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Killroy 2.0
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DHE Treatment Questions?
« on: Jun 26th, 2006, 3:37pm »
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Two weeks in a row I have had a DHE treatment. All though it has not made me completely PF it has knock the beast down to about once a day. My Doc has decided that I should learn to do the shots myself. I have an appt. set for next week to learn how to do it.  
 
Has anyone else gone this route?
 
Did you give them to your self or did you always have to go to the Doctor?
 
If you did go this route, did it work for you and for how long?
« Last Edit: Jun 26th, 2006, 4:08pm by Killroy 2.0 » IP Logged

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Re: DHE Treatment Questions?
« Reply #1 on: Jun 26th, 2006, 4:22pm »
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Gena - I used to do the DHE nasal spray, but it stuffed my head up somthing fierce. Once I did the 3-day inpatient treatment through an intravenous line (every 8 hours for 3 days). Knocked the shit out of the beast for the time I was there, but I got bitchslapped with some of the worst Kip 8-9 headaches I have ever had starting 36 hours after I left the hospital.
 
Funny thing, though, after about 5 or 6 days of that shit, I was pain free for over 9 months. Causation or correlation? I have no idea.
 
Bill
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Re: DHE Treatment Questions?
« Reply #2 on: Jun 26th, 2006, 4:33pm »
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DHE IM injections at home are usually not recommended although many have done it, myself included. DHE comes in a pack of 6 vials (I think - maybe just 5) each vial contains 1 mg of DHE. You should never take more than 1 mg at a time, never take more than 2 mg per day, and not take more than 6 mg per week. (So you can't do it everyday). If you do more than this amount, you'll need to watch carefully for side effects (pain in legs, swelling, chest pain, whitening of the fingers and toes, and most of all HIGH BLOOD PRESSURE). You should monitor your BP everyday, after every shot,  for a few weeks.
DHE IM injections are given in the hip. It is a BIG needle! (3ml 22g1.5) <-- 1 1/2" needle  Shocked . It needs to go deep too !
 
If your doc tells you to do more than this amount, find a new doc !  Undecided
 
If there are any other questions I might be able to help you with, just ask away  Smiley
 
Goodluck
UNsolved
 
PS. Never mix with Triptans! (unless you want to have a heart attack)
Don't do it if your BP is already high ... cause it's going to go higher.
 
It always helps me but I always do it in the hospital now. I don't do it at home at all.
« Last Edit: Jun 26th, 2006, 4:42pm by unsolved1 » IP Logged
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Re: DHE Treatment Questions?
« Reply #3 on: Jun 26th, 2006, 4:51pm »
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I don't like the sound of that at all  Undecided
 
I think that they are just tired of me at the doctors office. They can never find a vain to put the IV in. I look like some kind of junkie with all the bruses on my arms.  
 
I don't know how much she is going to recommend. Right now I have just been going to the office and they hook me up to and IV and administer a shot over 5min of time.
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Re: DHE Treatment Questions?
« Reply #4 on: Jun 26th, 2006, 6:48pm »
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I do it at home and my needles are only 1 inch.  It does need to be IM.  It can cause some very bad things if used more than about 2 days a week, however.  It canNOT be abused like trex is around here and still be tolerated....gangrene, peripheral vascular disease, hypertension, stroke are all serious results of doing too much DHE.
 
If you want tips, etc - I used to give it to myself twice a week, but I haven't done it for a long time because I hate giving myself injections and because Amerge and Frova work much better for me without horrible side effects.  I throw up every time I get a DHE injection, which kinda makes my head hurt just the same!
 
Be safe...!
 
Carrie Smiley
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Re: DHE Treatment Questions?
« Reply #5 on: Jun 26th, 2006, 7:17pm »
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Quote:
Has anyone else gone this route?

 
Yup. Home IM injections proved useless. The inpatient IV DHE treatment broke a 9 month cycle.
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Re: DHE Treatment Questions?
« Reply #6 on: Jun 26th, 2006, 8:04pm »
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on Jun 26th, 2006, 4:51pm, Gena wrote:
They can never find a vain to put the IV in. I look like some kind of junkie with all the bruses on my arms.  
 

