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Topic: Into The Pit Again (Read 200 times) |
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Carl_D
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Well, I've been back in cycle for two weeks now, and it oficially sucks! I went to my doc yesterday and told him I upped the Verapamil. He was gonna do the same thing, so I just beat him to the punch. He stocked me back up on Frova samples, and I got my Trex refilled again. One thing that has kind of pissed me off though is a few people keep treating me with kid gloves. I mean, give me a fucking break! I've dealt with this shit 19 years now, and after having a great remission period, I'll suck it up and deal with it. This didn't like come as some big shock - I knew it would be back. I just didn't know when.
So far though I haven't gone past 4 attacks in a 24 hour period, but did acheive a Kip 10 this morning. I just chewed up a Frova, let it set under my tongue, then proceeded to beat my head against the loveseat until it subsided, gulping air. I finally got an air conditioner yesterday, so my apartment won't reach the 100's again (though it may not get lower than 80's - too big of a place for this small btu). The main thing fucking with me is my leg, which I am walking better but it hurts like hell. I go for x rays tomorrow, then I am going to see a Orthopedist. Hopefully I'll get this under control soon. My Doc said they may want to inject a steroid into the knee, which should help it alot.
So, I am doing okay so far. My job isn't in jeopardy, as it is a job I can do even with the CH (thank God). Once my place is cool enough, I'll be getting another o2 tank. I can also fire my computer up since my apartment isn't as hot, so I can begin recording!!!!! One of the missing pieces of the puzzle has been my Jackson guitar which, I hadn't mentioned it here (and didn't want to until I got it out), but last year when things went to shit I had to pawn my gear once more, and have been using loaner gear all this time. This weekend, after much scraping, I rescued my Jackson from hock, and immediately spent a few hours greeting my baby proper. I'll have the final pieces needed to recordeed either at the end of the month or beginning of next - but then I am ready to roll with nothing to stop me. I already started working on drum tracks and am getting the ball rolling on two songs, one of which is dedicated to everyone here who battles CH. I had written the song shortly after NashCon, and it was titled "Sleepstalker (To My Sweet Serial Victim)" and is a brutal song from the beast! Musicially, this will be a journey for me, as I am mixing various styles to create this song.
So, I'm doing okay. I haven't posted because I've been keeping myself busy, and am still offline at home which - I need to get ahold of my brother and see if the computer he said would take two weeks to build for me is done 4 months later!  I'm just happy I finally got me some air, and I have my best friend/ greatest coping mechanism back. I am still scoping for a singer for Black Blizzard, as I have the band already. I may run myself pretty rugged the next few weeks, but I have alot to do, and refuse to let anything stop me (unless I die. That is pretty hard to work around). Now, if I can just get at least 2 hours sleep EVERY night, I'll be okay. This sleeping every other or every couple of nights shit gets old after awhile.
Peace,
Carl D
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JeffB
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Re: Into The Pit Again
« Reply #1 on: Aug 9th, 2006, 3:37pm » |
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Sorry to hear you're in a cycle again bro! But its good to here you're doing o.k.!
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" It's been my experience that people who have no vices have very little virtues."
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tanner
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Re: Into The Pit Again
« Reply #2 on: Aug 9th, 2006, 3:44pm » |
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Carl, I hope things start to imptove for you soon. Great news about the Git!
If you find a ladder out of this pit trhrow me a line will ya. I am now at day 5 of constant hits, shadows, hits shadows, without any pf time in between., even when I am passed out the bastard follows and haunts me. One of the friends that we went boating with this past weekend asked my wife last night if I had ever been this bad before ( and she has known me well for 6 yrs) and Linda said she thinks this may be much worse than any other stretch I have been through. I havn't had a true PF moment in 3 or 4 months now and it is taking it's toll on everyone near me. I had to call my Vocational Rehab guy at 7:00 this morning and tell him he could still come ,but he would be catching me with 9's or 10's and I would not be able to speak to him. He decided not to come. I am down to a kip 5 right now and just waiting for the next blast with no where to hide.
God I hope we all find something soon!!!!
