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Topic: That EFFIN IDIOT!!! (Read 673 times) |
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ClusterChuck
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That EFFIN IDIOT!!!
« on: Apr 12th, 2006, 1:10am » |
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Guess what!!!! I do NOT have cluster headaches!!! Isn’t that GREAT news???
Now, the story BEHIND the story:
My neuro (who is GREAT) thought that I might get some answers, and possibly successful treatment (I’m beginning to seriously doubt that will ever happen, for me) if I were to go to a neuro, who is more specialized in headaches, than she is. Ok, I’m game. Add another name to my huge list.
So, I travel 2 ½ hours, one way, to see this, so called headache genius. I go out there for the initial visit, then two more times for tests, and then, today, for his evaluation. (twenty hours of driving, not counting time spent on the side of the road, dealing with the beast, and hours spent in waiting chairs) Even though I had told myself, not to get too ramped up and excited, I did. Finally a break through? YEEHAW!!!
His brilliant conclusions: I do not have cluster headaches. .. .. .. .. .. .. Ok .. .. .. .. .. .. What DO I have? He has no idea. BUT, he is convinced that I do not suffer from cluster headaches. His reasons? They are as follows:
A person with cluster headaches:
- Has a maximum of 6 hits a day (6, is a light day for me – I get up to 16 a day)
- Only has them on one side of their head, during a cycle (I get them on both sides)
- When they reach 50 years of age, they start to decline, and go away (I have gotten MUCH worse, in the last 6 years {I am 56 years old})
- Responds to at LEAST one of the medications or cocktails that I have tried
- Cannot drink ANY type of alcohol, at all, without it being a trigger (I can drink anything, except beer, wine, or rum)
- Never has an orgasm as a trigger (no comment …)
- Does NOT scream, pull hair, and get abusive, during a bad hit (again, no comment …)
He mentioned a few other, proven traits, that I go against, as for the reason for his wonderful diagnosis. But, I was so pissed, by this time, that I had started to tune him out, so that I didn’t get “abusive” and beat his fucking brains out! He witnessed several hits, including a doozie of a KIP9 (where I screamed, pulled hair, and got abusive to their damn interference). So, for 14 years as an episodic, and now 8 years as a chronic, I have been treated for something I DON’T have. And I didn’t even count the first 6 years, when no one knew what I had, and during which time, I was committed to a psychiatric facility, and then treated as an out patient, to cure me for “pretending” to have pain. So for a total of 28 years that I have had this mysterious ailment, I have been diagnosed and treated wrong, all along.
I know that many of you have witnessed me having one of these “episodes”. I am here to inform you, they were not cluster headache attacks.
Aren’t I LUCKY??? I DON’T have this terrible affliction! LUCKY ME!!!
What a FUCKING IDIOT !!!!!!!!! And this guys is considered to be, and calls himself, a headache EXPERT???? I have been sitting here fuming (and dealing with these mysterious “episodes”) all afternoon and evening, since leaving his office.
I am sorry for the long rant. I just can’t believe that a so called expert can be so fucking stupid and wrong!
Chuck – no longer a clusterhead
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AussieBrian
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Re: That EFFIN IDIOT!!!
« Reply #1 on: Apr 12th, 2006, 1:16am » |
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Hey, Chuck, that's fabulous news!!!! Can I have address so I can cured just like you did??
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Pinkfloyd
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Re: That EFFIN IDIOT!!!
« Reply #2 on: Apr 12th, 2006, 1:23am » |
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on Apr 12th, 2006, 1:10am, ClusterChuck wrote:Chuck – no longer a clusterhead
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Not the first time I've seen clusters "cured" through re-diagnosis.
I hope you write DJ for special dispensation so you can continue to post here though.
I suppose you could start a new message board for whatever it IS that ails you, but if there's only you, you'll have to spilt your personality to have someone to talk to. 
Here's my take on the diagnosis. He had nothing to offer to treat your clusters, so he gave you something without a name so he can't be held responsible for helping you.
Sorry Chuck, I also had most of those things he said cluster people don't have. If you start a new board, let me know 
Bobw
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Jasmyn
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Re: That EFFIN IDIOT!!!
