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   Go and read again  PLEASE
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   Author  Topic: Go and read again  PLEASE  (Read 337 times)
The  mad viking
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Go and read again  PLEASE
« on: Aug 13th, 2006, 8:24am »
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http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=supporters;a ction=display;num=1063832550
 
 
 
I know a lot of us has been reading this before,but this is so strong and so well told and a part of cluster that many of us seems to forget.
 
Thanx to Jackie that put words to this
 
 
 
Svenn
« Last Edit: Aug 13th, 2006, 9:05am by The  mad viking » IP Logged

Always Look on The Bright Side of Life
DonnaHar
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Re: Go and read again
« Reply #1 on: Aug 13th, 2006, 8:57am »
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My gosh, Sven......how did you ever find this again?
 
I'm crying like a baby at 8:45 in the morning!
 
Jackie, that is a masterpiece that I just barely remembered reading.  This belongs in a very public place where every new found supporter can read it.....where every cluster sufferer can read it.
 
Having been on both sides of the fence, I know how important it is for both sides to have it framed and hung in a select place in their home.
 
I say we print this (with Jackies permission, of course)on a fine quality paper and add it to any order that comes into our store.
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Tim_w
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Re: Go and read again  PLEASE
« Reply #2 on: Aug 14th, 2006, 7:32am »
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Cry
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We will all go to HEAVEN we have been to HELL! -(Personal Quote) YES There is life out There (Thank you to my new suporters)
They say this will only make me stronger but I did not ask to be SUPERMAN
alchemy
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get out of my head

   
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Re: Go and read again  PLEASE
« Reply #3 on: Aug 14th, 2006, 7:44am »
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Very moving. I had not seen this before. Thanks for sharing
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BMoneeTheMoneeMan
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In remembrance of KingCazman. RIP

   
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Re: Go and read again  PLEASE
« Reply #4 on: Aug 14th, 2006, 8:48am »
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Cat showed me this about a year ago.  This is probably one of the most powerful, well written items I have ever read on this board.  
Emotional pain can hurt even more than the damn beast.
Brian
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"Fool me once, shame on, shame on you. Fool - can't get fooled again"


Think of how stupid the average person is, and then realize half the population is stupider than that.

tanner
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Re: Go and read again  PLEASE
« Reply #5 on: Aug 14th, 2006, 8:59am »
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  I had not seen this before. Jackie you have done a wonderful job of describing what I know that I am doing to Linda.
 
  I need to print this on something hard and let her beat me with it every time I get mad because she is pushing, pushing and all I want is to be left alone!
 
  How she has put up with 20 yrs. of this is beyond me and as I told her Mom the other day when she called to check on me, I thank God that I am the one with the beast and not Linda because I know that she is the stronger of the two of us.  
 
  Thanks Jackie and thanks Svenn for putting this back on the board.
        ...............Tim
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it's just my head that sucks...http://www.centerforlit.com/




E-Double
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Are we ourselves?

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Re: Go and read again  PLEASE
« Reply #6 on: Aug 14th, 2006, 9:55am »
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Super job placing it here as well.
 
It is pinned in the supporters board for all to see, however not everyone goes there.
 
It is very poignant!!!
 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
LadyLuv
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Re: Go and read again  PLEASE
« Reply #7 on: Aug 14th, 2006, 2:11pm »
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I've read this before, but each time it has the same effect on me... very moving - it touches the soul..
 
Jackie I love you dearly girlfriend...... Cry Cry Cry Cry
 
LL
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Mosaicwench
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Find joy in your day

   
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Re: Go and read again  PLEASE
« Reply #8 on: Aug 14th, 2006, 5:49pm »
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That post was one of the very first things I ever read here.
 
It's what made me create a screen name and begin posting.  
 
It's how I've lived for the last 15 years.
 
Supporters, sufferers, those in remission - we're just a big dysfunctional family drawn together by pain . . .
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The difficulties of life are intended to make us better, not bitter. ~Author Unknown
Jackie
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Go For It!!!

   
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Re: Go and read again  PLEASE
« Reply #9 on: Aug 15th, 2006, 9:30am »
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Thank you all for the kind words.
 
I'm deeply humbled by your comments.
 
When I wrote that we were in very dark days and had been for years.  Blake was suffering up to 10 hits a day... Cry  We had tried everything available and nothing was working.  But.....there is hope and we can prove it.... Smiley  He's now off ALL meds (after 15+ years) and doing the best he's ever done....only using 02 via the clustermask (thank you Ben and Hap).  This could all change tomorrow but we're thankful for every day.  Of course,  we were happy for every day back then too....just thankful to have made it through another day alive.
 
We'll all just hang tight together, keep fighting the beast and supporting each other and one day everyone will be better.....I just feel it.
 
Love to you all,
Jackie
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