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Topic: Not A Happy Camper Right Now! (Read 265 times) |
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Carl_D
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With everything else going on right now, I wasn't ready for this. I thought I'd at least be free until maybe fall.
Last Tuesday, had a 'silent attack' with the CH symptoms and no pain. Thursday evening had a major attack hit me within minutes of a hard shadow. Two attacks again Friday, Two Saturday, one yesterday and two this morning. It looks like the beast is returning for more fun and I am pretty fucking pissed about it! I just started getting my life back and refuse to let this stop me, but I also know that it can sometimes get out of control and if that happens...
In the immortal words of Otis Driftwood:
SHIT! FUCK! SHIT! FUCK! SHIT! FUCK! SHIT! FUCK!
I had really hoped that August would bring the celebration of 6 months CH free after being chronic 8 years, but it looks like that bubble has bursted. I have too much going on right now to let this interfere, so you might say I am in for a battle. Just hoping the Frova will keep the beast at bay and that upping the Verapamil will knock the fucker for a loop.
IT'S ON!!! 
Carl D
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sandie99
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Re: Not A Happy Camper Right Now!
« Reply #1 on: Jul 31st, 2006, 12:33pm » |
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Lots of vibes are coming your way, Carl. 
It's good that you're getting prepared for the worse...but DON'T give up the hope yet.
Summertime and salty food have brought little visits from the beast for me, but they also ended just like that. I hope that the devil is just reminding you that it still exists, but then leaves you alone. 
Best wishes & PF times,
Sanna
P.S. has Red Bull helped you in the past...?
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| « Last Edit: Jul 31st, 2006, 12:34pm by sandie99 » |
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Carl_D
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Re: Not A Happy Camper Right Now!
« Reply #2 on: Jul 31st, 2006, 12:36pm » |
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on Jul 31st, 2006, 12:33pm, sandie99 wrote:
P.S. has Red Bull helped you in the past...? |
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I haven't tried Red Bull in the past, but I see some in my future. I was addicted to Mountain Dew, but after learning about Brominated Vegetable Oil (an ingredient in some sodas and in some flavors of Gatorade), I refuse to drink the stuff. Good thing I cut way down on soda months ago.
I am gonna pick up a couple of cans of Red Bull later after work.
Thanks Sanna,
Carl D
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JeffB
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Re: Not A Happy Camper Right Now!
« Reply #3 on: Jul 31st, 2006, 12:59pm » |
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Good vibes your way bro! Red Bull will give you wings and hopefully free you of pain!
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" It's been my experience that people who have no vices have very little virtues."
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sandie99
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Re: Not A Happy Camper Right Now!
« Reply #4 on: Jul 31st, 2006, 12:59pm » |
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Carl,
I do hope that RB works for you, too!
It has made my life a lot easier.
Best wishes & PFdays,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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cootie
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Re: Not A Happy Camper Right Now!
« Reply #5 on: Jul 31st, 2006, 1:01pm » |
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Seems to be how it works for sum at times ech.....just as ya start to get sumthing 'goin on' ya like doin or new job yer settleing into 'WHAM BAM no thank you man' this shit starts up again to throw a real monkey wrench into things. Why can't things just keep rollin along smoothly.......monkeys need to stop throwin tools Pam
Good luck and hope ya kick the shit outa yer head.......
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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maffumatt
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Re: Not A Happy Camper Right Now!
« Reply #6 on: Jul 31st, 2006, 1:05pm » |
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Fight man Fight!!!!!
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Mattrf
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Re: Not A Happy Camper Right Now!
« Reply #7 on: Jul 31st, 2006, 1:24pm » |
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Sorry to hear he is back Carl, keep strong and don’t let the fucker win.
PF vibes coming your way, hang tough.
Matt
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There is no stronger a person then one who can deal with brain pain and still function.
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TxBasslady
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Re: Not A Happy Camper Right Now!
