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Brew
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One month ago today....
« on: Sep 20th, 2006, 12:07pm » |
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...I had my last hit. I started taking my prescribed Sansert, and after two days of some really disgusting side-effects, I have been hit-free!
I have a call into my neuro's office because he told me to call him once I had been hit-free for one month. We will discuss which of the three preventatives I will start tapering off of.
There are little tears of joy welling up in my eyes as I type this. First time since mid-January. Best thing about it - sleeping through the night.
Just wanted to share a bit of my happy heart today.
Bill
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nani
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Re: One month ago today....
« Reply #1 on: Sep 20th, 2006, 12:10pm » |
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YAY!!!!!!!
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Paul98
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Re: One month ago today....
« Reply #2 on: Sep 20th, 2006, 12:14pm » |
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Glad to hear it Bill. Next up-two months PF! 
-P.
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PollyPocket
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Re: One month ago today....
« Reply #3 on: Sep 20th, 2006, 12:35pm » |
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 yay! I'm happy for ya brew!
Jen
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JeffB
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Re: One month ago today....
« Reply #4 on: Sep 20th, 2006, 12:38pm » |
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Bitchin, dude! 
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JDH
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Re: One month ago today....
« Reply #5 on: Sep 20th, 2006, 12:56pm » |
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Fuckeneh!!!
Welcome back to pf living.
Jim
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pattik
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Re: One month ago today....
« Reply #6 on: Sep 20th, 2006, 1:00pm » |
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Fantastic news, Bill. And keep us posted. 
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BMoneeTheMoneeMan
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Re: One month ago today....
« Reply #7 on: Sep 20th, 2006, 1:21pm » |
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Thats awesome!!!
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Richr8
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Re: One month ago today....
« Reply #8 on: Sep 20th, 2006, 1:26pm » |
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Great to hear Bill. Atleast for episodics, it's the one thing we have, that is, knowing that PF time is somewhere ahead.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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TxBasslady
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Re: One month ago today....
« Reply #9 on: Sep 20th, 2006, 2:23pm » |
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PF is always good news for the Brewcrewster Clan.. ..and even better news for the rest of the family.
Jean
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Brew
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Re: One month ago today....
« Reply #10 on: Sep 20th, 2006, 2:52pm » |
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on Sep 20th, 2006, 2:23pm, TxBasslady wrote:PF is always good news for the Brewcrewster Clan.. ..and even better news for the rest of the family.
Jean
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What the hell are those, Jean? Dancing marshmallows? Maybe fondue pots? Doesn't matter - they made me smile.
Seriously, thanks everybody for the kind words and wishes. I'm more and more convinced that it's not the pain of each individual hit that weakens us - it's the constant battle, the lack of sleep, and the demoralization that takes the most expensive toll. When any of us gets a break, a time to recharge the batteries, it's time for us all to rejoice.
I'll keep all y'all posted on how it goes.
(that "all y'all" stuff is for Jean and anyone else from south of the Mason-Dixon line)
Bill
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Carl_D
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Re: One month ago today....
« Reply #11 on: Sep 20th, 2006, 4:02pm » |
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Now that is something to dance about.
Hope you stay PF Brewski,
Carl
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Brew
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Re: One month ago today....
« Reply #12 on: Sep 20th, 2006, 4:24pm » |
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on Sep 20th, 2006, 4:02pm, Carl_D wrote:Now that is something to dance about.
Hope you stay PF Brewski,
Carl |
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OMG - Chris Farley as Barney, the Chippendale dancer. One of my favorite SNL skits of all time.
Short story - I took a day off two years ago and asked my then 12-year-old son what he wanted to do for the day. He said, "Let's go to Madison and find Chris Farley's grave." We did, and we found it. Both of us standing there in silent awe, so many SNL reels playing in our heads. It was one of those father/son moments not to be forgotten.
Thanks for the kind words, and for the memories, Carl.
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tanner
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Re: One month ago today....
« Reply #13 on: Sep 20th, 2006, 4:30pm » |
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Great news Brew 
Every victory counts a lot and gives the rest of us hope!
Now keep up the good work......Tim
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sandie99
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Re: One month ago today....
« Reply #14 on: Sep 20th, 2006, 4:51pm » |
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FANTASTIC!!!!!!!!!!!!!!
