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Topic: Skilly is back, anyone here now that was here then (Read 399 times) |
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lskilly
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A dyed in the wool fly fishin fool
 
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Skilly is back, anyone here now that was here then
« on: Sep 20th, 2006, 7:23pm » |
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Just thought I would see if anyone has a long memory. I was here last 8 years ago. My memory is so poor I cant think of the name of anone who was here then.
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PollyPocket
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Re: Skilly is back, anyone here now that was here
« Reply #1 on: Sep 20th, 2006, 7:35pm » |
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Well then, its time to reintroduce yourself. Hi skilly.  Nice to meet you. We've kept the light on.
Jen
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
"If I don't remember it happening, it never happened.  " - Tori
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Brew
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Re: Skilly is back, anyone here now that was here
« Reply #2 on: Sep 20th, 2006, 9:57pm » |
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Pleased to meet you, Skilly. Welcome back. Unlike you, I was not here 8 years ago. This place must have just started back then.
Regards,
Bill
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cootie
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Skilly is back
« Reply #3 on: Sep 20th, 2006, 11:45pm » |
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Has this site been here 'that long' ? My how time 'fries' Pam
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Charlie
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Re: Skilly is back, anyone here now that was here
« Reply #4 on: Sep 21st, 2006, 7:43pm » |
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 I've been here just about 6 years so we haven't met.
Hope you stick around and reintroduce yourself.
Charlie
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lskilly
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Re: Skilly is back, anyone here now that was here
« Reply #5 on: Sep 27th, 2006, 7:35pm » |
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Yep it was here 8 years ago. Just a fledgling site but I see it has blossomed. Hard to believe there are so many of us. I am 66 now and glad to say hello again to those who can understand when I say it hurts. I live in Western Washington and looking at the map I see there are not to many of us here.
I used to chat with one guy from Oregon and a lady from PA be cant remember their names.
Currently I am back in Biofeedback to control the pain. Aslo have Zomig on hand in case I cant abort the cluster.
I was able to control the cluster and got confident. Didnt keep doing the biofeedback work thought man I have these whipped. That was dumb.
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Jonny
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Re: Skilly is back, anyone here now that was here
« Reply #6 on: Sep 27th, 2006, 7:43pm » |
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Check the archives from the old board, as you can see this is a whole new set up.
Welcome back!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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lskilly
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Re: Skilly is back, anyone here now that was here
« Reply #7 on: Sep 27th, 2006, 7:48pm » |
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Thanks I didnt think of the archives.
Oh there is one other thing I am doing allot of this time. Praying. Maybe this run of clusters is a good thing for me. they have brought me back to God.
Skilly
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Ree
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Re: Skilly is back, anyone here now that was here
« Reply #8 on: Sep 27th, 2006, 8:28pm » |
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Skilly they have a way of bringing you to your knees... Nice to have you back sorry you are suffering.... be well
Ree
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ShariRae
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Re: Skilly is back, anyone here now that was here
« Reply #9 on: Sep 27th, 2006, 11:40pm » |
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Welcome Home Skilly..sorry ya had to find your way back though 
Much Love
Shari
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Karla
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Re: Skilly is back, anyone here now that was here
« Reply #10 on: Sep 27th, 2006, 11:43pm » |
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WB Skilly. I remember you! You will have to research the board to see your old post and your interactions. Glad you have been doing well.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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lskilly
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Re: Skilly is back, anyone here now that was here
« Reply #11 on: Oct 1st, 2006, 1:08pm » |
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Hi Carla
Nice to say hello. Hard to believe so many suffer with the same pain and still not an answer. when I went to my doc he looked through my files and said they tried everything before and thats all thats' available other than the Zomig and the nasal spay imitrex that was justcoming out then.
The support of the board then and now is great. Just commuicating with others that can understand is heartning. I am still mostly in the one a night phase but am having a few at odd times during the day. Tried to come here during an attack but cant stand to try and read. I am progressing with the self hypnosis and am able to go deeper into the trance to block the pain. It's still takeing me 30 minutes or so to get to that level but when I finnaly get there I can ease the pain.
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Yorky
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Re: Skilly is back, anyone here now that was here
« Reply #12 on: Oct 1st, 2006, 1:25pm » |
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on Sep 27th, 2006, 8:28pm, Ree wrote:Skilly they have a way of bringing you to your knees... Nice to have you back sorry you are suffering.... be well
Ree |
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hi skilly...try to keep off your knee's at your age. .sorry you needed to come back..since you were born in 1940..when did your ha's start, how long before you were diagnosed, what medication have you tried.....and what are you on now? good luck buddy.
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today is a gift.....thats why it is called the
present.
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DonnaHar
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Re: Skilly is back, anyone here now that was here
« Reply #13 on: Oct 1st, 2006, 3:36pm » |
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I joined in mid 1999, so we must know some of the same people......thing is, those who left come back with new names which I don't recognize. Is yours the same now as it was then?
Those of us in our '60's didn't have any meds to use on CH. Later, Sansert came out for Horner's Syndrome which many of us were diagnosed with, but that didn't work on me and I heard such bad things about it later that I was glad it didn't work. I stopped having CH's in 1986 and was never treated for cluster headaches, but found this site when my son was in a bad cycle. He found relief with Prednisone.
Like others say, sorry you had to look for us again, but glad you found us.
Welcome home.
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Karla
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Re: Skilly is back, anyone here now that was here
« Reply #14 on: Oct 1st, 2006, 3:54pm » |
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The nasal spray is something you are going to want to try! It works and takes away the ha as fast as a shot without the needles. In 6-15 min. the pain is gone. That beats an hr effect for the imitrex pill. Good luck!
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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Linda_Howell
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Re: Skilly is back, anyone here now that was here
« Reply #15 on: Oct 1st, 2006, 4:12pm » |
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Quote:| My memory is so poor I cant think of the name of anone who was here then. |
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I was. 
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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lskilly
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A dyed in the wool fly fishin fool
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Re: Skilly is back, anyone here now that was here
« Reply #16 on: Oct 3rd, 2006, 8:59pm » |
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Hi Lina and agian to everyone. Hope you are all doing well.
I do spend more time on my knees this time. Be surprised at the things I find while I am down there. a couple of Flies I had tied, really hard candy. No money yet but I am hoping, Oh and God. He seems to be helping allot. Anyway I sure am keeping him busy talking to him.
Someone wrote that these go away at 70,,, good I only have 3 1/2 more years to go!!!!
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lskilly
New Board Veteran
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Re: Skilly is back, anyone here now that was here
« Reply #17 on: Oct 4th, 2006, 8:36pm » |
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Yes I think the name is the same. It might of been just Skilly back then.
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