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Topic: Oklahoma Clusterheads! (Read 1304 times) |
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DJ
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Oklahoma Clusterheads!
« on: Sep 26th, 2006, 10:44pm » |
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All you clusterheads from Oklahoma... get ahold of me ASAP! I just received a note from a reporter from the NBC affilliate in Oklahoma City (KFOR) who is doing a story on "suicide headaches".
She would like to interview people from this site who live in Oklahoma for her story.
Send me an email or PM and I will pass on her contact info...
DJ
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I NEVER could have imagined! (April 11th, 1998 - present)
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chewy
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Re: Oklahoma Clusterheads!
« Reply #1 on: Sep 26th, 2006, 10:51pm » |
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Get on it Oakies! This is your big chance to help thousands of suffers.
Who knows? This could be the media break that spreads like a Las Vegas rash.
(And I know about Las Vegas rashes)
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TxBasslady
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Re: Oklahoma Clusterheads!
« Reply #2 on: Sep 27th, 2006, 3:52am » |
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TTT
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How lucky I am... to have known someone who was so hard to say goodbye too.
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HappyElaine
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Re: Oklahoma Clusterheads!
« Reply #3 on: Sep 27th, 2006, 7:25am » |
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I hope you get lots of PMs DJ ! 
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Melissa
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Re: Oklahoma Clusterheads!
« Reply #4 on: Sep 27th, 2006, 9:29am » |
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Doesn't Gator & KOP live in OK?? My mind goings blank right now.
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The mad viking
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Re: Oklahoma Clusterheads!
« Reply #5 on: Sep 27th, 2006, 11:06am » |
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This is importent and a golden oportunity
WAKE UP FOLKS
Svenn
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Peppermint
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Re: Oklahoma Clusterheads!
« Reply #6 on: Sep 27th, 2006, 11:09am » |
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Deej,
I left a message for Donna D. ... KOP lives in Oklahoma.
So does Cris (hopefully he's reachable), and Sue Ellen, whom I'll try to contact directly. Lee also lives out there. I forget who else but they had a few meet and greets, and possibly KOP (Steve) will be able to reach everyone.
What's the deadline?
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When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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aprilbee
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Re: Oklahoma Clusterheads!
« Reply #7 on: Sep 27th, 2006, 11:48am » |
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DJ,
I live in Oklahoma City very close to the KFOR studios! What information do you need from me? I'm even in cycle right now so that's a bonus huh? I tried to PM you, but it didn't go through...my email address is aprilbee28@yahoo.com just let me know what you need!!!
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Gator
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Re: Oklahoma Clusterheads!
« Reply #8 on: Sep 27th, 2006, 1:02pm » |
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Yee Haw! It's about time. I wrote these people (and all the other local stations) about doing a story on ch back in July 04 and never heard anything back from them. Channel 9 wrote back saying they'd discuss the possibility of a story, but it never went any further than that.
At any rate, I'm happy to see this opportunity to get the word out there and I'm definitely interested!!!
You got an e-mail and a PM from me, DJ.
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| « Last Edit: Sep 27th, 2006, 1:04pm by Gator » |
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Tiannia
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Re: Oklahoma Clusterheads!
« Reply #9 on: Sep 27th, 2006, 2:03pm » |
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Now not all us Vegans spread that rash....
Besides havn't you heard?
"What happens in Vegas stays in Vegas. "
That is so awesome. Just maybe other stations will get thier crap together and jump on board as well.
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| « Last Edit: Sep 27th, 2006, 2:04pm by Tiannia » |
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Fredmyyster
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Re: Oklahoma Clusterheads!
« Reply #10 on: Sep 27th, 2006, 3:51pm » |
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Thats killer ! Last time i was in OKC i hit Remington ( broke even ) and had a ( or tried to ) Big Ed Hamburger... that thing was sick !
Hope ya'll git the word out and the word is OUCH !
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Karla
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Re: Oklahoma Clusterheads!
« Reply #11 on: Sep 27th, 2006, 11:47pm » |
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bump
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Karla
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Fredmyyster
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Re: Oklahoma Clusterheads!
« Reply #12 on: Sep 28th, 2006, 5:29am » |
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Just to clear this up, i meant OUCH as in ow ow ow, something we all do when the head throbs.... not the group....
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unsolved1
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Re: Oklahoma Clusterheads!
« Reply #13 on: Sep 28th, 2006, 6:21pm » |
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Of course, the rest of us want links to the story when available.
UNsolved
Go people ... GO !!
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aprilbee
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Re: Oklahoma Clusterheads!
