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Topic: what the frk.... (Read 239 times) |
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Yorky
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learn to meditate (or just sit & do nowt)
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what the frk....
« on: Aug 10th, 2006, 8:34pm » |
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just been slapped by the thingy (no major outbrake,for nearly 2 weeks,after 6 weeks of the bastard been at full strength) iv just had this poking ,feeling.. for the past 2 weeks (not a shadow, because i know the shadow mean's red alert,at all times) just this pokey feeling that as been poking,stronger every day? well from no where, this pokey feeling,went 7/10 from nothing. that's managable at home(even out of the blue) but i was 70 mile's away from home having dinner with family and mates(coach trip, to the races,) to be honest ,i was 2 hours late for my frovatriptan(2.5mg 2 times daily,also,securon(240mg verrpml.2 times daily) but now feel like,the frovatp just built a wall....but brick by brick......he his demolshing my defence. also waiting(1 week more) for mellatonin(will this help) also, red bull and coffee,by the gallon ?as well as oxyg?
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Paul98
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Sorry Yorks. The one thing I can always count on with the beast is not to be predictable. Every single time I thought I knew what was in store for me he threw me a curve. I now travel with meds even when out of cycle. -P.
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Yorky
CH.com Alumnus New Board Hall of Famer
learn to meditate (or just sit & do nowt)
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Re: what the frk....
« Reply #2 on: Aug 10th, 2006, 8:59pm » |
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on Aug 10th, 2006, 8:53pm, Paul98 wrote:Sorry Yorks. The one thing I can always count on with the beast is not to be predictable. Every single time I thought I knew what was in store for me he threw me a curve. I now travel with meds even when out of cycle. -P. |
| hi paul,hope you have got over the bat bite? i think, i just started to get a bit cocky, 2 weeks without(made me feel like,... you lot were out of your heads)
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today is a gift.....thats why it is called the
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BMoneeTheMoneeMan
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Re: what the frk....
« Reply #3 on: Aug 10th, 2006, 9:03pm » |
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O2, definately Red Bull, probably. Other cold caffeine drinks are good too. I just drink cola. Ya gotta be a little careful with the caffeine, for me a caffeine headache always triggers a cluster. If you keep the caffeine regular you should be ok, but its a fine line. For example, if I drink a shitload of coffee or espresso and then dont drink any for a few hours, i am good for a caffeine headache. Sorry about the head, it sounds like you have a decent arsenal built up. Keep us updated. B$
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"Fool me once, shame on, shame on you. Fool - can't get fooled again"
Think of how stupid the average person is, and then realize half the population is stupider than that.
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Charlie
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Re: what the frk....
« Reply #4 on: Aug 10th, 2006, 9:57pm » |
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That suck Yorky. Give this thing a try. It sounds like a good time to use it: Dr. Wright’s Circulatory Technique: I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice. I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain. Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working. This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance. Charlie
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: what the frk....
« Reply #5 on: Aug 11th, 2006, 3:16am » |
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Wishing you PF time... Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Yorky
CH.com Alumnus New Board Hall of Famer
learn to meditate (or just sit & do nowt)
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Re: what the frk....
« Reply #6 on: Aug 11th, 2006, 4:21am » |
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cheers charlie...but i wiggle my fingers and toes,just as fast as i pace around?
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today is a gift.....thats why it is called the
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Paul98
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Hey Yorks- Only 1 more rabies shot to go! Not foaming spittle yet LOL. Folks keep asking if I've turned into a Vampire. With all the blood I have sucked out of people over the years, I could give 'Ol Drac a few pointers! I used red blood cells for my membrane transport studies and would give $10 for 50 ml from victims people. I figure I have sucked ~ 50 gal. from myself alone over the last 25 years. Hope your head is behaving. -P.
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Summerbabe
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Re: what the frk....
« Reply #8 on: Aug 11th, 2006, 8:11am » |
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Hey yorks, its me Summer, listen.. we have been going through very similiar symptoms , cycle, I have been in remission now with no shadow , or that pokey thingy you describe for almoct 3 weeks here. Where exactly are you feeling this sensation? I bet that is irritating you not knowing what the hell it is.l Yes, try the melatonin, told you long time back friend to try when I did,, worked for me , I slowly upped dosage from 3mg. to 6mg, then 9.at bedtime..and it seemed to help with sleep and attacks. However during the day make sure you have your meds...I still take verapamil and my o2 tank is in eye shot...see your doc about the pokey sensation please and keep me updated...also I drink red bull and helps me....but be careful not to drink too much , I personally get the shakes when I down two...keep me posted, All my best, Summer
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zwibbs/Scott
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Re: what the frk....
« Reply #9 on: Aug 11th, 2006, 8:35am » |
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Feel better---Have a Pain-Free weekend yorkster !!!
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George_J
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Re: what the frk....
« Reply #10 on: Aug 11th, 2006, 10:04am » |
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Hope you whack the monster back down again, Yorky. Sounds like you're on top of things. Keep us posted, eh? Best wishes for PFDAN ahead, George
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Ah! The foreigners put on such airs Wearing the tangerine suits And their harlequin eyes. The pain they inspire Draws in harmonica melodies And the feathers of birds Which flame up at their touch. It all comes to light in the sheer Debonair. (Ellen)
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Brew
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Re: what the frk....
« Reply #11 on: Aug 11th, 2006, 12:30pm » |
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O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 If you can afford it, get a little bottle that will last you 20 minutes at 10 litres per minute. Keep it with you at all times (in your car is fine). Get a regulator and a mask (clustermasx is best) and always have it ready to go. This is the best first line of defense. The earlier you get to it, the better your chances of killing it dead in its tracks. Oh, did I mention O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2 O2?
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roy21302
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Re: what the frk....
« Reply #12 on: Aug 11th, 2006, 3:37pm » |
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Yorki, sod the bloody stupid CH, did youwin any money at the races, if so mines a pint and stick of Blackpool Rock, if you lost your money----tuff Cheer Royxx PS. Carry some Meds or O2.
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