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Topic: Good Job, OUCH (Read 188 times) |
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George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
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Posts: 4222
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Good Job, OUCH
« on: Oct 11th, 2006, 11:04am » |
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After hearing about the National Organization for Rare Disorders on NPR the other day--a database for hospitals and educational institutions--I took a look at their website.
I see that CH is listed there under Headaches--Cluster, and that OUCH is already listed as one of the contact organizations for more information.
Very impressive, guys. You're really on top of things. Being listed in this database can only help spread knowledge about CH and appropriate treatments to the people who need to hear about it.
Best wishes,
George
edited to add:
http://www.rarediseases.org
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| « Last Edit: Oct 11th, 2006, 11:07am by George_J » |
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
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Posts: 26213
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Re: Good Job, OUCH
« Reply #1 on: Oct 11th, 2006, 3:39pm » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Jimi
CH.com Alumnus
New Board Hall of Famer
Who loves ya baby!
 
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Posts: 2286
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Re: Good Job, OUCH
« Reply #2 on: Oct 11th, 2006, 4:14pm » |
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I am convinced that life is 10% what happens to me and 90% how I react to it.
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