« Reply #14 on: Sep 29th, 2006, 9:02am » |
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I had an interview set up for 10/5 and they cancelled it saying there had been an overwhelming response! Great job Okies! I can't wait to see the story....good luck! 
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_Lee_
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Re: Oklahoma Clusterheads!
« Reply #15 on: Sep 30th, 2006, 10:29pm » |
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I would love to!
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PollyPocket
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Re: Oklahoma Clusterheads!
« Reply #16 on: Oct 1st, 2006, 7:07pm » |
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this is awesome! Way to go all!!!!!!!!!!!!!!!!!
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Jasmyn
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Re: Oklahoma Clusterheads!
« Reply #17 on: Oct 2nd, 2006, 1:02pm » |
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Wow! Great Stuff! 
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Jazz
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vig
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Re: Oklahoma Clusterheads!
« Reply #18 on: Oct 3rd, 2006, 7:44pm » |
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way to go people!!!!!
keep it up
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never, Never, NEVER quit. -Winston Churchill
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Gator
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Re: Oklahoma Clusterheads!
« Reply #19 on: Oct 5th, 2006, 7:07pm » |
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Well, I had my interview this morning at 11:00. The reporter said it went well, but with the extra hits I'm getting lately and me not sleeping at all last night on top of the problems with the grand baby, I'm not sure I was at my best. Anyways...
She asked questions about clusters and the level of pain and how we deal with such intense pain day in and day out and still function.
Discussed the suicide aspect of "Suicide Headaches" and how real the thought of suicide can be when a person is in such repetative extreme pain.
Talked a bit about clusterheadaches.com and ouch and how ouch was born from ch.com.
She asked the question of how ch compares to other headaches, specifically migraine. I gave migraines their due, but explained that the intensity of a ch was what made them so much worse.
They got some footage of my O2 rig (welder's O2). I explained how I couldn't afford the medical stuff, but that welder's O2 was the same pure oxygen. They wanted some footage of me using the O2 rig.
Also talked a bit about trex injections and how expensive they are and some footage of how it's used, right up to pushing the plunger. No trex was actually used.
They wanted a look at the medicine chest. I explained that I am not currently taking a preventative as none have worked up to this point.
All in all, I guess it went okay. I can't wait to see what they actually use from my interview and everyone else's.
The report will air sometime around November 6 - 9 on the 6:00pm News on Channel 4. I asked if they could get me a copy of the footage or the report, but she said their editor would not allow that. She did say we are free to record what is aired and use that.
I want to take this time to thank all you Okies that responded to the mass e-mail OUCH sent out. The reporter said she was overwhelmed with volunteers. I'm proud of all of you for stepping up.
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Jonny
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Re: Oklahoma Clusterheads!
« Reply #20 on: Oct 5th, 2006, 7:24pm » |
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Way to go, Bro!!!!  
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Gator
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Re: Oklahoma Clusterheads!
« Reply #21 on: Oct 5th, 2006, 8:44pm » |
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Oh and I just HAVE to brag on my doc.
The reporter asked several doctors for an interview about clusters and 4 or 5 turned her down. Only one, Dr. Marc Lenaerts from the OU Medical Center Neurology Department (my neuro), agreed to be interviewed.
I have an appointment with him on the 28th and you can be sure he'll get a big thanks from me.
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Jonny
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Re: Oklahoma Clusterheads!
« Reply #22 on: Oct 5th, 2006, 8:55pm » |
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on Oct 5th, 2006, 8:44pm, Gator wrote:| I have an appointment with him on the 28th and you can be sure he'll get a big thanks from us. |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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aprilbee
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Re: Oklahoma Clusterheads!
« Reply #23 on: Oct 6th, 2006, 10:28am » |
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on Oct 5th, 2006, 8:44pm, Gator wrote:Oh and I just HAVE to brag on my doc.
The reporter asked several doctors for an interview about clusters and 4 or 5 turned her down. Only one, Dr. Marc Lenaerts from the OU Medical Center Neurology Department (my neuro), agreed to be interviewed.
I have an appointment with him on the 28th and you can be sure he'll get a big thanks from me.
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that's my doc too! love him love him love him! great job Mike!
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_Lee_
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Re: Oklahoma Clusterheads!
« Reply #24 on: Oct 8th, 2006, 9:48am » |
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DJ -
I am Lee's wife. thought you guys might want to know that Lee died last Friday night. Shot himself in the temple with a pistol. I thought he was doing better - he had a good day on Friday.
Sheila Moore
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