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Topic: See what you miss - MilCon Video Clips (Read 912 times) |
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Gator
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See what you miss - MilCon Video Clips
« on: Aug 24th, 2006, 1:55pm » |
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At Milcon, between Lori Choyce's presentation and Svenn's presentation, we were entertained by ASB's daughter Teresa and the Badger Band. Everyone enjoyed it - some more than others...LOL
Chicken Dance Anyone?
http://www.ouch-us.org/gatherings/milcon06/chickendance1.wmv
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| « Last Edit: Aug 25th, 2006, 2:55pm by Gator » |
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Jonny
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Re: See what you miss...
« Reply #1 on: Aug 24th, 2006, 2:09pm » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Jonny
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Re: See what you miss...
« Reply #3 on: Aug 24th, 2006, 3:06pm » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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lionsound
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breathe
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Re: See what you miss...
« Reply #4 on: Aug 24th, 2006, 4:44pm » |
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absolutely tremendous!!!
thanks mike 
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pattik
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Re: See what you miss...
« Reply #5 on: Aug 24th, 2006, 10:49pm » |
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Thanks, Mike. 
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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Gator
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Re: See what you miss...
« Reply #6 on: Aug 24th, 2006, 11:01pm » |
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Of course it wasn't all fun and games. There was a serious side as well. Those who wished to do so participated in the Zomig NS study right there at the convention.
IMPORTANT: Anyone who participated in the Zomig NS Trial at the convention and did not get their journals turned in, please send those to Lori Choyce ASAP.
Lori Choyce (NECH) announced a new clinical trial coming out around the end of the year, studying Civimide as a preventative.:
http://www.ouch-us.org/gatherings/milcon06/choyce-winstoncivimide.wmv
Supporters are probably the most important people in ours lives. Yes we see the doctors once in a while and get this or that med, but our supporters keep us going. They advocate for us with our doctors, console us when we are feeling down and kick us in the ass when we start letting things get to us.
At the beginning of Svenn's presentation, he had us do something we should be doing every day.
http://www.ouch-us.org/gatherings/milcon06/applaudesupporters.wmv
He also challenged us to come up with ways to increase awareness of ch - see CH Contest Thread.
Dr. Sewell drove home the point that we must actively advocate for ourselves in order with this little exercise:
http://www.ouch-us.org/gatherings/milcon06/sewell-prevalenceofch.wmv
He showed us that one or two people CAN make a difference:
http://www.ouch-us.org/gatherings/milcon06/sewell-videohelps.wmv
Dr. Sewell kind of stepped in it a little bit when talking about the age of CH onset:
http://www.ouch-us.org/gatherings/milcon06/sewell-stepsinit.wmv
Dr. Sewell praised the creation of C.H.A.T.S. He stated there was no way he could have gotten a grant to have the software written, but because of the activism by OUCH members, there was a useful tool for collecting data. It has already been approved for use by the Harvard IRB and should be put into use shortly. Dr. Sewell made the following statement:
http://www.ouch-us.org/gatherings/milcon06/sewell-svenn&dan.wmv
Way to go guys!
Finally, Dr. Sewell announced that because of pilot data provided by Clusterbusters and members of the cluster headache community, he would be submitting grant paperwork for a Kudzu trial this October.
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| « Last Edit: Aug 24th, 2006, 11:05pm by Gator » |
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Charlotte
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Re: See what you miss...
« Reply #7 on: Aug 25th, 2006, 12:37am » |
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Thank you, Gator.
Charlotte
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George_J
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Re: See what you miss...
« Reply #8 on: Aug 25th, 2006, 1:27am » |
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Tremendous work by all involved, Gator. My hat's off to all of you.
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Gator
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Re: See what you miss...
« Reply #9 on: Aug 25th, 2006, 2:22am » |
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continued...
