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Topic: Returning, Returning, Returning (Read 182 times) |
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burnt-toast
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Returning, Returning, Returning
« on: Apr 20th, 2006, 11:22am » |
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My 2.5 month remission has come to an end. The last two nights/mornings I have been formally re-introduced to this nightmare. I'm dissappointed - I was hopeing to surpass my longest remission of 3 months - but it was great while it lasted.
I was backing down the meds. and had just reached 300mg Lithium Carbonate/240mg Verapamil/9mg Melatonin this week when they returned - I'm now ramping back up to see if I can regain control. I also have a Pred. taper waiting in the wings just in case and will try it if base meds. don't do the trick.
Oh well,
Tom
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Ghost
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Re: Returning, Returning, Returning
« Reply #1 on: Apr 20th, 2006, 11:28am » |
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Hang tough ok. Sorry to hear you are back with the walking dead. 
Don't give in and vent, rant what ever you want. Sending vibes at ya and hope it is a short cycle for ya.
Mike
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burnt-toast
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Re: Returning, Returning, Returning
« Reply #2 on: Apr 20th, 2006, 11:49am » |
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Thanks, but they are unfortuantely never short cycles - the last one was over 3.5 years until this remission but usually average 1.5 years with about a 30 day remission thrown in every now and then to remind me of what normal is and possibly keep me from killing myself (just kidding) - afterall this nightmare likes to keep subjects around to abuse.
I'd rather not have these short remissions because they turn into nothing more than reminders of what non-CH life is. Honestly, dreading this nightmare's return is not good for the soul.
Oh well again,
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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karma
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Re: Returning, Returning, Returning
« Reply #3 on: Apr 20th, 2006, 12:29pm » |
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Tom,
Sorry to hear that you're back in the grind again.
If you don't mind i've got a couple of questions.
First of all I'm episodic with a couple of years in between cycles. My last cycle I used verap and some zomig tabs with a pred taper all for the first time and I got hit longer and harder than ever before. Coincidence? Maybe. I finally got fed up and quit the verap and while the first couple of days were a little tough, I got complete relief. Coincidence? maybe.
Just wondering why you wouldn't consider giving some of the non traditional meds a go now that you're going into what may be a new cycle?
Seeds, Kudzu, fungi?
Robbie
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Charlie
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Re: Returning, Returning, Returning
« Reply #4 on: Apr 20th, 2006, 12:50pm » |
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Sorry to hear Tom
Maybe hitting him all at once will scare the beast off.
Rats.
Charlie
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sandie99
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Re: Returning, Returning, Returning
« Reply #5 on: Apr 20th, 2006, 1:54pm » |
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I'm so sorry Tom that the beast returned... 
Wishing you PF days as soon as possible,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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BarbaraD
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Re: Returning, Returning, Returning
« Reply #6 on: Apr 20th, 2006, 2:19pm » |
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I really hate to be the voice of OPTIMISM but I watched an old movie sometime over the weekend (Pollyanna) and got all UP. Be GLAD you had the remission and got to be Pain Free for a little while. (Ok, she played the GLAD Game - I got hooked). Instead of looking for things to be sad about, find something to be Glad about.
It'll wear off, but for right now, I'm just Glad I only got hit with one bad one yesterday. Today I'm Glad I'm only shadowing so far.
Hugs BD
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Jonny
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Re: Returning, Returning, Returning
« Reply #7 on: Apr 20th, 2006, 4:12pm » |
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I hear ya, Tom......last nite (After a year PF) I got nailed and had to use the one and only Zomig NS that I had, 02 would not keep it at bay. Today I went and got 12 more Zomig NS and two months of Verap and Lith, Im not going to start the meds just yet cause im hoping that this was just a freak hit.
If its coming back I hope its chronic, I cant take being PF and then SLAM!!!
Good luck, Tom!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Jasmyn
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Re: Returning, Returning, Returning
« Reply #8 on: Apr 20th, 2006, 4:53pm » |
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Sorry to hear the beast is back Tom. Like Charlie said I hope by ramping up the meds you get rid of the son of a blowfish!
PS: Another good UP movie is Mary Poppins: "A spoon full of sugar..." Barb I like your style and I also love to have the littleler ones around that replay and replay my favourite upper movies. 
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Jazz
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burnt-toast
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Re: Returning, Returning, Returning
« Reply #9 on: Apr 20th, 2006, 11:13pm » |
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To my Ch friends - in particular Ghost, Karma, Charlie, Sanna, Barbara D, Jonny and Jasmyn. I'll get by just like always - I like to believe tht I'm a survivor who enjoys life - and endures anything - but it can be difficult with this crap.
FYI - I've re-greated this nightmare with a mess of medium rare deer chops and about 12 beers. Over the last 2.5 months I've behaved myself - WTF now it's time to misbehave a bit - even if I pay dearly for it.
Jonny I am saddened to hear you also got hit, hopefully it's just a freak attack. I would gladly bypass the PF time because it's soooooo short and only tends to remind me of a pre-CH existance.
My only wish right now is to someday have the chance to meet everyone - you mean a lot to me.
God Bless,
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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burnt-toast
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Re: Returning, Returning, Returning
« Reply #10 on: Apr 20th, 2006, 11:23pm » |
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I hope that last post wasn't too sappy - it's the beer talking -  .
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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Charlie
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Re: Returning, Returning, Returning
« Reply #11 on: Apr 21st, 2006, 12:20am » |
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Quote:| I hope that last post wasn't too sappy - it's the beer talking |
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Charlie (need more beer)
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Jasmyn
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Re: Returning, Returning, Returning
« Reply #12 on: Apr 21st, 2006, 4:46am » |
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Tom, sometimes it is a good idea to just hang loose and try to forget your troubles for a moment. Have a beer for me as well 
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Jazz
Madness is proclaimed by society’s inability to accept its own infallibility
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