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Topic: newly diagnosed ch sufferer (Read 391 times) |
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humbled
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newly diagnosed ch sufferer
« on: Oct 4th, 2006, 7:15am » |
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hello everybody.
my friend found this website for me.i am shocked at the amount of pain here. its a little traumatizing for me...
last week was the first time in my 34 year life that somebody put their hands on me and said to me..."dont worry i will make sure we get you some help"
this coming from an emergency room doctor, first time in my life someone actually helped me. i was admitted to hospital and after a week of moriphine and codeine injections an out of town neurologist diagnosed me with cluster headeaches and now i have found you guys.
dont mean to take up your time but whoever started this site really did something good here. just knowing tht im not the only one.......its like coming out of the dungeon my family doctor has put me in so so so long ago. i have read some postings and messages..........cannot stop crying fr past hour. i am so sorry for all of your pains. if i can help anyone please let me know...if there is anything ill do what i can eh.
my lack of sleep and sanity is clouding my judgement here and wht im suppose to say but i am happy know to finally understand wht is wrong with me and to see tht there is some help out there.....
peace and love will win the day
peace.....allen
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a tout le monde, only in numbers will we evr win. united we stand, united we fall
peace and love
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BB
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I love YaBB 1G - SP1!
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Re: newly diagnosed ch sufferer
« Reply #1 on: Oct 4th, 2006, 8:48am » |
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Hello Allen,
Welcome home !
Yes, I felt exactly the same way when I came onto this Board not that long ago. Fear, joy, relief, worry, peace ... all rolled into one and tears did flow freely, and I am not a clusterhead, my DH is.
Thanks for offering help on your first post. That is just so amazing !
Hang around, post questions and start making some friends 
Take care and painfree wishes to you.
Annette
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Karla
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Re: newly diagnosed ch sufferer
« Reply #2 on: Oct 4th, 2006, 10:31am » |
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Warm Welcome and check your PM's.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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rickyshot
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ouch
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Re: newly diagnosed ch sufferer
« Reply #3 on: Oct 4th, 2006, 11:21am » |
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I found this board after 22 years of suffering and could not tell you how it helped. Read all the sidebars and get informed. Post and ask ask ask questions you still have. I know the feeling. I cried for a whole day after I found this board. I was in a very bad cycle. Dont' ask.
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Mattrf
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Re: newly diagnosed ch sufferer
« Reply #4 on: Oct 4th, 2006, 11:29am » |
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Give us a good run down on your symptoms and pain levels and treatment they have tried and we will all do our best to help you get your doctor to give you the best treatment he can. It is very clear that most doctors do not know much about CH so you have to educate them by doing your own research and taking them everything you can to help them help you. So keep reading and asking questions, there are a lot of good people here that want to help and thanks for offering help on your first post, that is what this place is all about.
Sorry you had to find us but glad you are here, welcome to the funny farm.
Matt
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There is no stronger a person then one who can deal with brain pain and still function.
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echo
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Re: newly diagnosed ch sufferer
« Reply #5 on: Oct 4th, 2006, 11:29am » |
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Hello Allen, Welcome to clusterville. Sorry you had to search this site out, glad you found it.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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aprilbee
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Re: newly diagnosed ch sufferer
« Reply #6 on: Oct 4th, 2006, 12:05pm » |
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on Oct 4th, 2006, 12:04pm, KingOfPain wrote:Ummm....
What the? 
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I was wondering the same thing.... 
hhhmmmmmmmmmmmmmmmm.....
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LeLimey
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Re: newly diagnosed ch sufferer
« Reply #7 on: Oct 4th, 2006, 12:08pm » |
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I just saw this too and thought it was you Steve - Hi Alan, as you can see this is going to get confusing as we already have a KOP!
Let's see.. you could be King of Pain's in the 
.......nope that's JeffB
King of Queens?? Nope, ain't going there! 
Bugger King?!
You're welcome anyway, we just can't resist a giggle sometimes
Helen
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Margi
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Re: newly diagnosed ch sufferer
« Reply #8 on: Oct 4th, 2006, 12:19pm » |
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well, actually - he doesn't live too far from Queen's (University) so maybe.... naw, that title's reserved for Chewy, right?
Allen - you'll note that we already have another KingOfPain here and, well...he picked the name first, he's been here longer, so technically - he does have bragging rights to the name. These Yabb boards, though - even if you make one character different from another user name, they will allow this kind of duplication. Not your fault.
How about SarniaSufferer? Or maybe even PRINCE of Pain, would that work? Or hey...even just Allen?
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kathy copelin, ch.com 8/8/06
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maffumatt
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Re: newly diagnosed ch sufferer
« Reply #9 on: Oct 4th, 2006, 12:27pm » |
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LOL welcome to the nut house.
