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Topic: Written by Cluster Headaches.com (Read 520 times) |
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Yournotcrazy
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Written by Cluster Headaches.com
« on: Apr 15th, 2006, 9:20pm » |
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Written by Clusterheadaches.com
I am retired too young and write music for a living. Two albums, country and rock. What words or verses would you use, to describe CH. I will write the song and give all proceeds here. Including and urls I own.
So What would the tiltle be?
What could we say to the public media?
War, crime..........I believe in monsters?
Verses and words.........written by Clusterheadaches.com
This is how I can help......I own 4 sites now.
I am not crazy
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Thank you for writing. I will respond soon. We might be misunderstood, but not alone.
kris
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Melissa
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Re: Written by Cluster Headaches.com
« Reply #1 on: Apr 15th, 2006, 9:27pm » |
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One short sentence I hear with each cycle since my husband and I have been married is: "I just want my wife back".
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FramCire
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Re: Written by Cluster Headaches.com
« Reply #2 on: Apr 15th, 2006, 9:32pm » |
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I'd call it "The Unwelcomed Beast"
My words would include "you've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do"
Just a few ideas off the top of my head. The beast is in my head right now, so it probably stinks.
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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gore2424
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Re: Written by Cluster Headaches.com
« Reply #3 on: Apr 15th, 2006, 9:40pm » |
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I want to heal
I want to feel
like I'm close to something real
I want to feel like I was before
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what the hamsalad was that ¿?¿
I said your hair looks nice Ü
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Dragnlance
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Monster bait
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Re: Written by Cluster Headaches.com
« Reply #4 on: Apr 15th, 2006, 9:41pm » |
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Call it " The Hell In My Head"
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gore2424
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Re: Written by Cluster Headaches.com
« Reply #5 on: Apr 15th, 2006, 10:00pm » |
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" Demon In My head"
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what the hamsalad was that ¿?¿
I said your hair looks nice Ü
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Yournotcrazy
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Re: Written by Cluster Headaches.com
« Reply #6 on: Apr 15th, 2006, 10:32pm » |
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Man,
Thank you so much, there is already so much hear and I will take even more. Not matter what we think. My job is to "cluster" the words and put them together. Whe you are hurting give me some words.
So I am hearing numbness, monster, demon, unseen killer of the heart and mind.......FramCire your words I can feel.
Heal feel real. I will update. It will be
Body:Verse
Chorus:
Body: Verse
Chorus:
Bridge:
Chorus:
I'll take anybodies help and critique. I am a member of ASCAP and SAG.
my back ground www.martinellimusic.com I am working on my second album which will be country. This is for us.
Thank you to you all.
Kris
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Thank you for writing. I will respond soon. We might be misunderstood, but not alone.
kris
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Jasmyn
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Re: Written by Cluster Headaches.com
« Reply #7 on: Apr 16th, 2006, 3:18am » |
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Great Stuff! 
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Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
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Jonny
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Re: Written by Cluster Headaches.com
« Reply #8 on: Apr 16th, 2006, 3:30am » |
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on Apr 15th, 2006, 9:27pm, Melissa wrote:
"I just want my wife life back". |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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BarbaraD
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Hugs to ya
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Re: Written by Cluster Headaches.com
« Reply #9 on: Apr 16th, 2006, 7:41am » |
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I want a beer
But I got a tear
The noggin is achin'
The furniture I'm breakin'
Clusters are baaackkkk
Clusters are baaackkkk
I'm hurtin' deep in my eye
I prayin' to God to die
It hurts too bad to cry
Why me ole Lord , Why me???
Well, you said it was country.... 
Hugs BD
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What don't kill ya, Makes ya stonger!
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aprilbee
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Ain't I a stinkah!!
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Re: Written by Cluster Headaches.com
« Reply #10 on: Apr 16th, 2006, 10:37am » |
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My thoughts are "just take me now and end this, I can't take it anymore" and then when the sweet relief from pain comes, I apologize to God and myself...
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Dape
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WHY BOTHER !!!!!!!!!!!!!!! !!
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Re: Written by Cluster Headaches.com
« Reply #11 on: Apr 16th, 2006, 6:07pm » |
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Was listening to a jack johnson song and started making up my own lyrics which would have been directed at my doctor if he had been here.