May there be lots of PF months in your future, following this one!
Best wishes,
Sanna
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CH happends, Live anyway! PF days to us all!
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Charlie
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Re: One month ago today....
« Reply #15 on: Sep 20th, 2006, 7:12pm » |
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Charlie
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Brew
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Re: One month ago today....
« Reply #16 on: Sep 20th, 2006, 7:39pm » |
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Update #1 - Talked to my neuro's nurse this afternoon, and the first step I get to take is to cut my verapamil dosage from 480 mg/day to 240 mg/day for one month. If still h/a free, cut the verapamil altogether. One bridge at a time.
You guys are the best.
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Mr. Happy
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Re: One month ago today....
« Reply #17 on: Sep 20th, 2006, 7:40pm » |
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Hey, Brew......what'd ya have to go thru to "Score the Goods," as it were, since it's out of production in the US?
(You may have explained this elsewhere, but I have the attention span of a gnat.)
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Brew
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Re: One month ago today....
« Reply #18 on: Sep 20th, 2006, 8:20pm » |
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on Sep 20th, 2006, 7:40pm, Mr. Happy wrote:Hey, Brew......what'd ya have to go thru to "Score the Goods," as it were, since it's out of production in the US?
(You may have explained this elsewhere, but I have the attention span of a gnat.) |
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Well, you and I are cut from the same cloth, my friend. I did discuss it elsewhere, but I haven't got a clue where.
I scored the first month's worth at the following:
http://www.pharmawebcanada.com/
Then I found out that my insurance company (Cigna) has its own in-house compounding pharmacy (Tel-Drug). I paid $124 for the first month's supply (of which Cigna will pay half since it's an out-of-network pharmacy). When I go through Tel-Drug, they make it up themselves and charge me $75 for a 3-month supply.
There are compounding pharmacies all over the place - that may be the route you need to go. It'll come with its generic name attached: methysergide maleate. If this doesn't work for you, Canada is still an option. Good luck, and feel free to PM me if you need more info.
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Jonny
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Re: One month ago today....
« Reply #19 on: Sep 20th, 2006, 8:24pm » |
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on Sep 20th, 2006, 8:20pm, brewcrew wrote:| There are compounding pharmacies all over the place |
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When they stopped making what worked for me....NancyC searched the net and found a place by me that compounded what I needed.
Thanks again, Nanc 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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Mr. Happy
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Re: One month ago today....
« Reply #20 on: Sep 20th, 2006, 8:34pm » |
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on Sep 20th, 2006, 12:07pm, brewcrew wrote:| two days of some really disgusting side-effects |
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Shit.
I meant to ask you what they were first time around.
Shit.
Hap
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May those who don't want any
Have memories of never getting any.
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jimmers
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Re: One month ago today....
« Reply #21 on: Sep 20th, 2006, 8:43pm » |
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Glad your feeling better Brew! Now take me to lunch ya cheap bastard!
Seeya
Jimmers
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I don't suffer from INSANITY; I'm enjoying every minute of it!
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Brew
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Re: One month ago today....
« Reply #22 on: Sep 20th, 2006, 8:46pm » |
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on Sep 20th, 2006, 8:34pm, Mr. Happy wrote:
Shit.
I meant to ask you what they were first time around.
Shit.
Hap
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I told you, we're cut from the same cloth. You nailed both of them!
Wait - It was shit and puke. And visual auras (not so disgusting - actually kinda fun). And jaw clenching.
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Brew
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Re: One month ago today....
« Reply #23 on: Sep 20th, 2006, 8:51pm » |
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on Sep 20th, 2006, 8:43pm, jimmers wrote:Glad your feeling better Brew! Now take me to lunch ya cheap bastard!
Seeya
Jimmers |
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Yeah, yeah, yeah. As soon as I find out what my travel plans are for next week, I'll give you a call. Should know something tomorrow or Friday. You have to figure out where we're going, though. Think about what time and where and I'll be all over it.
And thanks for your kind words.
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Grandma_Sweet_Boy
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Re: One month ago today....
« Reply #24 on: Sep 20th, 2006, 8:57pm » |
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That's great news Bill. Glad to hear it's all starting to settle down for you again.
Hugs from "your partner in Orange"
Carol
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