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Topic: Here's another site memory test ... (Read 720 times) |
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Here's another site memory test ...
« on: Nov 4th, 2006, 2:22pm » |
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What was the BEST hint or info or lesson learned from this site?
Mine, that has SAVED my life, was the lesson: Don't dwell on the hits, dwell on the PF time between them! Deal with the hits, and then enjoy life to the fullest, during the PF time!
That, and the connecting lesson: DON'T let clusters rule or dictate your life! Live your life as you always have, just pause during the time for the hit, and then get back to what you were doing.
What are your lessons, hints, or information?
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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LeLimey
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OUCH-US - Less "ME" and more "WE"
 
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Re: Here's another site memory test ...
« Reply #1 on: Nov 4th, 2006, 2:47pm » |
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I can't better what you've said Chuckles - you can be quite eloquent for an old fart sometimes! 
I've learned we all need each other, it takes every single one of us to fight, to raise awareness and to support each other. None of us are more important than anyone else, it takes every little cog to make this machine move and without all of us, we'll stall.
Laugh. Sometimes there is just nothing else you can do, you just have to grit your teeth and get on with it but being here helps.
Whatever is going on for you someone here understands, the light is ALWAYS on thanks to us being worldwide so there is no need to ever, ever feel alone.
If you have a broken toilet seat fix it. Or more'll be hurtin than your head  Eh Chuckerooni?! 
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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thebbz
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Ow,Ow,Ow
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Re: Here's another site memory test ...
« Reply #2 on: Nov 4th, 2006, 3:04pm » |
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I wasn't alone. It really did hurt that much. Chuck really wasn't like Helen said.
jb
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It wasn't me I didn't do it
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Cathi04
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Re: Here's another site memory test ...
« Reply #3 on: Nov 4th, 2006, 4:45pm » |
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It is NOT CH that defines you.
CH is an affliction-
as Chuck said, life is what you are when you are NOT getting hit! (and, hoooo-boy, Chuck would know......and he demonstrates it!)
Contrary to the hell the beast puts someone thru, CH will not kill you- unless you remember the above.........
Never let yourself get too close to the fire..........
coz.......
Life is good........
Thank you to all of my clusterfriends for demonstrating all of this to me.........
PF GOOD LIFE to all of Clusterville
Cathi
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Life is not measured by the number of breaths we take but by the moments that take our breath away.
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chewy
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Re: Here's another site memory test ...
« Reply #4 on: Nov 4th, 2006, 4:53pm » |
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Never show up at Jonnys house unexpectedly.
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Jonny
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Give me a shovel Ill dig my own grave!
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Re: Here's another site memory test ...
« Reply #5 on: Nov 4th, 2006, 5:01pm » |
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on Nov 4th, 2006, 4:53pm, chewy wrote:| Never show up at Jonnys house unexpectedly. |
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Thank you
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Charlie
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Happy to be here
   
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Re: Here's another site memory test ...
« Reply #6 on: Nov 4th, 2006, 5:11pm » |
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That there are more drugs than I had imagined used to kill the beast.
Also to not show up at Jonny's house without one of my drag gowns. 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Jonny
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Re: Here's another site memory test ...
« Reply #7 on: Nov 4th, 2006, 5:19pm » |
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Touche"....Charlie.....LMAO
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Jimi
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Who loves ya baby!
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Re: Here's another site memory test ...
« Reply #8 on: Nov 4th, 2006, 5:30pm » |
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I learned that Jonny's outfit doesn't look near as good as mine on me.
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I am convinced that life is 10% what happens to me and 90% how I react to it.
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Jonny
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Re: Here's another site memory test ...
« Reply #9 on: Nov 4th, 2006, 5:33pm » |
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Im about to die over here im laughing so hard, Jimi......LMMFAO 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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George_J
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White-Breasted Nuthatch
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Re: Here's another site memory test ...
« Reply #10 on: Nov 4th, 2006, 5:47pm » |
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Don't fear it. It won't kill you. Fear and anxiety only makes the perception of the pain worse, if not the pain itself. Don't worry about it. It does what it does--accept it, and move on. CH is only a part of who you are--like brown hair or blue eyes. It isn't the only thing you are.
Depend upon your friends who know what you're going through. They can be your your greatest strength. Nurture your supporters, and treasure them--they struggle with CH as well.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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kcopelin
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good grief
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Re: Here's another site memory test ...
« Reply #11 on: Nov 4th, 2006, 6:22pm » |
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Breathe in, breathe out, breathe in, breathe out.
Never, never, never give up.
Play nice.
Share.
Jonny really didn't need that wheelchair.
kathy
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Words count, chose carefully.
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andrewjb
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when the love of power becomes the power of love !
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Re: Here's another site memory test ...
