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Topic: Sorry! But I need help! (Read 268 times) |
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ski2k
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Sorry! But I need help!
« on: May 20th, 2006, 4:19pm » |
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Sorry! I kinda broke a cardinal rule: I haven't been active since my last episode. I occasionally "checked in" to see if there was any new info....but haven't been posting. Now I'm in HELL again and need somebody to lean on. This is really my only crutch to help me get through this.
I'm having about a kip 5 now......trying to forget about it, and hoping this will help. Been getting only 3-4 a day, for 2-3 days in a row (sometimes more in a day) then getting a 2-3 day break. Pretty typical for me at the beginning of a cycle. It will get worse.
I need to know if there are any other sufferers in the West Michigan area, and if they've found a decent doctor. I'm seeing a pretty good one now, but I don't think he realizes what exactly it is he's dealing with. I (we) go through such HELL during an attack!! I don't think he gets it!! Love him dearly....he delivered all 3 of my children... but I just don't think he can handle this. So PLEASE, if there is anybody in my area that can point me in the right direction, I would GREATLY appreciate it.
Thank you all SOOOO much for all your love and support, you'll never know how much it really means to me, or how much it really helps.
Thanks again, and pf wishes to you all!!
Ski (Adam)
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aprilbee
CH.com Alumnus
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Ain't I a stinkah!!
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Re: Sorry! But I need help!
« Reply #1 on: May 20th, 2006, 4:21pm » |
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PF vibes going out to you...it'll pass, just hang in there!
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Sorry! But I need help!
« Reply #4 on: May 20th, 2006, 5:09pm » |
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I'm so sorry that you're getting hit, Adam.... 
Best wishes & PF time,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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unsolved1
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Re: Sorry! But I need help!
« Reply #5 on: May 20th, 2006, 7:18pm » |
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IMO, one of the best CH doctors in the country is in Ann Arbor, MI.
Todd Rozen www.mhni.com
I'm pretty sure that he is one of the guest speakers at the upcoming O.U.C.H. convention.
Goodluck
UNsolved
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Carl_D
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Re: Sorry! But I need help!
« Reply #6 on: May 20th, 2006, 7:25pm » |
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I would definitely check out the MHNI (Michigan Head-Pian and Neuorlogical Institute). It may be a bit of a drive from Grand Rapids, but it was the first Dr I had seen in my first 7-8 years with clusters that actually had a clue about how to treat them.
Look them up. My Dr was Weintraub.
Peace, and hope your cycle breaks early - Hang in there.
Carl D
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Azrael
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Sometimes... Being good just ain't worth it.
  
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Re: Sorry! But I need help!
« Reply #7 on: May 21st, 2006, 2:25pm » |
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Holy shit! Muskegon? Those are my old stompin' grounds... Used to live in North Muskegon, and work in the Heights when I was in high school. Unfortunately, I didn't get diagnosed 'til I moved to PA, so can't help ya with any docs. Cold always helped me, so maybe ya could try goin' to the lake for a quick swim? Should be very refreshing this time of the year. Good luck!
PFDAN.................................................. ShadowLord
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ski2k
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Re: Sorry! But I need help!
« Reply #8 on: May 21st, 2006, 7:15pm » |
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Thank you, thank you, thank you!!
I really needed that!!
I am going to explore all the suggestions posted here. I guess my sister who suffers from pretty severe migraines knows a little about the clinic in Ann Arbor, and she also reccommended it. Personally, I never knew it existed!!
Awesome info. here people!! Thank you soooo much!
If anybody else has more, I would love to hear it, 'cuz nobody I've found around here seems to know much about CH (big suprise there!).
Thanks again to all of you, and keep the info coming!!
Pain free wishes to all,
Ski
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DonnaHar
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Re: Sorry! But I need help!
« Reply #9 on: May 21st, 2006, 8:11pm » |
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Check your PM's. My son lives in the Grand Rapids area, in Caledonia. Moved there a year ago last April.
He is also a clusterhead.
I'll be visiting up there on June 6-7 and 8th.
I'm already planning to meet 2 clusterheads along the way.....anymore along the western coast?
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