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Topic: Another thing..... (Read 1083 times) |
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DonnaHar
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Another thing.....What about a memorial page in memory of our fallen sufferers? Not for us to dwell over, but for non-sufferers to appreciate the seriousness of the cluster head pain, and show the world just how many of our fellow sufferers have chosen this avenue.
If the number was to be known by the outside world, especially all M.D.'s, perhaps they would realize that cluster headaches (wrong name) are life threatening and treat them as such.
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Yorky
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Re: Another thing.....
« Reply #1 on: Oct 8th, 2006, 12:09pm » |
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Another thing.....What about a memorial page in memory of our fallen sufferers?
lee's page
just pray no one else gets added 
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today is a gift.....thats why it is called the
present.
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chewy
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Hey Deej.
Thats not a bad idea.
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Jonny
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Re: Another thing.....
« Reply #3 on: Oct 8th, 2006, 1:25pm » |
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on Oct 8th, 2006, 11:21am, DonnaHar wrote:| and show the world just how many of our fellow sufferers have chosen this avenue. |
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Just how many have?.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Melissa
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on Oct 8th, 2006, 1:25pm, Jonny wrote:
I guess we'll never know until we start keeping track, huh?
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sandie99
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Re: Another thing.....
« Reply #5 on: Oct 8th, 2006, 1:31pm » |
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I think that it's a wonderful idea! 
I was wondering myself that how many brothers and sisters we have already lost... I have heard that Lee is not the first, but I can't name names. I sure wish, hope and pray that there won't be too many names to add to the list, though.
Best wishes,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Jonny
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Re: Another thing.....
« Reply #6 on: Oct 8th, 2006, 1:37pm » |
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on Oct 8th, 2006, 1:29pm, Melissa wrote:
I guess we'll never know until we start keeping track, huh? |
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I guess we will never know about Lee either, can you imagine pulling the trigger after a good day?
How do we determine who died because of CH, or is this page just going to be of those friends that died for any reason?......People die everyday, but this thread links all to CH....Is that right?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Melissa
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Jonny, we obviously can't determine just WHAT caused them to pull the trigger, but it just might be that CH sufferers have a higher rate of sucide than the norm. They were coined "sucicide headaches" for a reason. No one dies from CH, but having it, you would think, elevates the possibility.
I almost drowned myself the day before I found this website. It wouldn't of been hard to become another statistic. And yes, the clusters would have been the cause.
As for an "In Memoriam" page, it wouldn't be hard to list either "Nautral" or "Suicide" as cause of death next to the name...or username even.
BTW, that night in the bathtub, I had had a great day earlier, but after I was woken with an attack that escalated quick to a kip 10 (to which I can only count twice that I've had 10's), all I wanted to do was end the pain. 
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| « Last Edit: Oct 8th, 2006, 1:43pm by Melissa » |
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Jonny
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Re: Another thing.....
« Reply #8 on: Oct 8th, 2006, 1:48pm » |
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on Oct 8th, 2006, 1:41pm, Melissa wrote:
As for an "In Memoriam" page, it wouldn't be hard to list either "Nautral" or "Suicide" as cause of death next to the name...or username even. |
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Where do we list Cazman and athos?
I dont think we have to list how any of them died, but thats just me.
More have died in their sleep than anything else.....why list it?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Melissa
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on Oct 8th, 2006, 1:48pm, Jonny wrote:
Where do we list Cazman and athos?
I dont think we have to list how any of them died, but thats just me.
More have died in their sleep than anything else.....why list it?
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"Other" comes to mind.
Why list it? Maybe in honor of our friends that are now gone?
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Redd
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Re: Another thing.....
« Reply #10 on: Oct 8th, 2006, 1:54pm » |
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I can't remember which of the doctors said it, but didn't a coworker of theirs commit suicide over clusters?
(at the convention during one of the speaches?)
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| « Last Edit: Oct 8th, 2006, 1:54pm by Redd » |
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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DonnaHar
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I guess there's no way to really know, is there? It's just that this is about the 5th person that I know of within our group who has, and that seems kind of high to me.
I remember thinking back to about the time of that girl whose twin sister took this route, that there were three or so back then...about the year 2001?
I go back and forth with this.....it is called a suicide headache for a reason, but we don't really know if that is why they took this action when they did.