« Reply #8 on: Jul 31st, 2006, 1:32pm » |
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Lots of vibes to 'ya, Carl
Hang in there.... 
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
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tanner
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Re: Not A Happy Camper Right Now!
« Reply #9 on: Jul 31st, 2006, 1:52pm » |
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Carl, I am really sorry that this is happening to you period, but right now really sucks.
I had been using Red Bull in the am with O2 for the little hits but someone on the newbie board pointed out a conflict between the Taurine and Verap, so before you push the Verap too high you might want to check it out. I think Flo hasa whole study on it but I have no idea what I have done with the link.
Anyone?
Hang tough and kick the bastard back into remission! I wann hear you jam!......Tim
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I AM THE MASTER OF MY MIND, MY BODY, AND MY EMOTIONS...
it's just my head that sucks...http://www.centerforlit.com/
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Brew
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Re: Not A Happy Camper Right Now!
« Reply #10 on: Jul 31st, 2006, 2:09pm » |
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Carl,
Can I be pissed with you? My current cycle started in mid-January. Longest I've ever had in 15 years since the beast picked me as one of its chosen ones. I tried tapering off the lithium and verapamil in preparation for starting back on methysergide again, but the goddamned pharmacist who supposed to make the stuff has yet to call me back.
On second thought, let's not get mad - let's get even. Let's put this fucking son of a bitch back under the rock where he belongs (I say "he" because no woman I know would show this little compassion - well, except that devil-spawn bitch who drowned her kids in TX).
Let's do it - let's get even. You fight with the verapamil or the Red Bull, I'll wage my battle with methysergide, and we'll kick this bastard's ass together. Whaddya say?
Bill
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Carl_D
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Re: Not A Happy Camper Right Now!
« Reply #11 on: Jul 31st, 2006, 2:15pm » |
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on Jul 31st, 2006, 1:05pm, maffumatt wrote:
on Jul 31st, 2006, 2:09pm, brewcrew wrote:Carl,
Can I be pissed with you? My current cycle started in mid-January. Longest I've ever had in 15 years since the beast picked me as one of its chosen ones. I tried tapering off the lithium and verapamil in preparation for starting back on methysergide again, but the goddamned pharmacist who supposed to make the stuff has yet to call me back.
On second thought, let's not get mad - let's get even. Let's put this fucking son of a bitch back under the rock where he belongs (I say "he" because no woman I know would show this little compassion - well, except that devil-spawn bitch who drowned her kids in TX).
Let's do it - let's get even. You fight with the verapamil or the Red Bull, I'll wage my battle with methysergide, and we'll kick this bastard's ass together. Whaddya say?
Bill |
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I'm with ya Bill. Like I said, It's on like Donkey Kong! I keep chanting to the heavy shadowing in my head, "I will end you! I will end you! I will end you!"
Time to jam some fight anthems like "Best of You" from Foo Fighters or "Die By My Hand" from Coroner. Might even be time to whip out the ole Slayer - Reign In Blood disc.
Thanks for the vibes y'all.
Peace,
Carl D
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alchemy
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Re: Not A Happy Camper Right Now!
« Reply #12 on: Jul 31st, 2006, 2:54pm » |
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Hang in there Carl, fight it out!!!!!!!!!!!
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LadyLuv
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Re: Not A Happy Camper Right Now!
« Reply #13 on: Jul 31st, 2006, 3:36pm » |
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Okay... CD
HANG in there <<<<<<<<<<<<VIBES>>>>>>>>>>>>>>
You R one of my strongest supporters Carl_D and I want you to know that I am send healing PF vibes your way...
See, here's the way it goes Bro... U R the shoulder -- I R the leaner ... So get better real soon ..
Much Love & Lots of Prayers
LadyLuv
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Carl_D
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Re: Not A Happy Camper Right Now!
« Reply #14 on: Jul 31st, 2006, 4:36pm » |
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Thanks LadyLuv.
