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Topic: Could clusters be a blessing instead of a curse? (Read 902 times) |
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HappyElaine
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Could clusters be a blessing instead of a curse?
« on: Jul 10th, 2006, 12:06pm » |
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If I never had clusters, I would not know what real pain was.
I would not be able to connect so well with people who have other types of pain.
If I never had clusters, I might not enjoy life as much as I do now. I might take my Pain free time for granite.
If I did not have clusters my family would not be as passionate toward people who are in pain.
If I did not have clusters a good night sleep just might not mean as much to me.
If I didn't have clusters a trip to the zoo without having to leave from having a attack might be boring instead of a blessing.
If I had not had clusters, I could not of handled cancer and other illness as well as I have
If I did not had clusters I would not connect to the people here and made the life long friends I now have.
Clusters taught me and my family some real good things.
Some look at clusters as a curse, I look at them as a blessing
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maffumatt
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Re: Could clusters be a blessing instead of a curs
« Reply #1 on: Jul 10th, 2006, 12:12pm » |
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I don't know, but meeting some of the people here has sure been a blessing for me.
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Brew
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Re: Could clusters be a blessing instead of a curs
« Reply #2 on: Jul 10th, 2006, 12:13pm » |
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While I can appreciate you "black cloud, silver lining" outlook, I'd still take pain-free any day. We are forced to take your approach lest we blow our brains out, so yours is a good thing in and of itself. But if I had never been saddled with this curse, I think I could still be compassionate and caring. Sorry.
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sandie99
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Re: Could clusters be a blessing instead of a curs
« Reply #3 on: Jul 10th, 2006, 12:14pm » |
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I agree: these days I think of ch as a blessing.
Ch has brought wonderful people into my life.
I have learned a lot about myself and I have turned my life into a better direction thanks to ch. I live healthier life because of ch.
The hits still hurt, the pain still sucks, but I don't care. I would not be the woman I am without ch. 
Best wishes & PF days to everyone,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
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Richr8
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Re: Could clusters be a blessing instead of a curs
« Reply #4 on: Jul 10th, 2006, 12:19pm » |
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I like all of you folks, but there is no way that this is any kind of blessing.
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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Brew
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Re: Could clusters be a blessing instead of a curs
« Reply #5 on: Jul 10th, 2006, 12:21pm » |
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on Jul 10th, 2006, 12:14pm, sandie99 wrote:I agree: these days I think of ch as a blessing.
Ch has brought wonderful people into my life.
I have learned a lot about myself and I have turned my life into a better direction thanks to ch. I live healthier life because of ch.
The hits still hurt, the pain still sucks, but I don't care. I would not be the woman I am without ch.
Best wishes & PF days to everyone,
Sanna |
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You say the hits still hurt, the pain still sucks, and that you don't care. Yet you wish pain-free days to everyone. Don't you see the inherent contradiction there? If the pain is good for you, is it not good for everyone?
Not trying to be a turd in the punchbowl....
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Brew
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Re: Could clusters be a blessing instead of a curs
« Reply #6 on: Jul 10th, 2006, 12:24pm » |
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on Jul 10th, 2006, 12:19pm, Richr8 wrote:| I like all of you folks, but there is no way that this is any kind of blessing. |
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I agree completely.
My wife - she's a blessing.
My son - he's a blessing.
The beast - puts me in touch with that which I will be glad to leave behind when I die.
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Racer1_NC
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Re: Could clusters be a blessing instead of a curs
« Reply #7 on: Jul 10th, 2006, 12:35pm » |
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CH is hell.......what I think Elaine speaks of is nature balancing it out......ying and yang so to speak.
There are positives........dunno if they balance it out though.... Time will tell.
B
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noneya
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Re: Could clusters be a blessing instead of a curs
« Reply #8 on: Jul 10th, 2006, 12:40pm » |
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I'm a pessimist and tend to look at the glass 1/2 empty. This pain is in no way a blessing. I would give up just about everything in my life for a cure. Sounds harsh but it's true.
It's nice to know other people who suffer from CH can see things this way though. 
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Melissa
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Re: Could clusters be a blessing instead of a curs
« Reply #9 on: Jul 10th, 2006, 1:06pm » |
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I think some need to try and realize Elaine is just giving some hope and an optimistic view to others of what she's learned about having a life with clusters.
I don't know about you, but I don't feel it's a curse on myself for having them. It sure is better than having progressive cancer or being a severe burn victim.
It's all in how you perceive things and unfortunately there are many on this site who have a negative view of their condition.
