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Topic: I am going to scream! (Read 369 times) |
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She-ra_mommy
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I am going to scream!
« on: May 10th, 2006, 5:02pm » |
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I just got off the phone with my nurologist. She is putting me on steriods. My head is going to explode and she is acting like it is no big deal.
I can't take anymore! My house is falling apart I have not been able to go grocery shopping in two months. She keeps telling me no caffine and rest. I am trying to find a second opion I have to go thru my general dr. I'm thinking I should just go to E.r.
let them deal with it.
3 days of 10 out of 1 to 10. thats not right.
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thomas
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Re: I am going to scream!
« Reply #1 on: May 10th, 2006, 5:18pm » |
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You actually should take in more cafine and rest only when necessary. True words here, I'm not kidding.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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aprilbee
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Re: I am going to scream!
« Reply #2 on: May 10th, 2006, 5:25pm » |
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on May 10th, 2006, 5:18pm, thomas wrote:| You actually should take in more cafine and rest only when necessary. True words here, I'm not kidding. |
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Yep...black coffee is a staple amongst a lot of us...and we sleep when we can...some...avoid sleep (me)... 
I hope can get a neuro who can help you soon...just hang in there and print off the med info and everything you can from this site and take it to your doc...its a time and mind saver.... 
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Richr8
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http://www.brightok.net/~Re: I am going to scream!
« Reply #3 on: May 10th, 2006, 5:25pm » |
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Many of us respond well to steroid (prednisone) tapers. However, you also need to be on a preventative like Verpamil, and an abortive like Imitrex or Oxygen at a minimum.
If your Neuro did not discuss these, you do need to get a second opinion. Be sure if you have another opportunity that you go in armed with info from here:
http://www.brightok.net/~mnjday/chtherapy.pdf
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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tanner
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Re: I am going to scream!
« Reply #4 on: May 10th, 2006, 5:29pm » |
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Run, Don't Walk to another doctor!!! I don't know what your insurance situation is but if it is like most of ours it sucks, But you need a second opinion!!! I have gone through the ER and by saying the right things gotten an MRI right there. The bad part is they will no doubt have to admit you as it is very hard to get through an MRI while getting slammed. I have done it so it can be done it is just not easy....... but neither is what you are going through right now.
.......hugs and best of luck.......tim
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I AM THE MASTER OF MY MIND, MY BODY, AND MY EMOTIONS...
it's just my head that sucks...http://www.centerforlit.com/
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Charlie
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Re: I am going to scream!
« Reply #5 on: May 10th, 2006, 5:32pm » |
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My headaches have been gone for 15 years now. The only thing that changed about the time they started to go away was my huge increase in my caffeine intake.
Good to the last drop. 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Paul98
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Re: I am going to scream!
« Reply #6 on: May 10th, 2006, 10:31pm » |
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She-ra_mommy,
If your Neuro thinks an attack of Ch is no big deal, ditch her! If she thinks coffee is bad for CH or migraine, ditch her.
If you can't get good help from your Dr. or neuro the ER might be a choice until you can find another Dr. ER's are time consuming but doing nothing is worse.
-P.
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cootie
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Re: I am going to scream!
« Reply #7 on: May 10th, 2006, 10:41pm » |
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I don't think your neuro 'gets it'.........esp if she said that!!!!!! We just use an internalist doctor and recently he 'quit' for a less stressful hospital job (thanks to malpractice ins and sue happy people to worry about these days) so we are goin to his old partner that says he will follow Brad's program of meds and needs. You need a doc with sum knowledge to get you help pronto cuz you gotta get some relief !!! Good luck........happy daze are gone again Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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cekelle
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Re: I am going to scream!
« Reply #8 on: May 11th, 2006, 12:01am » |
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Definitely get another opinion! I know it's a pain in the a$$, but try not to think of it that way. Take time to take care of yourself, and you will be able to take care of everything else later.
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pfunk
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Re: I am going to scream!
« Reply #9 on: May 11th, 2006, 12:02am » |
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I agree. Find a different doc. The pred. tapers helped me get through this most recent cycle. Definitely find one that will talk about the preventatives and abortives as well. Best of luck and PF wishes.
Patrick
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rickyshot
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Re: I am going to scream!
« Reply #10 on: May 11th, 2006, 8:45am » |
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Agree with the above. And go to ER. That is a good start for a CT scan or MRI which you need and a referral to a neuro. People generally do not go to ER playing. At the beginning of this nightmare I used to go every other day until someone did something. I could not take it. Oh I feel your pain for sure. Get going. Print out the info and pic on the Oxygen and take it to a new neuro. It took me five years at the beginning with mis diagnosis and docs who did not know what they were doing or did not care or both to finally hit a doc in ER who looked at me and my history and said. Honey what you have is serious (I am "blessed" with CH and complicated migraines and sometimes both at the same time which drive me mentally insane). If I only had this site to help me I would not have wandered around suffering needlessly not knowing what was wrong with me for five years and uncontrolled. It almost ruined my life. I lost jobs, was abusive to my kids etc. Please get help soon.
