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Topic: need opinions please (Read 212 times) |
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Summerbabe
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need opinions please
« on: Jul 6th, 2006, 7:43pm » |
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Hey its Summer , was wondering what you all think about this...My neuro wanted to know if I could possibly have a family member tape me during an attack...he seems to still be learning about this demon we deal with, as he scurrys through his medical books during our visits . I really cant sit still during an attack and probably wanna break to video camera , let me know what you all think , thanks 
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Kris_in_SJ
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Re: need opinions please
« Reply #1 on: Jul 6th, 2006, 7:59pm » |
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My first reaction when I read your post was .... get another doc. Why is a knowledgeable neurologist scurrying through medical books during an appointment?!?
What is he/she looking for in a tape?
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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john_d
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I think it's a weird thing for a doctor to ask for, what will a grainy video of you in pain tell him? I have no idea. Have you thought about printing info out and giving it to him? That's what I did.
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E-Double
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Re: need opinions please
« Reply #3 on: Jul 6th, 2006, 8:00pm » |
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Do it!
I offered to have one induced with nitroglycerine but my docs felt it was unecessary.
They're also some of the tops in the world.
If it will help him/her recognize and be able to help educate his peers to the severity of this disease then you have done the world a great service 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Charlie
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Re: need opinions please
« Reply #4 on: Jul 6th, 2006, 8:06pm » |
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Very strange unless he hasn't seen an attack or perhaps wants to verify your diagnosis. Maybe it's the former.
It can be done but it would be easier if another clusterhead did the filming.
Ask him why though.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Jonny
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Re: need opinions please
« Reply #5 on: Jul 6th, 2006, 8:08pm » |
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Get a new doc, one you dont have to jump through hoops for!
Try my Neurologist in Boston. Dr William M Mullally.
Top notch when it comes to CH.
Good luck!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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marlinsfan
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Re: need opinions please
« Reply #6 on: Jul 6th, 2006, 8:17pm » |
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There's already a video out there from Chuck getting hit. Find it (search for chuck video) and bring it in. It's real, and it will give him what he looks for.
I hate having anybody see me while getting hit.
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Summerbabe
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Re: need opinions please
« Reply #7 on: Jul 6th, 2006, 8:22pm » |
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Hi thanks for your input guys, he has never dealt with a patient with CH. That is why , he also put me on these"lollipops" when I am in such a peak to suck on these things like I have the frigin patience for that right? Anyway they are Fentanyl Pops and I dont like them at all I feel strange, bang into walls , and eventually pass out..only ate two but not at once and wont have another one either. All set with those...Anyone ever hear of Fentanyl as an abortive/ pain reliever for CH ?
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chewy
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Check your PMs
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Summerbabe
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Re: need opinions please
« Reply #9 on: Jul 6th, 2006, 8:43pm » |
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What does PMs mean?
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George_J
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Re: need opinions please
« Reply #10 on: Jul 6th, 2006, 8:54pm » |
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I'd check into what he plans for distribution. Do you want to be the featured (albeit anonymous) exhibit at some medical convention somewhere? 
I don't know what I'd do--I've always thought of my hits as being intensely private occurrences. I try to make sure that no one sees them. A personal dignity thing, I guess. My fifteen-year-old daughter has never seen me take a hit.
Regards,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Jonny
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Re: need opinions please
« Reply #11 on: Jul 6th, 2006, 8:55pm » |
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on Jul 6th, 2006, 8:43pm, Summerbabe wrote:
Click the top right of the screen. "Messages"
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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chewy
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Re: need opinions please
« Reply #13 on: Jul 6th, 2006, 11:04pm » |
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Don't do it.
Just find a CH knowledgable Doc. He wont need movies to help you.
Your first priority is to yourself and getting the proper treatment. Not educating the medical community. That can come later if you choose.
Take care of yourself first, then you can take on the world.
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| « Last Edit: Jul 6th, 2006, 11:07pm by chewy » |
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