Matt
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pattik
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Re: newly diagnosed ch sufferer
« Reply #10 on: Oct 4th, 2006, 12:37pm » |
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on Oct 4th, 2006, 12:35pm, KingOfPain wrote:I have stood here before inside the pouring rain
With the world turning circles running round my brain
I guess Im always hoping that youll end this reign
But its my destiny to be the king of pain
- The Police
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Great song, great band.
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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maffumatt
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Re: newly diagnosed ch sufferer
« Reply #11 on: Oct 4th, 2006, 12:39pm » |
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and a great guy......
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Charlie
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Re: newly diagnosed ch sufferer
« Reply #12 on: Oct 4th, 2006, 1:38pm » |
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Welcome Allen to the madhouse.....it didn't take long did it?
I know where you've been and I sobbed when I first saw the guestbook. I had no idea..... I've been pain free for 15 years but it was a revelation. You'll find lots of good ideas, advice and lunacy here. Pay attention; these people know their stuff.
It's good to be the King. 
Charlie
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| « Last Edit: Oct 4th, 2006, 1:39pm by Charlie » |
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sandie99
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Re: newly diagnosed ch sufferer
« Reply #13 on: Oct 4th, 2006, 1:43pm » |
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Warm welcome here, Allen!
I'm glad that you found your way here.
Best wishes & PF days,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Batch
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Re: newly diagnosed ch sufferer
« Reply #14 on: Oct 4th, 2006, 1:51pm » |
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Welcome Aboard Allen. Your friend did you a big big favor. You'll find this site is THE source of even more help, love, understanding, and a lot of "pick-me-up" when ever you need it.
Cheers, Pete
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BMoneeTheMoneeMan
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Re: newly diagnosed ch sufferer
« Reply #15 on: Oct 4th, 2006, 9:15pm » |
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maybe allen can be a duke.
a Kick ASS Duke...........
Or maybe you can be the Leader Formerly Known as King.
Welcome.
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FramCire
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Re: newly diagnosed ch sufferer
« Reply #16 on: Oct 4th, 2006, 9:40pm » |
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Can't we have an American KOP and the Canadian KOP> Maybe the American version can post 1.1286 times for every Canadian KOP post.
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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Fredmyyster
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Re: newly diagnosed ch sufferer
« Reply #17 on: Oct 4th, 2006, 10:03pm » |
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Allen , Greetings from Texas ! Hope you find everything you need here. This is without a doubt the very Best CH site online !
And by the way, there is only one Duke, just ask Snake Plisken and Cabby ! 
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Linda_Howell
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Re: newly diagnosed ch sufferer
« Reply #18 on: Oct 4th, 2006, 10:41pm » |
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dont mean to take up your time but whoever started this site really did something good here. |
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Welcome Allen. You are NOT taking up our time and the "whoever started this" person would be a man named DJ
He is our hero... but he will be the first to say it is, 'US' who have made this site what it is.
KOP or Steve, is our (American) King of Pain so if you want to change your name you've certainly been given a few rather interesting choices to come up with. Hope you pick one you will like.
( Margi? Do I end this with an "eh"?)
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Mr. Happy
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Re: newly diagnosed ch sufferer
« Reply #19 on: Oct 4th, 2006, 10:46pm » |
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Allen,
If I were you, I'd fight that miserable prick every inch of the way over name rights.
Hugs.
Hap
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George_J
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Re: newly diagnosed ch sufferer
« Reply #20 on: Oct 5th, 2006, 12:08am » |
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on Oct 4th, 2006, 10:46pm, Mr. Happy wrote:Allen,
If I were you, I'd fight that miserable prick every inch of the way over name rights.
Hugs.
Hap |
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Good thing you didn't call yourself "chewie".
Welcome, Allen. Have a good look around. If you have questions or things you'd like to talk about, feel free to do so.
Best regards,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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tanner
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Re: newly diagnosed ch sufferer
« Reply #21 on: Oct 5th, 2006, 12:31am » |
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Allen, I just want to add my welcome to what may very well turn out to be the most meaningful site you have ever clicked on.
Here you will find the most comprehensive collection of knowledge of CH and links to more than anywhere else in the world.
You will also find nutcases (no Helen I did not mean you and some true rocket scientist types. Yes there is a lot of pain here, but if you share this pain than you are in the right place.
The most amazing thing you will find here though is a depth of understanding, caring, and love that you can only see in the very best of families!
As far as the name thing goes as you see we already have 1 in name and another by reputation (yes jonny i do mean you), so you might want to rethink that. History has shown that when you get too many Kings and not enough subjects it is usually a couple of the Kings that lose their heads
Nice to meet you and wishing PFDANs to ya.....Tim
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| « Last Edit: Oct 5th, 2006, 12:33am by tanner » |
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