Dr Halpern spoke mainly of the issues involved in getting the psilocybin study going. He also spoke to some of the legal issues, such as seeds:
http://www.ouch-us.org/gatherings/milcon06/halpern-seedsillegal.wmv
Dr. Halpern explains that this type of research could be dangerous to a research career.
http://www.ouch-us.org/gatherings/milcon06/halpern-waryoflsd.wmv
Glad you all are enjoying a short peek into a convention. For those who have never attended, you really have to go to Richmond next year. There's more from this convention, but I'm tired and it's almost time for my nightly visit from you know who. I can feel him creeping about already. Will try to finish up tomorrow.
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Jasmyn
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Re: See what you miss...
« Reply #10 on: Aug 25th, 2006, 6:06am » |
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Thanks Mike and a Thumbs Up! to all of you for a JOB WELL DONE!
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nani
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Re: See what you miss...
« Reply #11 on: Aug 25th, 2006, 10:29am » |
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Watch Dr Sewell's face during the chicken dance... LMAO... a penny for his thoughts.
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LeeS
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Re: See what you miss...
« Reply #12 on: Aug 25th, 2006, 10:46am » |
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Thanks for the insight Mike
on Aug 25th, 2006, 10:29am, nani wrote:| Watch Dr Sewell's face during the chicken dance... LMAO... a penny for his thoughts. |
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"I'm bloody glad that Limey's not here!"
You owe me a penny nani 
-Lee
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nani
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Re: See what you miss...
« Reply #13 on: Aug 25th, 2006, 10:48am » |
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Oh...yous in twubble now, Lee.... 
LMAO
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Others may come and go, but MY power is MINE.
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Sandy_C
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Re: See what you miss - MilCon Video Clips
« Reply #15 on: Aug 25th, 2006, 5:23pm » |
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Thank you, Mike. Great videos.
Please note, on your second video of the badger band, the tuba player was facing Dr. Sewell, and telling him to take his necktie off. Dr. Sewell said thanks, but no.
And, you do realize that those of us, who shall remain nameless, who were shown doing the chicken dance, will do very nasty things (castration comes to mind) for showing us them doing something so stupid.
Sandy
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Gator
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Re: See what you miss - MilCon Video Clips
« Reply #16 on: Aug 25th, 2006, 6:15pm » |
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Saturday, after the last of the presentations, there was our banquet, awards ceremony, entertainment and auction.
The first award: The Bob Kipple Award for Service to the Cluster Headache Community:
Dialuppers, I apologize for the size of this (2.45MB). I cut out a lot of applause and extra stuff to get down this far.
http://www.ouch-us.org/gatherings/milcon06/kipaward.wmv
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Gator
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Re: See what you miss - MilCon Video Clips
« Reply #17 on: Aug 25th, 2006, 6:16pm » |
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on Aug 25th, 2006, 5:23pm, Sandy_C wrote:
And, you do realize that those of us, who shall remain nameless, who were shown doing the chicken dance, will do very nasty things (castration comes to mind) for showing us them doing something so stupid.
Sandy |
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Nothing wrong with having a little fun, Sandy. Lord knows we all deserve it.
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LeLimey
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Re: See what you miss - MilCon Video Clips
« Reply #18 on: Aug 25th, 2006, 6:25pm » |
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Who can watch this without feeling a deep loss that we're all (physically) apart again?
Who's watching it and not planning to be there next year?
Thanks Gator, having these clips to watch and remember is making me a very happy blue limey right now 
love you big guy
Helen xxx
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maffumatt
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Re: See what you miss - MilCon Video Clips
« Reply #21 on: Aug 26th, 2006, 10:51am » |
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Thanks for putting that up Mike.
Matt
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Redd
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Re: See what you miss - MilCon Video Clips
« Reply #22 on: Aug 26th, 2006, 12:01pm » |
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Some of these clips would make great fodder for AFV. Who knows...if it won, the money goes straight to OUCH!
Wouldn't that just be the cat's pajamas? I loved the one where Blake said he was tired of Blue....I'm still laughing.
Miss you guys....
Pegg
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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