You've made a good point, Jonny.
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Melissa
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I know what you're getting at Jonny, but unless someone wants to write down the cause of death behind the scenes, we'll never really know just how much of a cause clusters are for suicides. 
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Melissa
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Pegg, it was Brian Y. He was on the boards here, that's all I know.
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The mad viking
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Re: Another thing.....
« Reply #14 on: Oct 8th, 2006, 1:58pm » |
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Melissa dear
Have to admit that i have 1 leg in both camp "yess & no"here
We have to step REALLY careful forward on this subject
Who and how will a page like this be administrated?
What about those left behind?
Svenn
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Always Look on The Bright Side of Life
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Jonny
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Re: Another thing.....
« Reply #15 on: Oct 8th, 2006, 2:00pm » |
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All im saying is that we dont need a suicide page....."Welcome newbie, be sure to click on the suicide page"
A page to remember family that has past on is a great idea!!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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chewy
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Quote:Why list it? Maybe in honor of our friends that are now gone?
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Thats the answer. Just a "Nice to have known you" type page.
Doesn't need to attribute someones death to anything.
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maffumatt
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I don't think posting a list of those of us who take their lives is a good idea. It would be a reminder of just how easy it would be to take the easy way out. I can just see some desperate suffer at home getting hit hard or dreading that next 10, looking at a list of those that decided to end it permanently, thinking "if they could do it, so could I." Just my thought on it.
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Melissa
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Look everyone, a memoriam page would be awesome, I've PM'd Deej about it a few times in the past, but haven't heard anything back.
The cause of death doesn't have to be listed, that was the last thing on my mind, but I understood what Donna was trying to say, to get the numbers of those who have gone by way of suicide.
I guess that here at home, I'll start keeping the names of those who have chosen this option. I pray to God that I don't need to write down more names from this day forward.
mel
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Redd
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Re: Another thing.....
« Reply #19 on: Oct 8th, 2006, 2:10pm » |
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on Oct 8th, 2006, 1:58pm, Melissa wrote:| Pegg, it was Brian Y. He was on the boards here, that's all I know. |
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Thank you for clearing up my brain fart.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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The mad viking
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Re: Another thing.....
« Reply #20 on: Oct 8th, 2006, 2:14pm » |
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I think there are issues here that we should think both 3 and 4 times before we do anything.We cant rush this
Just my 2 cent worth
Svenn
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chewy
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Quote:| to get the numbers of those who have gone by way of suicide |
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There is no way you could definitively determine that someone's suicide was triggered by CH and CH only once a person is gone.
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| « Last Edit: Oct 8th, 2006, 2:16pm by chewy » |
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Melissa
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on Oct 8th, 2006, 2:15pm, chewy wrote:
There is no way you could definitively determine that someone's suicide was triggered by CH and CH only once a person is gone. |
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I know that. This is just a gathering of data.
I hope ya'll can understand that obviously, NO ONE can determine the exact cause of a suicide unless they tell someone just before they commit it, or leave a note as to the reason.
I'm not trying to prove anything here.
Look, if everyone has a problem with me keeping a list, then I'll forget about it.
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chewy
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Keeping a list of sufferers AND SUPPORTERS we have lost and memorializing their life in some way is a great idea.
Memorialize their life, not their death.
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| « Last Edit: Oct 8th, 2006, 2:23pm by chewy » |
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sandie99
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Re: Another thing.....
« Reply #24 on: Oct 8th, 2006, 2:27pm » |
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I understand both sides, but to be honest, if I had decided to kill myself, it would be because the pain inside my head had become too emormous to bare - not because I had read a "in memoriam" site. Most of us are aware that there's always that ultimate way out, some of us have considered it, luckily only few have tried... Every year there's in memorian section at the Academy Awards - it's there to celebrate those peoples' life and work, not their death.
if we want someone to take ch seriously, it would be fair that we will not - as a ch community - forget that there are clusterheads who have taken their own lives. I understand very well that there are their families to consider (I for one would like others to mention what it was my illness which caused myself to end it). I bet that many of us have dealed with hits,which take us so down and desperate that death seems the only option... in my book, if a clusterhead took his/her own life while in cycle/chronic, I would not have too many thought why.
Those who wonder... I was close to killing myself in spring 2004.
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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