« Reply #3 on: Apr 12th, 2006, 2:20am » |
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Well, it is good news to know that there is eventually a miracle cure for CH. 
"You just go and see an uninformed professional idiot and Wha-la... you are cured!" 
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Re: That EFFIN IDIOT!!!
« Reply #4 on: Apr 12th, 2006, 3:27am » |
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Chuck, where can I find this guy. I'm 53 get way too many hits, I can drink, and the their getting worse! What the F##k am I doing up at 4:00 am waiting for the next one?
sorry about the disappointment..................tim
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zwibbs/Scott
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Re: That EFFIN IDIOT!!!
« Reply #5 on: Apr 12th, 2006, 5:14am » |
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Cluster Chuck----------This Sounds like a Cluster f**k. If you ever plan to be in New York I have a great Neurologist who deals with several Cluster sufferers. He also runs a pain clinic and whenever I am in his office the other patients swear by this guy. He also treated me for Sciatica which I only had once and I got it from sneezing........That's right...........sneezing. I had quite the year last year ( 2005)- Sciatica then in October the beast paid me another visit.
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chewy
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So what does he want you to do now? Let me guess.
Tommorow you start accupuncture and the chiro is next week ?
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The mad viking
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Re: That EFFIN IDIOT!!!
« Reply #7 on: Apr 12th, 2006, 5:41am » |
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Why am i not suprised Chuck.
Think its best for me to keep my comments for myself here.
Specially about some of the things you told us 
Svenn
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Kevin_M
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Re: That EFFIN IDIOT!!!
« Reply #8 on: Apr 12th, 2006, 5:45am » |
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on Apr 12th, 2006, 1:10am, ClusterChuck wrote:| Guess what!!!! I do NOT have cluster headaches!!! Isn’t that GREAT news??? |
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If this "I don't have clusters" is an excuse to not be at the convention Chuck, you better get more creative than that.
I guess some afflictions never learned to read medical books.
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catlind
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Re: That EFFIN IDIOT!!!
« Reply #9 on: Apr 12th, 2006, 7:37am » |
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What a shame that some doctors, neurologists eve, don't know enough about clusters to know that chronics can drink. I've got a neuro like that too, I believe she said something about clusters only afflicting males over the age of 40. Between her and your neuro, man, no one should ever suffer more than 10 years and of course none of females actually have clusters either.
Sorry you got your hopes up and had them dashed. I've got a 2x4 that can cure you
Cat
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TomM
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Re: That EFFIN IDIOT!!!
« Reply #10 on: Apr 12th, 2006, 7:42am » |
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That is GREAT news! ... now leave this site to us who DO have CH. <tongue in cheek>
Like the rest of us, Dr.s have opinions. Put his in the "A$$hole" column.
Chuck--you know what you've got and I feel your pain. You're mostly pissed b/c of the effort of all the tests, driving, and $$ for a misdiagnosis. I feel your pain.
Vent away.
TomM
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BMoneeTheMoneeMan
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Re: That EFFIN IDIOT!!!
« Reply #11 on: Apr 12th, 2006, 7:58am » |
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Boy, I am so glad there are new rules for CH.
No more than 6 a day.
Just moderate pain, nothing severe.
And thank God that no women suffer from CH.
Doesnt scream, pull hair or get abusive? lol
I wonder what it was that made me bang my head on my brother in law's dashboard this weekend.
hmmmmm
BMonee
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aprilbee
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Re: That EFFIN IDIOT!!!
« Reply #12 on: Apr 12th, 2006, 8:08am » |
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Geez........ I switched neuros last year because I told him about this support group and he asked me if it was just a bunch of old men talking about their headaches....'nough for me...now seeing Dr. Tribbe in OKC...very good neuro and I think treats a lot of people on this board that are in OK....
Good luck, can't believe what is happening to you... 
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Paul98
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Hey Chuck- Feel bad for you with all the wasted time and frustration. To many of the Dr.'s see things in B&W and if it isn't "text book" symptoms it can't be this or that. They may be good at memorizing things but they can't think outside the book learning.
Hang in there!
-P.
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thomas
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Re: That EFFIN IDIOT!!!
