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Topic: People just don't get it !! (Read 323 times) |
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unsolved1
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I got another one of those comments.
You know ... One of those " ... Why don't you just take an aspirin an lie down..." comments. "Quit taking all the meds and live a little bit".
WTF am I supposed to do ? Start explaining this whole CH thing to someone who has NOT A CLUE !! Guess I'll just send them the link to the 'letter to collegues & friends" !! Thanks again CH.com ! 
http://www.ouch-us.org/chgeneral/Cluster%20Headache%20Syndrome.pdf
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ClusterChuck
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Re: People just don't get it !!
« Reply #1 on: Aug 1st, 2006, 2:20pm » |
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Maybe a simple comment like: "Once you get your head outta your ass, and did some research, you wouldn't make such assinine comments about something that you know nothing about."
And if that fails, maybe a 12 guage shotgun up his ass might get his attention.
Chuck
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Thomas Fuller
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Superpain
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Re: People just don't get it !!
« Reply #2 on: Aug 1st, 2006, 2:30pm » |
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Wouldn't it be great if you could touch their head and transmit what it feels like!? 
We'd be declared "weapons"....
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Chris
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ExplodingEyeBall
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Re: People just don't get it !!
« Reply #3 on: Aug 1st, 2006, 3:04pm » |
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What is unfortunate is that my Aunt gets CH and swears up and down that regular visits to a chiropracter make them go away. ................ And now my wife is trying to talk me into regular chiro visits.
They just don't understand that they run in cycles (unless chronic) and that her cycle eventually ends and the chiro gets credit for it.
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Just poke out my eye and get it over with!!!
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chewy
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Re: People just don't get it !!
« Reply #4 on: Aug 1st, 2006, 3:06pm » |
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Quote:| We'd be declared "weapons".... |
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In Massachusetts I would I need a license to carry myself.
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Ghost
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Re: People just don't get it !!
« Reply #5 on: Aug 1st, 2006, 3:10pm » |
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Thanks for the visual Don!  
I am blind now!
Mike
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Illigitimus Non Tatum Carborundum
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kevinpix
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Re: People just don't get it !!
« Reply #6 on: Aug 1st, 2006, 3:30pm » |
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Here in Texas, we are all Packin"!!!!! Dead Men Tell No Tales!!
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Mosaicwench
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Re: People just don't get it !!
« Reply #7 on: Aug 1st, 2006, 4:00pm » |
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In Wisconsin we are not allowed concealed carry so I guess you guys could never wear hats . . . .
Open carry is okay but it attracts a lot of attention . . . .
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The difficulties of life are intended to make us better, not bitter. ~Author Unknown
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cootie
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Re: People just don't get it !!
« Reply #8 on: Aug 1st, 2006, 4:13pm » |
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It's not jus CH'rs that get those comments......I get so mad sumtimes I swear my eyes turn red and steam comes out my ears but I do fight the little horns back on topa my head from showin up. I have chronic back/neck issues......not tryin to compare tho.......it's never ending tho and I am SO FREAKIN TIRED of hearin people talk about pain issues and how 'they don't take any meds' cuz they don't need drugs and when they feel twinges of pain they get up and move around and they don't let it get to them or have to take anything. Oh and they also 'don't run to the doctor everytime sumthin hurts. Arghhhhhhh.....I want to kick them in the seata there pants Pam
I 'try' to jus stay silent by thinking of ways to hurt them bad enuff they'd beg for meds and RUN to the docs office......snicker snicker. (evil grin) 
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| « Last Edit: Aug 1st, 2006, 4:19pm by cootie » |
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Ghost
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Re: People just don't get it !!
« Reply #9 on: Aug 1st, 2006, 4:23pm » |
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The sad part they can read or watch or anything you want them to do but unless they really care ore experience it 1st hand they cant truly understand what this feels like. I too have on many occasion wanted to do permenant damage to some that have made stupid comments. Before coming here I did a few times. Thanks to Many here I have been able to stop and try to ignore those that cannot really understand.....
Mike
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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maffumatt
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Re: People just don't get it !!
« Reply #10 on: Aug 1st, 2006, 5:04pm » |
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People don't get it and they never will.
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LadyLuv
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Re: People just don't get it !!
« Reply #11 on: Aug 1st, 2006, 6:42pm » |
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on Aug 1st, 2006, 5:04pm, maffumatt wrote:| People don't get it and they never will. |
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You've Got That Right...
LL
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Charlotte
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Re: People just don't get it !!
« Reply #12 on: Aug 1st, 2006, 6:50pm » |
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I'm grateful for here because we get it. It doesn't matter as much now who doesn't get it.
Charlotte
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George_J
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Re: People just don't get it !!
« Reply #13 on: Aug 2nd, 2006, 2:31am » |
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You're right. People in general just don't get it. I don't think they CAN get it. I can't count the number of times I've told people--"well, imagine this"--in an effort to explain.
