is something she is going to die from, a brain haemorrhage, this isn’t a normal headache; this is something that has gone wrong inside her head.
BC: It’s excruciating, it’s there all the time it doesn’t go away, being in constant pain, being dragged down, it’s a vicious circle. I can’t sleep, so I’m constantly tired. If I have to take the Morphine based pain killers, it’s easy to become disorientated and it would be quite easy to take a few extra and get rid of the pain for once.
FC: Having spoken to the team in London, this is the treatment, and if this doesn’t work the future doesn’t bear thinking about. I think had we not heard of this operation, I don’t think she would have been here today, I think she would have taken here own life, by whatever means.
Narration: The operation Barbara is to have is relatively new and not always successful.
[i]LW: My impression is, it seems to work in 2 out of 3 people - they say ‘it has been worthwhile and significantly improves things’ - and 1 out of 3 say ‘well worth the try but didn’t do any good for me’. A slight unknown with something that hasn’t been around for a long time, we are only really doing the operation in a group of people like yourself, who suffer chronic headache, who are troubled with it continuously, where nothing else has worked … last resort really …
Narration: This morning Barbara will have her operation; Barbara’s headaches are caused by abnormal activity, deep within her brain.
LW: The nervous system, one of the great unknown frontiers, the biggest challenge around. This operation has been partially surgery and part electrical engineering. (The operation takes less than two hours)
Narrative: It’s been two months since Barbara had her op; it’s been a success, the implant is working, it is stopping NEARLY all of her headaches.
Source: Em's video recorder |
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-Lee
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Barron
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Re: Brain Hospital
« Reply #16 on: Nov 24th, 2006, 8:24am » |
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All patients with cluster headaches jump at the chance of this operation. And it is wonderful to meet them later and discover their life is pain-free.
Personally... Psilocybin, & LSA has worked better for me.
What a pitty It's not recieving the same plugs over here in the UK as the ONSI...
Oh, & It's about 15 Grand cheaper... 
CArl... 
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Charlotte
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Re: Brain Hospital
« Reply #17 on: Nov 24th, 2006, 9:26am » |
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I remember the article, and wondering how this guy could possibly say we would all jump at the chance for this surgery and thinking that if she were episodic, she could easily be pf for two months and he would think it was a success. I can't fault the guy for his enthusiasm but he has an extremely narrow point of view.
And I have a tremendous drive for survival, not the other way around.
Charlotte
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surfer
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Re: Brain Hospital
« Reply #18 on: Nov 24th, 2006, 12:53pm » |
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So you have had ONSI then Barron Maybe you should ask for your 15K back if it didnt work 
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Viking007
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Re: Brain Hospital
« Reply #20 on: Nov 24th, 2006, 2:25pm » |
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on Nov 22nd, 2006, 2:36pm, cathy wrote:I dont know if you can get our channels
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No they can't - They use the NTSC system (=Never twice the same color....
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Pinkfloyd
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Re: Brain Hospital
« Reply #21 on: Nov 24th, 2006, 2:48pm » |
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on Nov 24th, 2006, 2:13pm, Viking007 wrote:
After looking at the pic on this link, maybe she would have been better off earlier if she'd asked Ben for some instructions on proper use of 02?
If Ben is listening.,,,,please contact me Ben. How about doing a short instructional video? We'll post it/host it on clusterbusters.com or link from you-tube...or sumptin.
Bobw
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HeadhurtinMama
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Re: Brain Hospital
« Reply #22 on: Nov 24th, 2006, 4:36pm » |
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I just have a hard time with the fact that in three years they went from no headaches to ONSI with no mention of any preventatives of any kind, only pain pills and O2. Maybe that is why she was jumping at the chance for the ONSI?
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Here comes the rain again
Falling from the stars
Drenched in my pain again
Becoming who we are
Wake me up when September ends
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LeLimey
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Re: Brain Hospital
« Reply #23 on: Nov 24th, 2006, 4:48pm » |
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not once in the whole program did I hear of or see an imitrex injection - no triptans were mentioned. No preventatives were mentioned only opiates. I think the whole thing was a farce from beginning to end and a perfect example of TV showing only what they want to.. utter, utter crap. I'm outraged by it in fact. All I can think of is poor sods who's employers will now be pushing them to have this "wonder surgery" - it makes me want to heave. 
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Yorky
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Re: Brain Hospital
« Reply #24 on: Nov 24th, 2006, 5:40pm » |
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on Nov 24th, 2006, 4:48pm, LeLimey wrote:| not once in the whole program did I hear of or see an imitrex injection - no triptans were mentioned. No preventatives were mentioned only opiates. I think the whole thing was a farce from beginning to end and a perfect example of TV showing only what they want to.. utter, utter crap. I'm outraged by it in fact. All I can think of is poor sods who's employers will now be pushing them to have this "wonder surgery" - it makes me want to heave. |
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hi helen...i would not consider this type of surgery..(not if it make's you go surfing )
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today is a gift.....thats why it is called the
present.
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