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   Author  Topic: Is this person one of us  (Read 507 times)
Opus
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Is this person one of us
« on: Sep 14th, 2006, 9:33pm »
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I just found this blog
 
 
If this person is already a member here I apologize.
 
If they are not then I will try to contact them about CH.com, O2 and splitting trex shots.
 
Paul
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Re: Is this person one of us
« Reply #1 on: Sep 14th, 2006, 9:41pm »
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Whoever it is, Paul....hes one hell of a writer!!!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

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Re: Is this person one of us
« Reply #2 on: Sep 14th, 2006, 9:44pm »
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Nice catch Paul - the writing style is different from most of our good folks here so who knows, perhaps you will find a new person and bring them here.
 
I agree with Jonny - the writing style is sure something.  Well thought out and very well put together.
 
Let us know, okay?
 
Carol
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Re: Is this person one of us
« Reply #3 on: Sep 14th, 2006, 9:44pm »
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on Sep 14th, 2006, 9:33pm, Opus wrote:

I just found this blog
 
 
If this person is already a member here I apologize.
 
If they are not then I will try to contact them about CH.com, O2 and splitting trex shots.
 
Paul

 
Don't know if he is or not, but he's seen us.  There's a link to clusterheadaches.com in the text of his original post.  (Marked in red.)
 
Best,
 
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
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The pain they inspire
Draws in harmonica melodies
And the feathers of birds
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It all comes to light in the sheer
Debonair.
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Re: Is this person one of us
« Reply #4 on: Sep 14th, 2006, 9:46pm »
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please do, man.  
Sounds like this chap could use a little help.
I betcha it's Burt
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Re: Is this person one of us
« Reply #5 on: Sep 14th, 2006, 9:48pm »
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we have MR..... don't know about MK... ree
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Re: Is this person one of us
« Reply #6 on: Sep 15th, 2006, 2:02am »
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Hell of a blogger anyway.  
 
Interesting character and I have to hope that he's full of shit and doesn't have them.  
 
From his writing though, he does. Rats.
 
Charlie
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Re: Is this person one of us
« Reply #7 on: Sep 15th, 2006, 8:50am »
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Hope he doesn't think he's dealing with this alone.
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Re: Is this person one of us
« Reply #8 on: Sep 15th, 2006, 9:08am »
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Nov 15, 2005 - 10:00 AM  
 
Was written almost a year ago. Still can't hurt to shoot him an email.
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Carl_D
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Re: Is this person one of us
« Reply #9 on: Sep 15th, 2006, 2:48pm »
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Very interesting note here...
 
One person to respond to his blog is named 'euphoricdream'
 
This same user-name posted 4 clips from the movie "Pi" on Youtube.com. I found those 4 clips when I did a search for clusters on youtube.  
 
I am going to try and locate my youtube user info since I never really logged in to do anything and contact this 'euphoricdream' and see if he is one of us. Couldn't hurt.
 
Carl
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Re: Is this person one of us
« Reply #10 on: Sep 15th, 2006, 3:18pm »
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on Sep 15th, 2006, 2:48pm, Carl_D wrote:
Very interesting note here...
 
One person to respond to his blog is named 'euphoricdream'
 
This same user-name posted 4 clips from the movie "Pi" on Youtube.com. I found those 4 clips when I did a search for clusters on youtube.  
 
I am going to try and locate my youtube user info since I never really logged in to do anything and contact this 'euphoricdream' and see if he is one of us. Couldn't hurt.
 
Carl

 
I caught that too Carl. This other person states that they have them as well. Might want to try and get ahold of nboth of them
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Re: Is this person one of us
« Reply #11 on: Sep 15th, 2006, 6:39pm »
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I wonder if this person has already been here, and been chased off because as a newbie, he was told he didn't have CH? Sounds like he has experience with meds. But was told he didn't know what he was talking about as a newbie. Would be a good question to ask him, Paul.
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Re: Is this person one of us
« Reply #12 on: Sep 15th, 2006, 11:11pm »
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on Sep 15th, 2006, 6:39pm, purpleydog wrote:
I wonder if this person has already been here, and been chased off because as a newbie, he was told he didn't have CH? Sounds like he has experience with meds. But was told he didn't know what he was talking about as a newbie. Would be a good question to ask him, Paul.

 
I doubt he'd have given us a link if he had a beef.  Just my 2 cents.  Could be he's just not a joiner.  
 
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Re: Is this person one of us
« Reply #13 on: Sep 16th, 2006, 7:03am »
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Quote:
But was told he didn't know what he was talking about as a newbie.

 
How do you get that impression from that blog?
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Kevin_M
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Re: Is this person one of us
« Reply #14 on: Sep 16th, 2006, 7:36am »
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on Sep 15th, 2006, 6:39pm, purpleydog wrote:
I wonder if this person has already been here,

 
The first two years I came and visited were only while in cycle and a month after, then left because of other things, I got involved only gradually.  Many, many don't stay after a first visit but know where to go when needed.  After coming back a few times, I hung out.  
 
It looks much more likely he may have gotten some advice or info here possibly, but as of the time of the blog, was still unaware of the Imitrex tip.
 
Quote:
I'm going to get back to writing this week as the other treatments have made things bearable. I'm on Prednisone and Verapamil,

 
If he is episodic, he may return on his own again.
« Last Edit: Sep 16th, 2006, 9:09am by Kevin_M » IP Logged
Opus
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Re: Is this person one of us
« Reply #15 on: Sep 16th, 2006, 7:09pm »
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Thanks all,
 
I still don't see the link, but I will join and try to contact him. Even if it is only a comment to his blog, which he posted to 9/8, it might help him on his next cycle.
 
 
Paul
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Re: Is this person one of us
« Reply #16 on: Sep 20th, 2006, 4:01pm »
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on Sep 15th, 2006, 2:48pm, Carl_D wrote:
Very interesting note here...
 
One person to respond to his blog is named 'euphoricdream'
 
This same user-name posted 4 clips from the movie "Pi" on Youtube.com. I found those 4 clips when I did a search for clusters on youtube.  
 
I am going to try and locate my youtube user info since I never really logged in to do anything and contact this 'euphoricdream' and see if he is one of us. Couldn't hurt.
 
Carl

 
Mystery solved Grin
 
"euphoricdream wrote:
 
> Sure do. Episodic. I actually uploaded these videos so I could out them on clusterheadaches.com awhile back. My handle on ch.com is "dissident".
 
We know this dude  Cool
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

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Re: Is this person one of us
« Reply #17 on: Sep 20th, 2006, 4:06pm »
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on Sep 20th, 2006, 4:01pm, Jonny wrote:

 
Mystery solved Grin
 
"euphoricdream wrote:
 
> Sure do. Episodic. I actually uploaded these videos so I could out them on clusterheadaches.com awhile back. My handle on ch.com is "dissident".
 
We know this dude  Cool

 
 
Ah-Ha! I'm friends with that dude on myspace!
 
Cool Beanie
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Jonny
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Re: Is this person one of us
« Reply #18 on: Sep 20th, 2006, 4:09pm »
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I saw your post and had to go looking for this dude, Carl.....I spend hours on Youtube....LMAO Grin
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

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Re: Is this person one of us
« Reply #19 on: Sep 20th, 2006, 4:11pm »
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on Sep 20th, 2006, 4:09pm, Jonny wrote:
I saw your post and had to go looking for this dude, Carl.....I spend hours on Youtube....LMAO Grin

 
The thing is addictive. You can find just about anything on Youtube. Great for checking out old videos and band clips and... other things, lol.
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