It's pretty fruitless stuff. How can they possibly get it? They have nothing to compare it to. Even WE have nothing to compare it to. And we can't show it to them, or make them feel it. (Not that I wouldn't like to demonstrate what ten seconds of a hit feels like sometimes. Just ten seconds--I'm pretty sure the pooh-poohers would moisten their shorts, down both legs.)
On the other hand, I got into a long conversation with a nurse practitioner at a social gathering the other day, and he seemed genuinely interested, seemed very open-minded, and asked some very intelligent questions. I referred him here, and to the OUCH website. I guess there's hope that he, at least, will possibly now have some measure of empathy, understanding, and openness that others lack if he ever runs into another clusterhead. Of course, I was the first one he'd ever met, and who knows when he'll ever meet another?
Sorry, I'm just meandering here.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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sandie99
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Re: People just don't get it !!
« Reply #14 on: Aug 2nd, 2006, 2:41am » |
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That reminds me... I need to translate the wonderful O.U.C.H letter to Finnish. You'd be surprised how many people who fluently read, write and speak English suddenly do not understand a word when you give them some CH stuff to read... 
Well, once I've translated that letter, they cannot tell me that "I know nothing about it" - CHit anymore... 
After that it's just ignorance. Which, I must admit, is too common...
Sanna
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| « Last Edit: Aug 2nd, 2006, 2:42am by sandie99 » |
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unsolved1
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Re: People just don't get it !!
« Reply #15 on: Aug 2nd, 2006, 2:47am » |
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After I sent her that link, she said she read it ... then she asked if I ever tried altering my diet. 
Did she read it or not ?
UNsolved
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TxBasslady
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Re: People just don't get it !!
« Reply #16 on: Aug 2nd, 2006, 2:58am » |
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on Aug 2nd, 2006, 2:47am, unsolved1 wrote:After I sent her that link, she said she read it ... then she asked if I ever tried altering my diet.
Did she read it or not ? |
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LMAO Good grief...Michael
I would have to say no 
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
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maffumatt
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Re: People just don't get it !!
« Reply #17 on: Aug 2nd, 2006, 7:46am » |
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I've had CH for years and before I was diagnosed I ran across this site and read the homepage. I thought to myself "those poor bastards" then clicked the back button to look at the next link. I have CH and even I didn't get it. How can you expect someone else to?
Matt
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Charlotte
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Re: People just don't get it !!
« Reply #18 on: Aug 2nd, 2006, 8:23am » |
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I'm kind of with you here, Matt. After all these decades, I believe I'm still in denial.
It seems like 've learned more in the last 5 or 6 months from the site, gotten more help on how to live with this, than all prior experiences combined.
Charlotte
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| « Last Edit: Aug 2nd, 2006, 8:27am by Charlotte » |
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Summerbabe
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Re: People just don't get it !!
« Reply #19 on: Aug 2nd, 2006, 9:15am » |
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This is why we have each other because they dont get it. I am thankful for all of you. Dont know what I would've done not having anyone to talk to and understand me. I also hate it when I get the comment after question, meaning " How are your headaches doing?" I reply" they are a debilitating nightmare" and then the reply back was " STILL, you STILL have them, thats not normal!" GRRRRRRRRRRRR, makes me wanna smack the shit outta em!!!! GRRRRRRRRRRR !!! Well you have us...hang on friend...we are here...Sending vibes...All my best, Summer..
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| « Last Edit: Aug 2nd, 2006, 9:16am by Summerbabe » |
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Charlotte
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Re: People just don't get it !!
« Reply #20 on: Aug 2nd, 2006, 9:25am » |
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No, she defintiely did not read the letter.
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Mattrf
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Re: People just don't get it !!
« Reply #21 on: Aug 2nd, 2006, 10:30am » |
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No they don’t, and it is just so frustrating, I have cut off all ties with my dad and my sister for not understanding and giving me crap and guilt for not doing what they want me to do. It is very sad, my sister may finally get it but it is to late, I will not pick up the phone if it is her and have told her I will call her when I am ready but to not expect it for some time. She was once my friend along with being my sister but know she is just another casualty of the beast.
And yes I have sent her the co-worker letter and links to this web site and everything else I could think of to get her and my dad to understand to no avail.
Matt
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There is no stronger a person then one who can deal with brain pain and still function.
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BMoneeTheMoneeMan
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Re: People just don't get it !!
« Reply #22 on: Aug 2nd, 2006, 2:46pm » |
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Aspirin!!! FUCK, why didnt we think of that?!?!
Other people cant understand. Hell, when I get a day or 2 break, I dont even understand. This pain is friggin crazy. The beast in general is so horrific most people will never have a clue.
Aspirin, huh?
Ever try excedrin? 
B$
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"Fool me once, shame on, shame on you. Fool - can't get fooled again"
Think of how stupid the average person is, and then realize half the population is stupider than that.
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