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Topic: CH Awareness Contest (Read 1249 times) |
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Gator
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CH Awareness Contest
« on: Aug 5th, 2006, 3:15pm » |
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During Svenn's presentation at the OUCH Convention this year, he issued a challenge to all members to come up with ideas to help raise awareness of CH. In order to hopefully spark some interest, OUCH will award an OUCH T-Shirt and Baseball Cap to the person with the best suggestion.
Please submit your ideas to contest@ouch-us.org no later than midnight, September 1, 2006.
The OUCH Board of Directors will serve as contest judges and announce the winner on September 15, 2006.
Mike Day
Vice President
OUCH US
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kevinpix
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Re: CH Awareness Contest
« Reply #1 on: Aug 6th, 2006, 12:09am » |
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How about a cycle-your-pain-away bike ride!! Like the MS-150 bike rides. We could get local sponsors for oranges, snacks, powerade, maybe even sodas! I work for Kroger, the company sponsors all kinds of local events. That's my two cents worth! I think just doing something is enough to get public awareness going for our condition!!!
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The mad viking
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Re: CH Awareness Contest
« Reply #2 on: Aug 7th, 2006, 3:21am » |
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Bump
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Always Look on The Bright Side of Life
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Racer1_NC
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Re: CH Awareness Contest
« Reply #3 on: Aug 7th, 2006, 12:26pm » |
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TTT
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"Everybody's Gotta Learn Sometime."
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JeffB
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Re: CH Awareness Contest
« Reply #4 on: Aug 7th, 2006, 12:28pm » |
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It's funny, the only time I've heard CH refrenced is by my Dr. and from those pepper spray for headache people.
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" It's been my experience that people who have no vices have very little virtues."
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Gator
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Re: CH Awareness Contest
« Reply #5 on: Aug 8th, 2006, 12:56am » |
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on Aug 7th, 2006, 12:28pm, JeffB wrote:| It's funny, the only time I've heard CH refrenced is by my Dr. and from those pepper spray for headache people. |
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You're lucky. A lot of clusterheads never even hear it from their doctors. They just keep getting misdiagnosed, mistreated, ignored or labeled as being drug seekers or mentally unstable.
This is part of the reason for this contest. We are reaching out to the clusterhead community for ideas on how to get the word out to other sufferers, their families and their doctors. We've pretty much seen that if we want help, we have to help ourselves.
Submit your ideas on how to raise CH awareness to contest@ouch-us.org today.
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Jonny
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Re: CH Awareness Contest
« Reply #6 on: Aug 8th, 2006, 7:26pm » |
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Royal Bump!! 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Gator
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Re: CH Awareness Contest
« Reply #7 on: Aug 11th, 2006, 7:26pm » |
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Is it possible that only two people out of over 10,000 have any ideas for increasing awareness of CH?
Come on folks. Get those brains in gear and submit your ideas to contest@ouch-us.org. This is for every person who suffers or supports someone who does or depends on someone who does.
I guess what I am trying to say is: BUMP!
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maffumatt
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Maybe someone should give the makers of Red Bull a call and let them know how many of us use thier products to help abort the pain. Perhaps that would be a marketing angle for them and free publicity for us.
Matt
Edited to add..........does it hilp migrainers too?
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| « Last Edit: Aug 11th, 2006, 7:49pm by Mattchew » |
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gore2424
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Re: CH Awareness Contest
« Reply #9 on: Aug 12th, 2006, 12:40am » |
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How about a cd or news letter with the info about Ouch website and Cluster Buster site plus Milcon convention speakers lectures. Then have an OUCH member wearing their OUCH shirt and hat to take copies
to their town and local towns neuro offices and pain clinics and hospitals. I delivered 50 letters with the convention info and the guest speakers to the ones around DavCon here. Altho I dont believe anyone went there BUT I had put my name and address and email also on letter and got 2 phone calls and 1 email. I gave the 3 people the OUCH web site and they were going to reserch it and take new info about their cluster headaches to their Dr's and all 3 were very very happy to find out that they are not alone as they thought. So I feel really proud to be part of OUCH and I know that I can help other sufferers and their loves ones make a big difference in their lives by just helping them by giving them the info that I believe all Dr's ,neuro's and pain clinnics and hospitals should have. Terry (opps ok I sent this also to email address given above )
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The mad viking
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Re: CH Awareness Contest
« Reply #10 on: Aug 13th, 2006, 2:39am » |
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TTT
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lionsound
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Re: CH Awareness Contest
« Reply #11 on: Aug 13th, 2006, 6:45am » |
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I also have two ideas that were handed to me by attendees at the convention 
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kevinpix
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Re: CH Awareness Contest
« Reply #12 on: Aug 13th, 2006, 3:20pm » |
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I know, we could have a dunking booth with me in the booth.
