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Topic: 40 Days & 40 Nights... A Happy Anniversary. (Read 274 times) |
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Carl_D
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40 Days & 40 Nights... A Happy Anniversary.
« on: Mar 26th, 2006, 10:05pm » |
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Today marks 40 days I have been CH free. I have not had this long of a consecutive CH free period w/o the aid of alternate therapy, but the only thing I can attribute this to is the Verapamil, which my Doc has been generously upping each month, but I think I have reached the limit of what I can take right now. He initially started upping it due to high BP, though the CH's started slowing down in December; with a few mass spurts.
It was around this time 8 years ago I went chronic and the Verapamil that had been my salvation since 1994/95 when I went to the MHNI in Michigan quit working. It worked up until 1998 when it lost its effectiveness. So, it is a happy anniversary. I hope and pray it continues to work. So, is it too early to declare myself episodic again? 
Still battling other physical probs, but my last doc appointment a month ago, my test results actually showed that the sleep deprivation has been affecting my immune system, thus the reason I have stayed sick. So, he began a full-on assault on the insomnia. I have been taking a double dose of Ativan at night, along with Lunesta and ReQuip for RLS. So far, I have got more sleep in one month than in the last six! Though this week I did have 3 sleepless nights - and man did I feel like a zombie the next day at work. I have to admit though, I feel much much better than I have in a long time. The only plague disturbing me is migraines, which I used to only get on occasion, but Frova has been doing a good job to help combat them. So, I have been keeping busy busy busy. I have 8 years to catch up on. 
Peace & Love,
Carl
PS - I'll try to pop in when I can, but right now I am among the 66 million addicts to myspace.com, so it takes up alot of time maintaining two pages - my personal page and my music page.
*edited because I am a moron
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| « Last Edit: Mar 26th, 2006, 10:26pm by Carl_D » |
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Kevin_M
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #1 on: Mar 26th, 2006, 10:24pm » |
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Glad to hear the good results with verapamil again Carl.   
and with some sleep too. 
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Jimi
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #2 on: Mar 26th, 2006, 11:26pm » |
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Yeah Carl. I'm with Kevin. That is great news. Congratulations on 40 days and here's to 40 more.!
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kimmiedawn81
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #3 on: Mar 27th, 2006, 12:38am » |
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That's awesome news Carl.....congrats!
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sandie99
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #4 on: Mar 27th, 2006, 2:47am » |
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Congrats, Carl! 
It's fantastic to hear that you've been PF. I hope for
lots of more PF days your way! And that the docs can sort out your other probs as well. Enjoy now!
Best wishes,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
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LeLimey
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #5 on: Mar 27th, 2006, 3:06am » |
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Nope. I disagree with Jimi and I will NOT wish you 40 more. No way.
You can have 21 and then check in again for a top up! That way we know you are still in the land of the living you little shit! how long does it take to stick your head in the door and say hello? 21 days is all you're getting from me brat!
(Very pleased about the forty though!)
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Charlie
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #6 on: Mar 27th, 2006, 3:34am » |
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What else is there to say Carl?
Fantastic start for the beginning of your next 90 decades of PF.
Charlie
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juvy
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #7 on: Mar 27th, 2006, 4:34am » |
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good to see you're finally getting some rest. I hope your relief lasts. take care.
April
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zwibbs/Scott
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #8 on: Mar 28th, 2006, 12:47am » |
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Carl---that is wonderful. I have been pain free since December and it was a mix of Prednisone and Verapamil. Started hign on Prednisone---low on Verapamil then slowly switched it the other way around.
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nani
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #9 on: Mar 28th, 2006, 10:05am » |
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YAY!!! 
According to the guidelines, bro...
you are officially an episodic now. I'm so happy that you got a break. I hope it continues forever...
hugs, nani
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jimmers
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #10 on: Mar 28th, 2006, 10:13am » |
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way cool!
jimmers
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Gator
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #11 on: Mar 28th, 2006, 11:00am » |
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Absofuckinglutely fabulous. Congrats on the 40 days. May it become a full and permanent remission.
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Jasmyn
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #12 on: Mar 30th, 2006, 8:06am » |
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Great news Carl! 
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fubar
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #13 on: Mar 30th, 2006, 12:12pm » |
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Carl,
Do yourself a favor and write notes to yourself about how wonderful this feels. Save them for when you're feeling desperate, if that ever happens again. You need prrof that this is real, and right now you can build your fortress. Arm yourself for the next fight, and we'll all pray that it doesn't happen again. Your best friend is you.
-Shawn
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Carl_D
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #14 on: Mar 30th, 2006, 6:18pm » |
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*snif* thanks you guys and gals.
Quote:YAY!!!
According to the guidelines, bro...
you are officially an episodic now. I'm so happy that you got a break. I hope it continues forever...
hugs, nani |
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WOOOOOOOOO HOOOOOOO!!!!! I'm rockin' now!!!
Thanks Nani 
Quote:| 21 days is all you're getting from me brat! |
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Whoah Limes - what's wit da hostility? I'm sorry I ain't been around much but believe it or not, I've truly been busy. When you go through periods of neing unable to do anything, and then get a break - I have been doing everything I can every moment I can. Life is pretty good right now. Gimme at least a 23 day extention so it covers my birthday and then the birthday hangover.
Quote:Carl,
Do yourself a favor and write notes to yourself about how wonderful this feels. Save them for when you're feeling desperate, if that ever happens again. You need prrof that this is real, and right now you can build your fortress. Arm yourself for the next fight, and we'll all pray that it doesn't happen again. Your best friend is you.
-Shawn Carl,
Do yourself a favor and write notes to yourself about how wonderful this feels. Save them for when you're feeling desperate, if that ever happens again. You need prrof that this is real, and right now you can build your fortress. Arm yourself for the next fight, and we'll all pray that it doesn't happen again. Your best friend is you.
-Shawn |
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I've been doing it. I am also back to writing more, and working on music more + a job I've had the last 2 months. I can look at my early blogs on myspace when things were shitty as a reminder of what I just went through a few months ago, and the blogs I am writing now will remind me that life can once again be good. Honestly though, I need no reminders. Those days and nights haunt me. The beast somewhere...waits.
But to hell with him.
One downer this week. I've had a bad cough for 6 months now and my doc monday took x rays and did a PFT lung capacity test and in short, I clinically have the lungs of a 60 year old, I have lost a quarter of my lung capacity and now have emphysema. Ahhhhh Shiiiiii....
Not gonna freak though. I am quitting smoking, starting to work out, on new meds and an inhaler. So next month when I turn 36 my lungs will turn 61. 
Not letting it get me down though. I have siblings to do that for me.
Hope y'all are well,
Carl
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LeLimey
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #15 on: Mar 30th, 2006, 6:41pm » |
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Nope no extensions Carl!
You have to come back BEFORE your birthday so we can wish you a happy birthday numpty! DURRRRR!!! 
That means you have to be back here in 18 days (AT LEAST!) for your top up. Think of me as a probation officer! 
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Carl_D
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Re: 40 Days & 40 Nights... A Happy Anniversary
« Reply #16 on: Apr 1st, 2006, 12:38am » |
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Oh sugar, I''ll be around. Especially since I don't have to risk baring my soul in moments of weakness.
Speaking of baring my soul, James Brown say "HI!"
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