« Reply #14 on: Apr 12th, 2006, 8:14am » |
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on Apr 12th, 2006, 1:10am, ClusterChuck wrote:Guess what!!!! I do NOT have cluster headaches!!! Isn’t that GREAT news???
Now, the story BEHIND the story:
My neuro (who is GREAT) thought that I might get some answers, and possibly successful treatment (I’m beginning to seriously doubt that will ever happen, for me) if I were to go to a neuro, who is more specialized in headaches, than she is. Ok, I’m game. Add another name to my huge list.
So, I travel 2 ½ hours, one way, to see this, so called headache genius. I go out there for the initial visit, then two more times for tests, and then, today, for his evaluation. (twenty hours of driving, not counting time spent on the side of the road, dealing with the beast, and hours spent in waiting chairs) Even though I had told myself, not to get too ramped up and excited, I did. Finally a break through? YEEHAW!!!
His brilliant conclusions: I do not have cluster headaches. .. .. .. .. .. .. Ok .. .. .. .. .. .. What DO I have? He has no idea. BUT, he is convinced that I do not suffer from cluster headaches. His reasons? They are as follows:
A person with cluster headaches:
- Has a maximum of 6 hits a day (6, is a light day for me – I get up to 16 a day)
- Only has them on one side of their head, during a cycle (I get them on both sides)
- When they reach 50 years of age, they start to decline, and go away (I have gotten MUCH worse, in the last 6 years {I am 56 years old})
- Responds to at LEAST one of the medications or cocktails that I have tried
- Cannot drink ANY type of alcohol, at all, without it being a trigger (I can drink anything, except beer, wine, or rum)
- Never has an orgasm as a trigger (no comment …)
- Does NOT scream, pull hair, and get abusive, during a bad hit (again, no comment …)
He mentioned a few other, proven traits, that I go against, as for the reason for his wonderful diagnosis. But, I was so pissed, by this time, that I had started to tune him out, so that I didn’t get “abusive” and beat his fucking brains out! He witnessed several hits, including a doozie of a KIP9 (where I screamed, pulled hair, and got abusive to their damn interference). So, for 14 years as an episodic, and now 8 years as a chronic, I have been treated for something I DON’T have. And I didn’t even count the first 6 years, when no one knew what I had, and during which time, I was committed to a psychiatric facility, and then treated as an out patient, to cure me for “pretending” to have pain. So for a total of 28 years that I have had this mysterious ailment, I have been diagnosed and treated wrong, all along.
I know that many of you have witnessed me having one of these “episodes”. I am here to inform you, they were not cluster headache attacks.
Aren’t I LUCKY??? I DON’T have this terrible affliction! LUCKY ME!!!
What a FUCKING IDIOT !!!!!!!!! And this guys is considered to be, and calls himself, a headache EXPERT???? I have been sitting here fuming (and dealing with these mysterious “episodes”) all afternoon and evening, since leaving his office.
I am sorry for the long rant. I just can’t believe that a so called expert can be so fucking stupid and wrong!
Chuck – no longer a clusterhead
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Chuckie dear. I am elated to hear that you don't suffer from this nightmare.
Yeah right! I have seen you get hit, and there is no doubt that it is CH. I am very sorry that you had to go through all of that bull shit.
But this reminds me of behaviour I see HERE almost daily. Some one comes here and talks about their pain and symptoms, and the Gestapo run them off, because their symptoms aren't identical to thiers.
So before people start bashing this obvious quack, perhaps they should look in the mirror.
If any of you are offended by what I said, you can bring it up with me any time you'd like. But you know I speak the truth.
Love you CHuck. 
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Killroy 2.0
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Re: That EFFIN IDIOT!!!
« Reply #15 on: Apr 12th, 2006, 8:20am » |
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on Apr 12th, 2006, 8:14am, thomas wrote:
Chuckie dear. I am elated to hear that you don't suffer from this nightmare.
Yeah right! I have seen you get hit, and there is no doubt that it is CH. I am very sorry that you had to go through all of that bull shit.
But this reminds me of behaviour I see HERE almost daily. Some one comes here and talks about their pain and symptoms, and the Gestapo run them off, because their symptoms aren't identical to thiers.
So before people start bashing this obvious quack, perhaps they should look in the mirror.
