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Topic: how do you balance your lives? (Read 407 times) |
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Yorky
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how do you balance your lives?
« on: Jul 19th, 2006, 6:09pm » |
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i.e WORK,FAMILY,SLEEP(OR LACK OF,DISRUPTION,BILLS,EVERY DAY PROBLEMS,STRESS(will the beast come),mortgage.....etc
personally im a builder (not good falling asleep on scaffolding,but need to work(not done much of late)
stress or panic (will the chemist have my medic),
seems to turn my shadow into ammediate attack
JUST GOT ME WONDERING HOW YOU FANTASTIC LOT MANAGE YOUR LIFESTYLES 
PS. PLEASE LET ME KNOW /AND GOOD LUCK
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Jonny
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Re: how do you balance your lives?
« Reply #1 on: Jul 19th, 2006, 6:10pm » |
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One day at a time.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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JeffB
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Re: how do you balance your lives?
« Reply #2 on: Jul 19th, 2006, 6:17pm » |
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Take it as it comes, deal with whatever pops up and move on.
Oh yeah, I've been known to drink alot, when that happens I have absolutely no balance and usually fall over. 
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" It's been my experience that people who have no vices have very little virtues."
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NONI
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Re: how do you balance your lives?
« Reply #3 on: Jul 19th, 2006, 6:22pm » |
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Drink
If only I could forgetting what that is haha!!!
Thia is only my second cycle and its my first diagnosed cycle,,i have missed a week and a half of work,,seems to be coming out of cycle though hits are not as hard at night now and last about 30-45 min..better than the 2-3 hrs from a week or so ago...but hopefully now can catch up on sleep lol
Noni
We never know what tomorrow will bring........
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Jonny
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Re: how do you balance your lives?
« Reply #4 on: Jul 19th, 2006, 6:24pm » |
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on Jul 19th, 2006, 6:22pm, NONI wrote:
We never know what tomorrow will bring........ |
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Excelent quote!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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NONI
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Re: how do you balance your lives?
« Reply #5 on: Jul 19th, 2006, 6:27pm » |
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Hey Johnny How about
What a pain in the .................................EYE!!!!!!
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Richr8
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Re: how do you balance your lives?
« Reply #6 on: Jul 19th, 2006, 6:32pm » |
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Easy. Six months to the beast, and six not worrying about it much. Actually, only three to four to the beast, however, I'm working real hard on a faster recovery period and figuring out a way to function normally in cycle. Many here have demonstraed that ability, so I'm gonna have a go at it. Of course, that's easy to say out of cycle.. 
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Yorky
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Re: how do you balance your lives?
« Reply #7 on: Jul 19th, 2006, 6:33pm » |
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on Jul 19th, 2006, 6:17pm, JeffB wrote:Take it as it comes, deal with whatever pops up and move on.
Oh yeah, I've been known to drink alot, when that happens I have absolutely no balance and usually fall over. |
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SOMETIMES GO FOR GOLD WITH BEAR TO TRY TO SLEEP(NOT MUCH OF A DRINKER)BUT BY 3 AM JUST FEEL SOBER ALSO ON NITRAZIPAM 5MG 4 ANITE JUST FEEL MORE AWAKE ....THEN WORK....IN ABAD 5 WEEK CYCLE
YORKY....... GOOD LUCK
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Jonny
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Re: how do you balance your lives?
« Reply #8 on: Jul 19th, 2006, 6:55pm » |
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on Jul 19th, 2006, 6:22pm, NONI wrote:
We never know what tomorrow will bring........ |
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Noni,
The reason I say it was an excelent quote is because I was chronic for 30 years, and 13 months ago they just stopped cold. I have had only one HA in 13 months.
Can I use your quote under my flag?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Richr8
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It's all about today...
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Re: how do you balance your lives?
« Reply #9 on: Jul 19th, 2006, 6:58pm » |
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on Jul 19th, 2006, 6:55pm, Jonny wrote:
Can I use your quote under my flag?
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It's been under mine from day one. Don't mind sharing though.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Jonny
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Re: how do you balance your lives?
« Reply #10 on: Jul 19th, 2006, 7:00pm » |
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on Jul 19th, 2006, 6:58pm, Richr8 wrote:
It's been under mine from day one. Don't mind sharing though.
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LMMFAO, Dude!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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JeffB
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Re: how do you balance your lives?