The song was, Sitting, Waiting, Wishing . I was getting hit at the time and cant remeber much of it but the bit that sticks in my head is :
Well i was sitting waiting wishing, that you`d beleive in my condition, then maybe youd see the truth
(cant remember the next bit).
Must i always be waiting waiting on you,
Must i be always be playing playing your fool,
Ive sang your song, ive danced your dance, ive gave the drugs all a chance but putting up with them was`nt worth ever having you.
Probably of no use but what the heck.
Dape
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D.I.L.L.I.G.A.F ???
Well i used to
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maffumatt
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Re: Written by Cluster Headaches.com
« Reply #12 on: Apr 16th, 2006, 6:36pm » |
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your very talented Kris
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john_d
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Re: Written by Cluster Headaches.com
« Reply #13 on: Apr 16th, 2006, 6:44pm » |
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on Apr 15th, 2006, 9:20pm, Yournotcrazy wrote:
is that possible?
The words I used for the last cycle when I had no o2 or meds.
The night has arrived and I quietly sit alone. My thoughts and life purpose escape me while tension and dread rolls in like a storm. the mantle clock quietly plays it's ninth hour song, hell is about to visit me once again.
edit... just listened to your music, I am not religous but very, very nice stuff.
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| « Last Edit: Apr 16th, 2006, 6:48pm by john_d » |
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catlind
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Re: Written by Cluster Headaches.com
« Reply #14 on: Apr 16th, 2006, 9:16pm » |
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Always in the recess of my mind, waiting to wage the next battle in a war we cannot win
It's not cancer, it's not heart disease, it's not a brain tumor, it can't kill me, but it drives me to kill myself
It's not about death, it's about life, about quality of life.
Loving moments with my spouse, Laughter and games with my children, Living to the fullest.
Fear in the eyes of a child, uncomprehending and wanting to make mommy/daddy better.
Heart pain and ego pain for those who support us - when they can't, no matter how they try, make things better during the good and bad and sickness and health
(Read Jackies post on the supporters board)
And most of all, for those of us that persevere, and believe we can find what will help, we are
UNCONQUERED
Cat
Edited to Add: Creed, 6 feet from the edge:
Please come now
I think I'm falling
Holding on to all I think is safe
It seems I've found the road to no where
And i'm trying to escape
I yelled back when I heard thunder
But I'm down to one last breath
And with it let me say
Let me say...
Hold me now
I'm 6 feet from the edge
And I'm thinkin
Maybe 6 feet ain't so far down
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| « Last Edit: Apr 16th, 2006, 9:23pm by catlind » |
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A true friend is someone who reaches for your hand and touches your heart
If yer gonna be stupid, ya gotta be tough
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tanner
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Re: Written by Cluster Headaches.com
« Reply #15 on: Apr 16th, 2006, 9:39pm » |
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Kris, I am having a kip8/9 right now and I hate to come near this board and whine! I can only say that I am spending more time lately thinking about how to leave this life without adding more pain to the peiple who love me then anything els. I don't want to cop out or let anyone down (like all of my fellow warriors on this board) but I don't know how much more I can take. I have one disease that is killing me (liver) but i have one that is making me want to die! .....tim
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I AM THE MASTER OF MY MIND, MY BODY, AND MY EMOTIONS...
it's just my head that sucks...http://www.centerforlit.com/
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jimmers
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Re: Written by Cluster Headaches.com
« Reply #16 on: Apr 16th, 2006, 10:37pm » |
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Lets call it "One eye is crying"
Just a thought.
Jimmers
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I don't suffer from INSANITY; I'm enjoying every minute of it!
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Yournotcrazy
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Re: Written by Cluster Headaches.com
« Reply #17 on: Apr 16th, 2006, 11:46pm » |
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I got yelled at by my wife this morning. I grabbed a guitar from off the wall and started in on our words and statements made here. I played quiet! when I went into the room I told her my job right now. What an awsome group. To inspire me and private messages. I am rebuilding my site to sell two of my albums now I have become more healthy.