 
This is how I started, then eventually started getting p.i.c.c. lines & midlines, now I have a port implanted in my chest for easy IV access for meds.  Undecided
 
I'd be interested in hearing what dosage they recommend / allow for you. Please keep us posted.
 
Heed the warnings: Carrie is right ... you canNOT abuse DHE like some people do Imitrex. Do exactly as the doctors recommend ... not any more. Also, you should have a blood pressure monitor if you're going to be doing this at home.
 
PF Wishes,
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Re: DHE Treatment Questions?
« Reply #7 on: Jun 26th, 2006, 8:13pm »
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I was on a heart monitor during the 2 day IV treatment.
 
DHE is nothing to play with.
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Re: DHE Treatment Questions?
« Reply #8 on: Jun 27th, 2006, 3:43am »
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I can only tell you what the professor told us here at our last symposium Gena
 
DHE should NOT be allowed to use on humans.
 
Look at what happend to Chuck  or better ask him what happend
 
DHE contracts the arteries with some 44%.Not much more to go on if you are having other problems or using other meds
 
 
My advice is to STAY AWAY from DHE
 
 
Just my 2 cents worth
 
 
 
Svenn
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Re: DHE Treatment Questions?
« Reply #9 on: Jun 27th, 2006, 5:58am »
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I disagree with most of you on DHE. I've used it over the past and with mostly good results. The hospital IV treatment is the best for breaking a cycle, but IM will work.
 
I was on IMs at home every 8 hours until the headache broke (about 3-4 days usually).  
 
I agree that it's dangerous if used improperly and without a doc's orders, but it does work.  
 
It feels like battery acid going in your rear (and leave knots). Also makes you sick if you don't use an anti-nauseau med with it. (I use phenergan - it can be mixed with the DHE) Reglan (or however you spell it ) CANNOT be mixed in the same syringe with DHE.  
 
If you don't overdo DHE it can work great to break a cycle.  
 
Hugs BD
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Re: DHE Treatment Questions?
« Reply #10 on: Jun 27th, 2006, 6:56am »
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Quote:
If you don't overdo DHE it can work great to break a cycle.

 
You bet it can. 9months of pure misery that none of my usual meds would touch.
 
2 days IV DHE..............cycle gone.
 
Quote:
I agree that it's dangerous if used improperly and without a doc's orders,

 
Like anything else.
 
You want to treat am agressive condition you have to use aggresive treatment.
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Re: DHE Treatment Questions?
« Reply #11 on: Jun 27th, 2006, 9:16am »
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I have been on DHE for tx of ch and my complicated migraines which seem to be the only thing that works and gives me long times in between pain free. Like the above posters said use under strict instruction and no more. Do not mix with triptans for sure. Sometimes when I am particularly bad I end up on IV steroids too. My DHE is usually 1 mg for 3 days and 1/2 mg for the next two. I am allowed to self administer my shots but I always tell my neuro first and he OK"S the treatment or nixes it. He wont' go that route until I seem to get intractable or have trouble just to stand up or walk. It is not casually administered. Lucky for me I work in a  hospital and my neuro is here and the nurse gives me shots a lot of the times. Nice perk. ER is just downstairs.  
My BP runs low so I have no worries there. I do not get nauseated from it either like some other folks. I may have nausea from some of my headaches though when they are migraines as opposed to CH.
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Re: DHE Treatment Questions?
« Reply #12 on: Jun 27th, 2006, 9:53am »
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To the best of our Knowleadge, and I say our meaning Thomas, My Doctor and Me.  
 
I am currently having 3 different kinds of HA's. CH, CPH, and migraines. Everything else works for one but not another one.  
 
I have tried EVERYTHING. Some of the things I have tried help one and make the others worse!!!!
 
I am 1 more absent from work away from being fired. DHE seames to be the only thing that makes my head feel normal.  
 