« Reply #11 on: Jul 19th, 2006, 7:01pm » |
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I don't even think about beer or anything like that during a cycle. As a matter of fact history says I should in one right now and since I'm not and the kids with the ex, I'm at the Elephant Bar most nights. It's not easy being single.
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" It's been my experience that people who have no vices have very little virtues."
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Yorky
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Re: how do you balance your lives?
« Reply #12 on: Jul 19th, 2006, 7:03pm » |
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on Jul 19th, 2006, 6:55pm, Jonny wrote:
Noni,
The reason I say it was an excelent quote is because I was chronic for 30 years, and 13 months ago they just stopped cold. I have had only one HA in 13 months.
Can I use your quote under my flag?
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OF COARSE YOU CAN DEAR YORKY
GOOD LUCK
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today is a gift.....thats why it is called the
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Charlie
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Re: how do you balance your lives?
« Reply #13 on: Jul 19th, 2006, 9:28pm » |
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Well:
When I was getting hit, I didn't balance it but then I didn't have a traditional family. I was doing lots of antique and collectible shows at the time such as Brimfield, MA even. The thing is that my partner was a retired teacher of nursing at a NYS hospital and knew a lot about clusters. It made things a lot easier.
I miss Dave. What an incredible slob he was too. 
Charlie
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Yorky
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Re: how do you balance your lives?
« Reply #14 on: Jul 22nd, 2006, 5:39pm » |
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on Jul 19th, 2006, 9:28pm, Charlie wrote:Well:
When I was getting hit, I didn't balance it but then I didn't have a traditional family. I was doing lots of antique and collectible shows at the time such as Brimfield, MA even. The thing is that my partner was a retired teacher of nursing at a NYS hospital and knew a lot about clusters. It made things a lot easier.
I miss Dave. What an incredible slob he was too.
Charlie |
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wat do you mean a slob(lazy,....or just a contented man stuck in his ways
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Charlie
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Re: how do you balance your lives?
« Reply #15 on: Jul 22nd, 2006, 11:15pm » |
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He was Oscar Madison.
Here is a guy who taught mostly psychiatric nursing before he retired (What an idiot. If he hung on back then, he could have had a tier 1 NYS pension....)
Anyway, hygiene wasn't the problem but he was a clutterer and never cleaned up after himself. The first thing he said to me as I entered his 7 room apartment, not far from Utica Club Brewery, was: "Don't step on the paintings." He had art, glass, paper, guns, china, and you-name-it piled all over the place..... He did have black water in the kitchen sink until I moved in. 
Seeing this was a revelation to a kid that grew up in a Swedish household. It was fun. I wouldn't have missed that experience for the world. I met some weird and frankly dangerous types thanks to whatever criminal activity Dave was engaged in. Too bad he died at 62. What a loss. He was a walking encyclopedia.
Charlie
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TxBasslady
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Re: how do you balance your lives?
« Reply #16 on: Jul 22nd, 2006, 11:19pm » |
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on Jul 19th, 2006, 6:10pm, Jonny wrote:
This is how it is for me. My CH is random, no kind of cycle. I stay prepared.
I really try to never worry about the next. If I think about it, it'll drive me nuts.
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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George_J
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Re: how do you balance your lives?
« Reply #17 on: Jul 23rd, 2006, 12:39am » |
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My cycle has always been as predictable as sunrise and sunset. I plan for when it's coming, withdraw from my responsibilities as much as I can until it's over, then extend my psychological pseudopods out into the world again.
Life's for living--CH is only a part of it, and I control it. I don't allow it to control me.
Bit by bit, as others have said, a day at a time....
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Yorky
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Re: how do you balance your lives?
« Reply #18 on: Jul 23rd, 2006, 2:56am » |
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on Jul 23rd, 2006, 12:39am, georgej wrote:My cycle has always been as predictable as sunrise and sunset. I plan for when it's coming, withdraw from my responsibilities as much as I can until it's over, then extend my psychological pseudopods out into the world again.
Life's for living--CH is only a part of it, and I control it. I don't allow it to control me.
Bit by bit, as others have said, a day at a time....
Best,
George |
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phew///george(my middle name)
but wat the frk is a pseudopod?
my iq is equivallent to a goldfish
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ClusterChuck
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Re: how do you balance your lives?
« Reply #19 on: Jul 23rd, 2006, 3:44am » |
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Ok, maybe because I am chronic, but I REFUSE to let the beast control my life!!! I DON'T back away from things, just because I know I am going to get hit! I REFUSE to give him that sort of power over me!