Some asked me to put my website on my personal link. I will do that. I also have to learn more here and about financial support and etc. I have the melody and all your words in note book. Title I am going for
[url]"Monsters Under My Bed"[/url] I want to make it for us but also generic where we can allow others to relate. With these words we are going to become a music site LOL.
Tanner, both are killing you!!! I see know differance except one is a monster under your bed and who believes in monsters? Who could understand the words below: fear, afraid, confussion. Shit give me death o Lord but not CH. Give me cancer but not CH. In my prayers.
Working away!
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Thank you for writing. I will respond soon. We might be misunderstood, but not alone.
kris
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..Danielle..
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Re: Written by Cluster Headaches.com
« Reply #18 on: Apr 17th, 2006, 12:59am » |
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These are the lyrics to Paul Brandt's "Cry if you want too"
The first time I heard this, it just felt like he was talking about CH's.
I play it a lot when i'm in cycle
Cry if you want to
I won't tell you not to
I won't try to cheer you up
I'll just be here if you want me
There's no use in keeping a stiff upper lip
You can weep you can sleep you can loosen your grip
You can frown you can drown and go down with the ship
You can cry if you want you
Don't ever apologize venting your pain
It's something to me you don't need to explain
I don't need to know why I don't think it's insane
You can cry if you want to
The windows are closed the neighbors aren't home
If it's better with me then to do it alone
I'll draw all the curtains and unplug the phone
You can cry if you want to
You can stare at the ceiling tear at your hair
Swallow your feelings and stagger and swear
You can show things and throw things and I wouldn't care
You can cry if you want to
No I won't make fun of you I won't tell anyone
I won't analyze what you do or you should have done
I won't advise you to go and have fun
You can cry if you want to
when it's empty and ugly and terribly sad
I can't feel what you feel but I know it feels bad
I know that it's real and it makes you so mad
You can cry
Cry if you want to
I won't tell you not to
I won't try to cheer you up
I'll just be here if you want me to be near you
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Keep your face to the sunshine and you cannot see the shadow. -Helen Keller
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sandie99
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Re: Written by Cluster Headaches.com
« Reply #19 on: Apr 17th, 2006, 4:43am » |
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Our own song... now that would be just brilliant!
Title... I can see that there are plenty of suggestions already. This one came to my mind: "Dancing with the Devil".
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Charlie
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Re: Written by Cluster Headaches.com
« Reply #20 on: Apr 17th, 2006, 3:53pm » |
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Lotta talent here over and under the surface. Wish I had something along these lines but I have all the creative talent of as bag of hammers. 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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maffumatt
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Re: Written by Cluster Headaches.com
« Reply #21 on: Apr 17th, 2006, 4:04pm » |
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Your song the cave seemed to me to be about CH, I listened to it several times and I can relate to it.
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Yournotcrazy
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Re: Written by Cluster Headaches.com
« Reply #22 on: Apr 17th, 2006, 6:41pm » |
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Ya maffumatt, the Cave was about my fight with Ch and depression. I just thought we need one for us and non Religious LOL. Man we do have talent here! I better get the song done quick.
I could not image anything worse then abunch of CH'ers pissed off. Maybe we should become the armies special ops unit. We just go in waves of differant times men and woman. LOL. If were gonna right our own songs souldnt we buy chcardnight.com and play cards too!
OK I will be quiet.
Word,
Kris......
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Thank you for writing. I will respond soon. We might be misunderstood, but not alone.
kris
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maria9
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Re: Written by Cluster Headaches.com
« Reply #23 on: Apr 17th, 2006, 8:10pm » |
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OK, I will try to start this one, please add to it:
The Monsters Under My Bed
I am afraid to go to sleep at night
for fear that they will wake me and start pounding on my head.....
Marsha
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"All you have to do is the best you can. A high wave comes, a crashing wave comes, a gentle swell follows. Whatever comes, stay in your boat. And enjoy the ride. And row." Peggy Noonan
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maffumatt
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Re: Written by Cluster Headaches.com
« Reply #24 on: Apr 17th, 2006, 8:19pm » |
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one of my fav quotes about CH, i forget who said it first, but its the most accurate description of ch I have heard............... pure and exquisite pain........... if any single line sticks out in my head its that one sentence
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