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Topic: It is official!!!! (Read 231 times) |
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Ghost
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It is official!!!!
« on: Apr 5th, 2006, 10:05am » |
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Lil spooky Son of ghost has Sinus Ha's, Migranes, And CH!
Doc is a baffoon!!!!!!
He said O2 on works on less than 30% of CH sufferers and perscribed freakn high dose motrin, and sudafed!!!!!!!!!
No trex , said it is better to treat symptoms and the rest will take care of its self!
Un FREAKN BELIVABLE HUH !!!!!!!!!!!!!
Better stop now b4 i explode !!!!!
Mike
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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Melissa
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Oh Mike I'm so sorry.  and the doc is a flippin tard! 
You gonna get him into a neuro or was it a neuro he saw?
Damn, that just sucks.
hugs,
mel
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Gator
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Re: It is official!!!!
« Reply #2 on: Apr 5th, 2006, 10:20am » |
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Damn sorry to hear this, Mike.
 What a loser! I hope the new doctor you are getting has more on the ball than this moron. Maybe you can shove a burning popsicle stick in his eye and give him a motrin for the pain. 
Mike
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Ghost
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Re: It is official!!!!
« Reply #3 on: Apr 5th, 2006, 10:27am » |
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on Apr 5th, 2006, 10:11am, Melissa wrote:Oh Mike I'm so sorry. and the doc is a flippin tard!
You gonna get him into a neuro or was it a neuro he saw?
Damn, that just sucks.
hugs,
mel |
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This was the neuro.
He is Freakn lucky I didnt go with him to the appt!
I would have shoved something in his eye but it probably would have been my arm!!!!!
He claims to have several ch sufferers under his care but if that is true I feel sorry for them. Bad part is wife is following his instructions because he is after a doc and knows what he is doing!
Im ok ill just sit down now and not follow the desire to drive to his office and throttle him.
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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rickyshot
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Re: It is official!!!!
« Reply #4 on: Apr 5th, 2006, 10:47am » |
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Oh God.
Welcome to the ch , migraine, sinus suffers club. Makes us wonder should be get up in the morning sometime.....
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Linda_Howell
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Re: It is official!!!!
« Reply #5 on: Apr 5th, 2006, 11:13am » |
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Quote:| Bad part is wife is following his instructions because he is after a doc and knows what he is doing! |
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I hope you'll start by educating your wife. Your son deserves to be treated properly & NOT with high doses of Sudafed and Motrin.
BTW....Oxygen works for 70% of CH sufferers. Not 30%
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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aprilbee
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Re: It is official!!!!
« Reply #6 on: Apr 5th, 2006, 11:18am » |
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My daughter was diagnosed with migraines at 10 yrs old...I know what you're going through, I see patterns in her that make me think CH...took her to a childrens' neuro he takes awesome care of her and reads all I bring him and LISTENS to me....stay on top of your doc, or switch to a children neuro maybe...Gosh, I'm sorry, I know how bad it sucks to watch your child suffer....hang tough... 
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sandie99
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Re: It is official!!!!
« Reply #7 on: Apr 5th, 2006, 11:30am » |
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Mike,
I'm so sorry to hear that... It's horrible that the beast attacks so young people, too...
I hope that you'll find a doc who can help him out.
Best wishes & PFdays,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Ghost
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Re: It is official!!!!
« Reply #8 on: Apr 5th, 2006, 11:53am » |
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on Apr 5th, 2006, 11:18am, aprilbee wrote:| My daughter was diagnosed with migraines at 10 yrs old...I know what you're going through, I see patterns in her that make me think CH...took her to a childrens' neuro he takes awesome care of her and reads all I bring him and LISTENS to me....stay on top of your doc, or switch to a children neuro maybe...Gosh, I'm sorry, I know how bad it sucks to watch your child suffer....hang tough... |
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Thats the problem he is a childrens Neuro. AND an IDIOT!!!!! ok calming down again. Got to remember If I kill him I cant help my son!
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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LeLimey
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Re: It is official!!!!
« Reply #9 on: Apr 5th, 2006, 12:47pm » |
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Well childrens neuro's are often the least educated in terms of CH of them all. Even if you are lucky enough to get a HA specialist neuro many of them still believe that women and children don't get CH.
You need a second and EXPERT opinion, not on the fact that lil spooky is a ch'er but for his treatment.
My own opinion is that any child presenting with CH should be tried on O2 as a first treatment and if that works, nothing else. It's the least invasive and potentially harmful to a young body as well as being highly effective.
I had the same experience with Jaspers first neuro who not only refused to refer Jasper to PG as he "had never heard of him" (A HA specialist?!!) but he then refused to treat Jasper anymore leaving him without any care whtsoever.
Thank God lil Spooky has you and all of us, his "other" family! Speak to Donna, see if she knows of a better paediatric doctor in your area.
We're all here rooting for you all
Helen xxx
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Dragnlance
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Re: It is official!!!!
« Reply #10 on: Apr 5th, 2006, 3:05pm » |
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Hey Mike, you seem to have found one of my old doctors!!
I dont go to him any more either! 
One of my docs actually perscribed Motrin 1200 for me. (like that was going to work)
Sorry to hear you got one like that.
Remember, Doctors and Lawyers don't have a business, they have a
Lance
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Jasmyn
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Re: It is official!!!!
« Reply #11 on: Apr 5th, 2006, 3:20pm » |
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Sorry Lil'Spook that your first neuro is such a ding-head!
Rest assured that most of us have seen one or two of those in our lifetime.
Like Helen said, thank goodness you have this extra headbanging family and your Dad.
Old Goat, I feel your anger man! That so-called professional deserves some one sided eye treatment!
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Jazz
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yikes-another-one
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Re: It is official!!!!
« Reply #12 on: Apr 5th, 2006, 7:52pm » |
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Okay, but have you been keeping a journal???
It is the pattern over time,
the sudden onset...the sudden disappearance...
and the return....these are what it took to
connect the dots for you, and same for him.
Hopefully you find a competant doc,
willing to listen...
I think it is more genetical than statistics show,
only because they aren't really tracking any of us,
are they????
big hugs,
here's hoping oxygen works.
Remember, they hesitate to precribe it,
only because the HMO won't pay for it...
but you can override it and demand the RX
it's worth it if it works.
i am med free, and doc free...
and surviving...
mainly I do deep breathing exercises
for levels 5 thru 8...
after a level 8 i just pace and chant.
(I can't remember my name
or how to count, so i give up then.winks.)
Best wishes for speedy resolution.
TJ
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Charlie
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Re: It is official!!!!
« Reply #13 on: Apr 6th, 2006, 2:15am » |
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Quote:| Bad part is wife is following his instructions because he is after a doc and knows what he is doing! |
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A doctor of what? All Aruba education? The guy's an idiot. I've been to at least 7 neurologists and 5 of them are certifiable. It's a kind of nerd specialty to some, I guess.
Sorry to learn this Mike. I can only echo what others have said and how incredibly shitty it is for any kid to have to deal with this horror. 
Charlie
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