If any of you are offended by what I said, you can bring it up with me any time you'd like. But you know I speak the truth.
Love you CHuck. |
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FramCire
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Re: That EFFIN IDIOT!!!
« Reply #16 on: Apr 12th, 2006, 8:30am » |
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on Apr 12th, 2006, 1:10am, ClusterChuck wrote:Guess what!!!! I do NOT have cluster headaches!!! Isn’t that GREAT news???
They are as follows:
A person with cluster headaches:
- Has a maximum of 6 hits a day (6, is a light day for me – I get up to 16 a day)
- Only has them on one side of their head, during a cycle (I get them on both sides)
- When they reach 50 years of age, they start to decline, and go away (I have gotten MUCH worse, in the last 6 years {I am 56 years old})
- Responds to at LEAST one of the medications or cocktails that I have tried
- Cannot drink ANY type of alcohol, at all, without it being a trigger (I can drink anything, except beer, wine, or rum)
- Never has an orgasm as a trigger (no comment …)
- Does NOT scream, pull hair, and get abusive, during a bad hit (again, no comment …)
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Here's some good news for everyone.
7% of us don't have CH (7+ hits a day)
19% also dont (on both sides, not just 1)
2% Started at age 50, so they had to get worse from nothing
22% say that no abortives work/46% say no preventatives work
74% drink alcohol (it can't be a trigger for all of them)
So, by my estimation (re: guess) at least %50 don't have CH according to 1 of the reasons your doc gave.
If to get disgnosed with CH we had to all conform to the same symptoms, duration, treatment, and frequency... would any of us have CH?
My advice, go back to the old Dr. and laugh this guy off. Yes you spent too much time and effort to see this clown, but don't waste any more of your time being angry at him.
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Jimi
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Re: That EFFIN IDIOT!!!
« Reply #17 on: Apr 12th, 2006, 9:33am » |
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Well I have seen you get hit and you DO have cluster headaches. What was his answer to why 02 will abort them after 15 minutes?
Oh BTW, you owe me $200 for the diagnosis.
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Goblin
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Re: That EFFIN IDIOT!!!
« Reply #18 on: Apr 12th, 2006, 11:22am » |
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He isn't a Headache specialist he is a pain in the arse specialist.
I saw the video clip of your attack and If your hit there was anything like that and he still said you don't have CH then he might as well be a freaking horse doctor!
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Sandy_C
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Re: That EFFIN IDIOT!!!
« Reply #19 on: Apr 12th, 2006, 2:05pm » |
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Chuck
I'm so glad you don't have CH. What a freaking miracle!
Seriously though, I'm sorry you had to waste so much time and money on a "headache specialis" that doesn't know his CHead from his A$$hole. Since his diagnosis was not on the money, why not refuse to send him any money for his diagnosis???
Hang in there buddy. We're still here for you CH or no CH.
Sandy
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Donna_D.
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Re: That EFFIN IDIOT!!!
« Reply #20 on: Apr 12th, 2006, 2:08pm » |
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I posted this in another thread, I just want to make sure Chuckie sees it...LOL!!
http://www.digitalfilms.com/play.php?id=737960
DD
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Dragnlance
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Re: That EFFIN IDIOT!!!
« Reply #21 on: Apr 12th, 2006, 2:36pm » |
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I had something simular.
Doc told me I couldnt have CH because
1) I dont smoke
2) I dont drink
3) not overweight
4) I am active outdoors
5) do not have an "addictive personality"
WTF???? If the problem lies with a malfunction in the hypothalamus, what do personal habits have to do with anything???
I understand how you feel CHuck
Dragn
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Charlie
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Re: That EFFIN IDIOT!!!
« Reply #22 on: Apr 12th, 2006, 6:31pm » |
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Wonderful news Chuck.....
Perhaps you can post the address so we can find him and pound him to dust.
So sorry Chuck...
Charlie
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Sean_C
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Email him your link of the hit, then ask him what he thinks.
Nothing worse than a doc that says "next" as your walking out the door 
Keep your hopes up Chuck, it still could be worse.
Sean....................................
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Jonny
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Re: That EFFIN IDIOT!!!
« Reply #24 on: Apr 12th, 2006, 9:36pm » |
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Shut up........get even, kill him
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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