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Jonny
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Re: CH Awareness Contest
« Reply #13 on: Aug 13th, 2006, 3:27pm » |
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on Aug 13th, 2006, 3:20pm, kevinpix wrote:| I know, we could have a dunking booth with me in the booth. |
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Now thats using your head.....LOL 
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| « Last Edit: Aug 13th, 2006, 3:27pm by Jonny » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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kissmyglass
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Re: CH Awareness Contest
« Reply #14 on: Aug 13th, 2006, 7:03pm » |
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Next time your in a neuros office (any Doctor will be fine) who knows squat about CH, hit him over the head, while he is out cold tattoo OUCH across his forehead. Pretty soon most neuros and most of their patients will know what CH is!
Want my address where to send the shirt??
Kev
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Mosaicwench
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Re: CH Awareness Contest
« Reply #15 on: Aug 13th, 2006, 7:09pm » |
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We need a celebrity to increase awareness. A pretty talking head always draws attention.
If Oprah had CH your meds would be delivered by limousine free of charge and your research dollars would be in the gazillions.
Any one ever hear of a celebrity who has CH?
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Charlotte
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Re: CH Awareness Contest
« Reply #16 on: Aug 14th, 2006, 9:03am » |
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I would like to see a pamplet, briefly listing what ch is and isn't, with a reference paragraph on similar headaches with internet address listed for personal research.
It could be on recycled paper, even without pictures, but in easy to understand typeface with clear statements. Although it is complicated, simple presentation would be good.
Ouch has a pamphlet, and it is good, but I never saw it until I met ouchers. I'd like to see this one at Kaiser (etc), Dr offices, and clinics.
Mosaic's idea was good. Does Jennifer Lopez have ch?
Charlotte
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| « Last Edit: Aug 14th, 2006, 9:09am by Charlotte » |
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Dragnlance
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Re: CH Awareness Contest
« Reply #17 on: Aug 14th, 2006, 9:14am » |
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You know, Char has a good idea.
When I was at my neuro's office last, they had tons of pamphlets on all kinds of things, from foot fungus to MS. I even saw one on migraines too.
Put my vote in with CHar's idea
Dragn
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athos
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Re: CH Awareness Contest
« Reply #18 on: Aug 15th, 2006, 6:30am » |
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Adding to char's. Go beyond a pamphlet.
Once upon a time when I was actually involved with OUCH.
I came up with an Idea of creating a mailable poster that you could mail to Nuero's and other doc's... The idea being that people sitting in exam rooms have nothing to look at but the posters and crap on the walls... Why not a CH one. New idea just hit me with it as well... offer sponsering in order to pay for the printing and the postage.
I don't know how many times I have seen the Parkinsons Disease posters, MS, and hell imetrex has a migraine one. That way the Doc's and the patients will be educated.
--Ken
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Racer1_NC
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Re: CH Awareness Contest
« Reply #19 on: Aug 17th, 2006, 12:43am » |
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ttt
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The mad viking
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Re: CH Awareness Contest
« Reply #20 on: Aug 20th, 2006, 6:12pm » |
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ttt
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kayarr
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Re: CH Awareness Contest
« Reply #21 on: Aug 20th, 2006, 6:46pm » |
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I just wrote to the Oprah show...who knows????
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andrewjb
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Re: CH Awareness Contest
« Reply #22 on: Aug 20th, 2006, 7:35pm » |
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putting my thinking cap on. .bump.
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Gator
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Re: CH Awareness Contest
« Reply #23 on: Aug 24th, 2006, 1:34pm » |
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Carl_D
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Re: CH Awareness Contest
« Reply #24 on: Aug 24th, 2006, 1:48pm » |
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Every gig I have ever used this guitar at since putting the sticker on it, someone always asks me about it and I tell them what CH is.
Spreading awareness one stage at a time. 
Carl D
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