I'm pretty bummed. I just got hit around 2:00 here at work and it wasn't fun. Luckily I had already made my client's lunch and everything when I got hit, so I rode some of it out in the living room until his brother came in, then I bailed to the bathroom to ride it out. After it was over I didn't have to say anything to my client. He could tell I had just got hit. I then explained to his brother what happened so he understood what he seen. Just took my limit on Frova, so if I get hit again... I'm screwed. I keep telling myself, only 3 more hours to go and I am out of here. I'll be staying at my brothers house since the temp is 103 and heat indexes are up to 117 in some parts. With the storms we've had and the heat, we have massive high pressure hanging over us and I am wondering if this is what is triggering a cycle.
Whatever it is, I'll deal with it. I have no choice.
Peace,
Carl
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Sandy_C
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Re: Not A Happy Camper Right Now!
« Reply #15 on: Jul 31st, 2006, 4:49pm » |
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Aw! Carl, I'm sorry he/she/it is back! Fight the fight and hang in there. Remember, everybody here is fighting with you.
Sandy
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LeLimey
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Re: Not A Happy Camper Right Now!
« Reply #16 on: Jul 31st, 2006, 7:42pm » |
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Red Bull has helped me alot Carl, I hope it does for you too
HUGS
Helen
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Charlie
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Re: Not A Happy Camper Right Now!
« Reply #17 on: Jul 31st, 2006, 7:49pm » |
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Damn thing likes to sneak up on us but I like your idea of kicking him in the ass.
Hang on Carl.
Charlie
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AussieBrian
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Re: Not A Happy Camper Right Now!
« Reply #18 on: Jul 31st, 2006, 7:50pm » |
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on Jul 31st, 2006, 4:36pm, Carl_D wrote:| Whatever it is, I'll deal with it. I have no choice. |
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Spoken like a true trooper.
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Summerbabe
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Re: Not A Happy Camper Right Now!
« Reply #19 on: Jul 31st, 2006, 11:36pm » |
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 Aww honey, sorry for the pain, try upping the verapamil, I did and it worked..you are in my thoughts..I know how frustrated you must be right now, and it isnt fair but when you shine through this haze and you will..we will be cheering you on. Sorry about your hits man, that sucks getting hit that much. Scream if ya gotta. I have and scared my dogs, they looked at me like " what the hell is your problem..???" ...when life pulls at your strings , tie a knot , hang on and SWING....Wishing you PFDAN, Summer 
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George_J
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Re: Not A Happy Camper Right Now!
« Reply #20 on: Aug 1st, 2006, 3:37am » |
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on Jul 31st, 2006, 12:27pm, Carl_D wrote:
In the immortal words of Otis Driftwood:
SHIT! FUCK! SHIT! FUCK! SHIT! FUCK! SHIT! FUCK! |
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That's worth repeating.
on Jul 31st, 2006, 12:27pm, Carl_D wrote:
In the immortal words of Otis Driftwood:
SHIT! FUCK! SHIT! FUCK! SHIT! FUCK! SHIT! FUCK! |
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I like your attitude. It's a survivor's attitude. A fighter's attitude.
Get the sumbitch on the run, Carl.
Best wishes. I'd shoot it for you if I could.
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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E-Double
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Re: Not A Happy Camper Right Now!
« Reply #21 on: Aug 1st, 2006, 4:37am » |
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on Jul 31st, 2006, 7:50pm, AussieBrian wrote:
Spoken like a true trooper.
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u rock.......stay +
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I can't believe that I have to bang my
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But the blows they have just a little more
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Gonna take a breath and try again.
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Jasmyn
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Re: Not A Happy Camper Right Now!
« Reply #22 on: Aug 1st, 2006, 6:39am » |
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Hey Carl, you hang tough there Buddy!
For Taurine check this out:
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action= display;num=1146013283
You know there has been a lot of progress with alternative treatments, it may be worth it to look into that.
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Jazz
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