I try to ignore the hits, but BETWEEN them!! WooHoo!!! I try to live life to the fullest!!! I work hard, I play hard, I party hard!!! SCREW the beast!!! He WILL NOT control my life!
Yes, I get hit a lot, and get hit hard, but DAMNIT, I control my life!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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wildhaus
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Re: how do you balance your lives?
« Reply #20 on: Jul 23rd, 2006, 4:14am » |
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how do you balance your lives - I dont. it is balanced.....
ClusterChuck Posted
I try to live life to the fullest!!!
I control my life!
can not put it better........
Michael
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George_J
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Re: how do you balance your lives?
« Reply #21 on: Jul 23rd, 2006, 8:36am » |
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on Jul 23rd, 2006, 2:56am, Yorky wrote:
phew///george(my middle name)
but wat the frk is a pseudopod? |
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Great choice your parents made in choosing your middle name!
Pseudopod="False Foot". An amoeba moves around or extends into other territory by blorping part of itself one way or another.
Just playing around with metaphors.....my kid says I do that too much.
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Yorky
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learn to meditate (or just sit & do nowt)
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Re: how do you balance your lives?
« Reply #22 on: Jul 23rd, 2006, 12:00pm » |
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on Jul 23rd, 2006, 8:36am, georgej wrote:
Great choice your parents made in choosing your middle name!
Pseudopod="False Foot". An amoeba moves around or extends into other territory by blorping part of itself one way or another.
Just playing around with metaphors.....my kid says I do that too much.
George |
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now i am lost?????hope your kid understands you(amoeba,blorping,metaphors)
uneducated over the pond person?
hope everything works out for you(and your cleva kid)
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starlight
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Re: how do you balance your lives?
« Reply #23 on: Jul 23rd, 2006, 12:23pm » |
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Yorky,
I hope these headaches leave you soon. Frankly, I was not much good at "balancing" my life during these cycles. I had a lot of untreated bad cycles...as they became worse I did lose some jobs, etc. But I have also accomplished a lot in my life...graduated cum laude from college even with yearly cycles (during the school year)--I had to write my papers and read my books and go to class on no sleep and I mean no sleep--I consider that an accomplishment. Look at what you have and can and do accomplish (rather than what you haven't) even if it is "just" finding some enjoyment the next day (I remember being in the middle of those hard freaking hits--it sucks) that is an accomplishment when these things are full-blast. Basically in these cycles sometimes you win some and come out on top and sometimes you don't--I hate to simplify it like that but I have had these for 18 years--this is the first year I have had helpful treatment (melatonin)--and that is how it has been for me. Keep trying to find efficient treatment--I had given up hope long ago--now suddenly I found something that so far is helping me to reduce hits and intensity. You have to be tough to get through these--these headaches give you no choice. And please tell me that you have a good neurologist Yorky. I hope you get relief soon. Take care Yorky.
Starlight
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Yorky
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Re: how do you balance your lives?
« Reply #24 on: Jul 23rd, 2006, 12:37pm » |
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on Jul 23rd, 2006, 12:23pm, starlight wrote:Yorky,
I hope these headaches leave you soon. Frankly, I was not much good at "balancing" my life during these cycles. I had a lot of untreated bad cycles...as they became worse I did lose some jobs, etc. But I have also accomplished a lot in my life...graduated cum laude from college even with yearly cycles (during the school year)--I had to write my papers and read my books and go to class on no sleep and I mean no sleep--I consider that an accomplishment. Look at what you have and can and do accomplish (rather than what you haven't) even if it is "just" finding some enjoyment the next day (I remember being in the middle of those hard freaking hits--it sucks) that is an accomplishment when these things are full-blast. Basically in these cycles sometimes you win some and come out on top and sometimes you don't--I hate to simplify it like that but I have had these for 18 years--this is the first year I have had helpful treatment (melatonin)--and that is how it has been for me. Keep trying to find efficient treatment--I had given up hope long ago--now suddenly I found something that so far is helping me to reduce hits and intensity. You have to be tough to get through these--these headaches give you no choice. And please tell me that you have a good neurologist Yorky. I hope you get relief soon. Take care Yorky.
Starlight |
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saw neuro 2/3 years ago but were lucking in the lines of blood clots /facail nerve/retana etc .....now waiting for letter from neuro (new patient ha ha)6 weeks still no letter......but doc asked me to educate him/hed neva had a clusty.
took the letter(the one to employees...(cheers roy21302)
now gives me wat i ask for this weeks drug is going to be ??i would like to try ...frovatriptan
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