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sandie99
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Re: I am going to scream!
« Reply #11 on: May 11th, 2006, 1:06pm » |
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Wishing you PF time,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Bob P
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Re: I am going to scream!
« Reply #12 on: May 11th, 2006, 5:27pm » |
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Steroids are a front line treatment for a rapid stopping of attacks. Only a short term (2-3 weeks) fix though.
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FramCire
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Re: I am going to scream!
« Reply #13 on: May 11th, 2006, 6:28pm » |
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Help me out here. Why do you need a CT scan or MRI? Should I have got one? I have been diagnosed by a headache specialist (who was the 3rd doctor to confirm the diagnosis) and I was never sent in for one. (wait, I did have a CT scan my first cycle, but I didn't think it showed anything)
My suiggestion is to take the prednizone taper and once you have got a little sleep (at night), try 9mg of melatonin every night. It might be bad for a few nights but it hopefully will get better.
Caffine is great for me and before CH I couldn't injest caffine without getting sick to my stomach. Now, I love it when in cycle.
As for rest, I cant rest during an attack and a nap during the day usually ends in a worse hit.
Have you tried oxygen with the correct mask? How about imitrex injections?
I'll be praying for many PF days for you.
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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chewy
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Re: I am going to scream!
« Reply #14 on: May 11th, 2006, 8:34pm » |
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Quote:She is putting me on steriods. My head is going to explode and she is acting like it is no big deal.
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I have no idea why anyone is telling you to dump the Doc.
Steroids is a good call by the Doc. Ask her about a preventative as well.
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| « Last Edit: May 11th, 2006, 8:36pm by chewy » |
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She-ra_mommy
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Re: I am going to scream!
« Reply #15 on: May 11th, 2006, 9:13pm » |
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my face has been numb and the current Neuro does not take my pain seriously.That why they think I need another Dr. I am getting a second opion.
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FramCire
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Re: I am going to scream!
« Reply #16 on: May 11th, 2006, 9:52pm » |
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chewy: Why the doctor has told her to stay away from caffine is my question. Otherwise prednisone is a very good call (at least it was for short term relief for me).
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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deltadarlin
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Re: I am going to scream!
« Reply #17 on: May 12th, 2006, 9:30am » |
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on May 9th, 2006, 11:48pm, She-ra_mommy wrote:I think my Nurologist is treating it as a migrain and not Ch.
I forgot to mention I am also a diabetic so steriod are not a good option for me. I also have had a bad reaction to Imitrex. My next appt at the nuro is may 25. My dh wants to take me to the hospital. I am fighting going I don't know what they will do to me. But on the kip scale I am 10. I don't know what to do? any suggestions?
[flash=200,200][/flash] |
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Steroids are not recommended for diabetics because it can block the effect of insulin which regulates the blood sugar.
With facial numbness and some of her other symptoms, her physician would be stupid and possibly verging on malparactive if he didn't order some tests to discover the underlying origins here.
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If it weren't for the gutter, y mind would be homeless.
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rickyshot
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Re: I am going to scream!
« Reply #18 on: May 12th, 2006, 11:27am » |
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Yes Delta. She needs the tests to rule out anything else. But face numbness and stroke like symptoms are common to complicated migraines. I am one of those as well. Take it from someone who knows. Some of my migraine days are worse than the CH days and oh the job of the two for one days. 
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She-ra_mommy
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Re: I am going to scream!
« Reply #19 on: May 12th, 2006, 11:55am » |
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I got into another Neuro for May 25. Here is hoping he is good.
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tanner
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Re: I am going to scream!
« Reply #20 on: May 12th, 2006, 12:27pm » |
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I'm so happy that you are getting a second opinion. Just the caffeine comment warrants it in my opinion. Unless she thinks that you do not have clusters at all in which case caffeine could be a trigger.
As to Fram's ? about MRI's, CT scans and the like I just thought it was SOP to rule out life threatening conditions when a patient is reporting this intensity of pain. I had multiple MRI's, 2 Ct scans and an angiogram that went in at the groin area and passed a cam all the way into my brain before they finally agreed on a diagnosis.
How about you ricky? when I first came to this board I think I was the only one with atypical cluster/migraine variant. Did they put you through the whole gamut of tests? btw I'm very sorry to hear that you have both  ......tim
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I AM THE MASTER OF MY MIND, MY BODY, AND MY EMOTIONS...
it's just my head that sucks...http://www.centerforlit.com/
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