« Reply #12 on: Nov 4th, 2006, 6:45pm » |
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.yeah, rave on. all of the above. andrew.
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cynjeep89
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Re: Here's another site memory test ...
« Reply #13 on: Nov 4th, 2006, 8:14pm » |
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I am and always will be stronger than CHs.
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Linda_Howell
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Hearing is one thing. Listening is another.
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Re: Here's another site memory test ...
« Reply #14 on: Nov 4th, 2006, 8:28pm » |
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What have I learned here.???
ALL the info. That I took to my Dr. that made my life easier.
ALL the info. That I am now able to share with those who are new to this game.
All the friends here I have made who have such an impression on me and who w/o having CH I wouldn't even know existed.
That support for this is just as, if not more important as the drugs we use.
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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yikes-another-one
New Board Old Timer
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Re: Here's another site memory test ...
« Reply #15 on: Nov 4th, 2006, 8:41pm » |
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to never relax?????
I think the most important one was
"don't cancel your vacation/dinner/work
just incase you might get a pain....
to go ahead and live...defy...fight back..."
to just realize that it isn't "all in our heads"
oh I forgot the question.... 
hugs,
TJ
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Psalm 23 - Goodness and mercy shall follow US all the days of our lives and WE will dwell in the house of LOVE forever.
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john_d
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Re: Here's another site memory test ...
« Reply #16 on: Nov 5th, 2006, 7:26am » |
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First, It would have to be proper use of oxygen, my doc had no idea. Then when I was in cycle, I was amazed at what some of the lady supporters here knew about how a cluster cycle works and when I could expect it to end. Finally, the seeds and how to use them, which eventually ended up on the CB site. /John
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| « Last Edit: Nov 5th, 2006, 7:26am by john_d » |
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JDH
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We will get by, We will survive!
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Re: Here's another site memory test ...
« Reply #17 on: Nov 5th, 2006, 5:32pm » |
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on Nov 4th, 2006, 2:22pm, ClusterChuck wrote:What was the BEST hint or info or lesson learned from this site?
Chuck |
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Stay away from the political threads
Jim
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9-11-01, to remember is to honor.
It's not what you know, it's what you can prove.
ECH established 1985
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Guiseppi
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Re: Here's another site memory test ...
« Reply #18 on: Nov 5th, 2006, 5:42pm » |
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to try a meet and greet. A life changing event for me.
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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BB
CH.com Alumnus
New Board Newbie
I love YaBB 1G - SP1!
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Re: Here's another site memory test ...
« Reply #19 on: Nov 5th, 2006, 5:51pm » |
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Become educated ..
Turn philosophical ...
But most importantly HAVE FUN while your doing it ..
Annette
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Charlotte
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Re: Here's another site memory test ...
« Reply #20 on: Nov 5th, 2006, 7:39pm » |
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1. get a new doc
2. go to a meet and greet
3. stick around when times are good
4. the one who gives you the worst time is also the one who sticks their hand out to you first when you're in trouble
Charlotte
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| « Last Edit: Nov 5th, 2006, 7:49pm by Charlotte » |
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Bethany1
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Always do whatever's next.
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Re: Here's another site memory test ...
« Reply #21 on: Nov 5th, 2006, 8:53pm » |
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on Nov 5th, 2006, 7:39pm, Charlotte wrote:
4. the one who gives you the worst time is also the one who sticks their hand out to you first when you're in trouble
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This is so true...
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I am sofa king we todd did.
crack is wack
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Mrs Deej
CH.com Administrator
My life is what I make it....and it's beautiful!
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Re: Here's another site memory test ...
« Reply #22 on: Nov 5th, 2006, 10:45pm » |
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WONDEFUL thread Chuck...thank you.
...this is what it's all about...just "being"
You all make a difference in this board, and having each other, I think, makes all the difference in the world!! Each one of you contributes information to the world through this board...we all touch lives, we just may not realize it at the time.
Words are the most powerful form of expression.
 Steph
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Live everyday as if it were your last, ALWAYS say 'I love you' when leaving someone dear to your heart and NEVER go to bed angry!
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Tiannia
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Life does not apologies......
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Re: Here's another site memory test ...
« Reply #23 on: Nov 6th, 2006, 2:48pm » |
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Lets see... I'll start with 5 things
-That I was not insane. That it was really happening.
-That I was not alone.
-To Laugh
-To Vent
-To Live. That the Hit will stop and look around and appreciate what you have right in front of you at the moment.
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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thomas
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"Hit like a phillips head into my brain."
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Re: Here's another site memory test ...
« Reply #24 on: Nov 6th, 2006, 5:05pm » |
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1. Suck it up.
2. Oxygen.
3. I know more than most docs do about this condition, but none of them are willing to listen.
4. Get involved.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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