I agree with Bill's yin & yang and would like to add that hope is some all have, as we don't have a cure for our condition, so who the fuck cares if we wish each other cluster PF days? It's a gesture of goodwill, don't piss on it.
I don't care WHO you are, you will never be completely void from a PF life. Even if it's just from a paper cut.
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seasonalboomer
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Re: Could clusters be a blessing instead of a curs
« Reply #10 on: Jul 10th, 2006, 1:15pm » |
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Elaine, those are beautiful sentiments. I've often felt that the extremes that CH presents often allows me to experience those joyful aspects of my life with such greater appreciation. There are some mornings after a cycle ends where my senses are so attuned to the beauty that is around me that I'm overwhelmed by it. Thanks for reminding me.
Scott
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JeffB
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Re: Could clusters be a blessing instead of a curs
« Reply #11 on: Jul 10th, 2006, 2:15pm » |
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It is nice to know that if I were mugged and was hit in the head with a baseball bat that I would barley feel it! When people ask me how much it hurts, I use the analogy of being hit in the head for 30-60 minutes by Barry Bonds 3-4 times a day. As for a blessing....I wouldn't wish these on my worst enemy, except for that dude in N.Korea.
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tanner
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Re: Could clusters be a blessing instead of a curs
« Reply #12 on: Jul 10th, 2006, 2:39pm » |
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Elaine, I really admire your positive attitude. I have met some amazing people ( internet only  ), as a result of having this affliction but as I tell my doctors " I have 1 condition that is going to kill me ( hep c, now new and improved with hemocrohomotsis , I have one condition that constantly causes me great pain ( disc disease ), But I have 1 condition that often makes me wish I was dead and makes the others pale in comparison, ( THE BEAST )".
Clusters are the worst thing that have ever happened to me and if there is a blessing there it must be coming in my next life!
.................Tim
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imnotbub
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Re: Could clusters be a blessing instead of a curs
« Reply #13 on: Jul 10th, 2006, 2:41pm » |
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Could clusters be a blessing instead of a curse?
No.
Steve
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Brew
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Re: Could clusters be a blessing instead of a curs
« Reply #14 on: Jul 10th, 2006, 2:46pm » |
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on Jul 10th, 2006, 1:06pm, Melissa wrote:| It's all in how you perceive things and unfortunately there are many on this site who have a negative view of their condition. |
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I'm happy some can take a positive view of this. It is through my own inadequacy that I cannot.
Quote:| ...who the fuck cares if we wish each other cluster PF days? It's a gesture of goodwill, don't piss on it. |
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I'm not pissing on anything. I'm just pointing out the contradiction. Why wish PF days to everyone else when it holds no meaning for one's self?
Quote:| I don't care WHO you are, you will never be completely void from a PF life. Even if it's just from a paper cut. |
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Part of the human condition, Melly.
Here's my deal. Anytime anyone is dealt as much pain as this mother fucker deals out, I cannot view it as a good thing. I will assume full responsibility for my own shortcoming of character in my inability to do so. It is my fault that I cannot see the good. It's not that the good doesn't exist - it's that I can't see it.
That you and Sanna see the good in this, my hat is off to you. I have yet to attain that level.
Please believe me when I say that I wasn't trying to rain on anyone's parade. I'm sorry if you took it that way.
Bill
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BlueMeanie
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Re: Could clusters be a blessing instead of a curs
« Reply #15 on: Jul 10th, 2006, 2:47pm » |
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on Jul 10th, 2006, 12:06pm, Dixiedelight wrote:| If I never had clusters, I would not know what real pain was. I would not be able to connect so well with people who have other types of pain. |
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I don't know about being a blessing, but I do have to agree with the quote. Without Clusters, I don't think I would think of someone else's pain as serious.
It's the same as when you tell someone about OUR pain; you know that they have no idea what you're really going through. Like the responses of "oh yea, I get those too". 
ps: PFDAN
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Melissa
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Re: Could clusters be a blessing instead of a curs
« Reply #16 on: Jul 10th, 2006, 2:54pm » |
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brewcrew...Bill, it brings tears to my eyes to read that. It just absolutely kills my heart that clusters have the upper hand on so many wonderful things in life.
I really, truely wish you could experience the upside in my shoes, see it from my eyes. The severeness of the pain does not compare to the joy of each day for me. No matter if it's a good day, or a "bad" one. I guess I'm just happy to be alive.
many hugs,
mel
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Azrael
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Re: Could clusters be a blessing instead of a curs
« Reply #17 on: Jul 10th, 2006, 2:58pm » |
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Pain is a purifier... CH is a test... A trial by fire if you will. And like all good tests... Anyone, anywhere, anyhow would rather avoid it at all cost, and be rid of it as soon as possible once it has started, but once you face it down and make it through, you are a better person for it. Do I like CH... No. Would I want anyone to have CH... No. Do I see it as a blessing... Actually no... But do I see the good in it, the order in the chaos so to speak... Yes. Good post E... Thanks!