« Last Edit: Jun 27th, 2006, 9:54am by Killroy 2.0 » IP Logged

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Re: DHE Treatment Questions?
« Reply #13 on: Jun 27th, 2006, 10:11am »
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Part of the reason I went off all meds.
I have 4 headache types and a couple of weird variants.
Was on too much crap that would help one but not the other or would make others worse.
 
Do what you have to do!
 
The DHE should help with the CH and Migraine not sure if it will help with the PH.
 
Good luck, hugs and relief
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Re: DHE Treatment Questions?
« Reply #14 on: Jun 27th, 2006, 10:49am »
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Well, I for one never said it wouldn't work or that it was a 'bad' drug to use. It helps me everytime. It's just a drug that if you are going to be using it, you need to know all about it and it's potential dangers. Anyone who says it can't be dangerous is wrong.
 
Goodluck and hope it helps
 
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Re: DHE Treatment Questions?
« Reply #15 on: Jun 27th, 2006, 11:09am »
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UNsolved - I wanted all opitions on it - Thank you and everybody else.
 
I also just want everybody to know how and why I am at this decision.
 
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Re: DHE Treatment Questions?
« Reply #16 on: Jun 27th, 2006, 12:10pm »
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I just read a little bit more about DHE from a goverment guideline website and I believe that if you followed their dosage, it would result in death.  Undecided   Who wrote this shit ??
 
Don't go by these website guidelines. You would regret it !!
 
http://www.guideline.gov/algorithm/4769/NGC-4769_6.html
 
http://www.guideline.gov/summary/summary.aspx?view_id=1&doc_id=8576
 
Disclaimer: I didn't write that shit on those websites and I believe they are totally inaccurate. I am NOT responsible for sending flowers to any funerals of anyone taking 20 - 21 mg of DHE a week.
 
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Re: DHE Treatment Questions?
« Reply #17 on: Jun 27th, 2006, 1:25pm »
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Renee, (where are you???) told me a story about a girl who was in the ER and had DHE administered incorrectly. She died.  
Scary.
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Re: DHE Treatment Questions?
« Reply #18 on: Jun 27th, 2006, 5:55pm »
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on Jun 27th, 2006, 1:25pm, nani wrote:
Renee, (where are you???) told me a story about a girl who was in the ER and had DHE administered incorrectly. She died.  
Scary.

 
 
Take the correct dose of imitrex and you can die too.
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Re: DHE Treatment Questions?
« Reply #19 on: Jun 27th, 2006, 5:59pm »
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I have 9 types of headaches....lets see ya beat that!....LOL Grin
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Re: DHE Treatment Questions?
« Reply #20 on: Jun 27th, 2006, 6:02pm »
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on Jun 27th, 2006, 5:59pm, Jonny wrote:
I have 9 types of headaches....lets see ya beat that!....LOL Grin

 
 
The one's in the small head don't count.  Grin
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Re: DHE Treatment Questions?
« Reply #21 on: Jun 27th, 2006, 6:03pm »
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on Jun 27th, 2006, 6:02pm, thomas wrote:

The one's in the small head don't count.  Grin

 
You SOB.....LMMFAO!!!  laugh
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Re: DHE Treatment Questions?
« Reply #22 on: Jun 27th, 2006, 6:04pm »
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on Jun 27th, 2006, 6:03pm, Jonny wrote:

 
You SOB.....LMMFAO!!!  laugh

 
 
I just couldn't help myself.
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Re: DHE Treatment Questions?
« Reply #23 on: Jun 27th, 2006, 6:12pm »
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on Jun 27th, 2006, 5:59pm, Jonny wrote:
I have 9 types of headaches....lets see ya beat that!....LOL Grin

 
That you suffer or inflict? Be specific!  Tongue
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Re: DHE Treatment Questions?
« Reply #24 on: Jun 27th, 2006, 8:10pm »
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Wow... that DHE sounds a little iffy.  Sure hope you be REAL SAFE Gena.
 
Good luck, hope you get a looong break.
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