Rock on Bro and I will keep my fingers crossed for us all..Tim
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I AM THE MASTER OF MY MIND, MY BODY, AND MY EMOTIONS...
it's just my head that sucks...http://www.centerforlit.com/
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cootie
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Re: Into The Pit Again
« Reply #3 on: Aug 9th, 2006, 3:51pm » |
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Sounds like ya got a good attitude 'bout all this so hopefully you will have a short battle......and keep everything else afloat in the meantime !! Glad ya got some meds too at hand. I have a small btu air conditioner too in the rec room and it could only keep this room to 80 when it got close to 100 outside. But the biggie is it reduced the humidity in here.......I get an attitude when I become a hottie Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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LadyLuv
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Re: Into The Pit Again
« Reply #4 on: Aug 9th, 2006, 4:03pm » |
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 Carl_D I wish that I could do more than just send you <<<<<<VIBES>>>>>>> and Prayers.
You're one hell of a friend. even when you're down, you' ve been there for me and you know that I wish you nothing but the very best.. I Pray that you will be Blessed with some much needed sleep.
I am so happy  that you were able to recoop your equipment as well as get your apartment cooled down.
You don't have to worry about the dying part Bro... #1 Only the good die young... & #2 you've gotta stick around to watch out for me .
I've been getting hit so regular the last few weeks that I'm afraid to go to sleep at night. Even though I get hit during the day, the big ones are the ones that wake me up. I been running on 3-4 hours of sleep at night. I get home from work in the evening try an rack up a couple hours.
So as you always tell me, hang it there... don't let the beast win.. and I have no doubt that you will follow your on instructions..
LadyLuv
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LeLimey
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Re: Into The Pit Again
« Reply #5 on: Aug 9th, 2006, 4:09pm » |
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Attitude is everything Carl, if you're fighting you're winning
You need any extra help in the fight you just shout okay?
Keep on keeping on
love
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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nani
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Re: Into The Pit Again
« Reply #6 on: Aug 9th, 2006, 5:11pm » |
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You got your weapons, you got your guitar...
dude...you are ready for battle. Rock on, Carl...
hugs and pf wishes, nani
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Others may come and go, but MY power is MINE.
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Yorky
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learn to meditate (or just sit & do nowt)
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Re: Into The Pit Again
« Reply #7 on: Aug 9th, 2006, 5:35pm » |
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sorry to hear about the bstrd returning.
been on a 8 week cycle.
using,frovatriptan 2.5mg(2 aday)
also using securon 240mg (2 daily)
ok for 2 week,s(was on my worst ever cycle at the time)
but feel that the thing that slowed my cycle down was(6mg sumatriptan auto injector...shot the thingy within 5 min's...but it just did not agree with me after one 1/2week,s of using it.....even though it was the lesser of the two evil's.
but sorry to say this, i dont have my shadow no more(permanant sign, his arrival will be soon)
but seem to have a poking feeling allday(left side)
see my doc o n friday as it seem's to poke a little harder each day.ps.why should we have to pay for drug's to help with pain,didn't mankind invent these thing's to help mankind
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today is a gift.....thats why it is called the
present.
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sandie99
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Re: Into The Pit Again
« Reply #8 on: Aug 9th, 2006, 6:26pm » |
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Carl,
I'm sorry that the devil is back to bug you. But it's great to see your attitude! That's the spirit to kick the beast out of your life! 
If it's hard to control when the beast appears, at least attitude towards it can be.
I wish you loads of PF days & nights with peaceful sleep,
Sanna
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| « Last Edit: Aug 9th, 2006, 6:27pm by sandie99 » |
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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George_J
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Re: Into The Pit Again
« Reply #9 on: Aug 9th, 2006, 6:40pm » |
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Hang in there, Carl. I know you know the drill by now, so I won't blow sunshine at you. It sucks. You're in for it, and you know it. It's a crappy feeling.
Just came out of cycle myself about a month and a half ago.
It's a miserable, dripping, brain-scorching b&stard of a disease. I hate it. I hate what it does to people. You ought to be able to concentrate on making music, not wrestling with this stinking thing, day after day, night after night.
Just remember you'll come out the other side, and we're rooting for you.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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