PFDAN................................................................... ...... ShadowLord
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tanner
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Re: Could clusters be a blessing instead of a curs
« Reply #18 on: Jul 10th, 2006, 3:07pm » |
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Melly, your The Bomb 
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sandie99
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Re: Could clusters be a blessing instead of a curs
« Reply #19 on: Jul 10th, 2006, 3:25pm » |
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Bill,
I have had plenty of difficult, hard, even suicidal days before and after getting ch.
Back in 2001 I decided to choose to look at life in optimistic manner. That same year brought ch into my head and my life. I took it as a challence and as a test.
These days I see the best sides in life. I'm not saying that it would be always easy... I have chosen to see everything in a good way. Maybe I am silly and naive, but it has made my life better. I have been caring, kind and well-wishing person all my life.
I wrote that " I don't care", refering to the hard sides. I can take a hell of a lot of pain before breaking, physically and emotionally. I understand others even better and relate to them better. Yet it does not mean that I would want to feel pain. I've just learned a lot about myself from it.
Is it really wrong to wish other pain-free days? I wish that to myself, so I wish that to others. Doesn't every CHer want to PF? I have said a lot of prayers about it.
Sanna
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CH happends, Live anyway! PF days to us all!
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Brew
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Re: Could clusters be a blessing instead of a curs
« Reply #20 on: Jul 10th, 2006, 3:26pm » |
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on Jul 10th, 2006, 2:54pm, Melissa wrote:brewcrew...Bill, it brings tears to my eyes to read that. It just absolutely kills my heart that clusters have the upper hand on so many wonderful things in life.
I really, truely wish you could experience the upside in my shoes, see it from my eyes. The severeness of the pain does not compare to the joy of each day for me. No matter if it's a good day, or a "bad" one. I guess I'm just happy to be alive.
many hugs,
mel |
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Goodness. I went back and read my response, and I really didn't mean to come across as so pathetic. I am, on the average, on the whole, for the most part a very upbeat, positive person. This (CH) is the one thing that throws a wrench in that, so I don't have a very positive view of it. But I, like you, find absolute joy every day I wake up. There is so much to live for, I'm afraid I'm gonna run out of days before I'm done.
And Shadowlord - Has the fucking earth opened up and swallowed me? Those are honest-to-God answers you have provided. See? I knew you had it in you.
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Brew
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Re: Could clusters be a blessing instead of a curs
« Reply #21 on: Jul 10th, 2006, 3:30pm » |
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on Jul 10th, 2006, 3:25pm, sandie99 wrote:| Is it really wrong to wish other pain-free days? I wish that to myself, so I wish that to others. |
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Absolutely not. It seemed as though you weren't wishing it for yourself. We had a communication breakdown.
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Margi
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Re: Could clusters be a blessing instead of a curs
« Reply #22 on: Jul 10th, 2006, 3:59pm » |
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one more thing to add to your list, Miss DixieDelight.
If you didn't have clusters, you would never have golfed in Vancouver either.
Nor would you ever have been called a Twisted Sister.
(well, maybe you would have....you are a little strange, after all....it may just have naturally evolved to that, clusters or not! LOL  )
TS (who is selfishly glad that you did have cluster because I never would have been blessed to have hugged your scrawny neck otherwise!)
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Sandy_C
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Re: Could clusters be a blessing instead of a curs
« Reply #23 on: Jul 10th, 2006, 4:16pm » |
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The ONLY blessing that I have found since beginning this lovely life with CH seven years ago, are the people I have found on these boards. They have become my extended family. Should I wake up tomorrow with my CH completely and forever gone, I will still be here with my family.
I will say that because of CH, I am stronger mentally in order to get through the pain. Is that a blessing? Dunno? Outside of that, there is absolutely nothing remotely like a blessing connected with this curse.
Sandy
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HappyElaine
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Re: Could clusters be a blessing instead of a curs
« Reply #24 on: Jul 10th, 2006, 4:38pm » |
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ok OK maybe Blessing wasn't the right word.
CH suck thats for sure. I went though many years calling them a curse. I was cronic for 20 years. Some how I have been able to find good in all my downfalls, pain, disapointments. I look at things different than I use to and by doing that it helps me get through the bad stuff.
Margi my twisted sister, we will see each other again I just know it. Bonnie and Waren and Mike ! Its going to happen.
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Fear less, hope more;
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