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Topic: No more PF days... (Read 230 times) |
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sandie99
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No more PF days...
« on: Mar 22nd, 2006, 2:48pm » |
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...because the beast is back. 
I've had symptoms since the dentist appointment on Thursday. But, being the Miss Optimistic who I am, I kept on telling myself that what I'm experiencing is just reaction to the dentist appointment and nothing more.
Well, major hit on Monday, 3 on Tuesday, 2 today... I can't keep on lying to myself anymore. PF time is over for the time being and I have to face the fact that the devil is here again. 
I can't say that I'm happy about this... But I'm not devastated, sad, depressed, angry or afraid. I'm just... frustrated. I really don't have the time to suffer from ch right now. But CHit happends. We all know that the beast doesn't respect plans, it does what it likes and it comes and goes like it wants to. And I've decided to carry on living inspite of it.
And I've decided to kick the beast without meds as much as I possibly can. I know that lots of folks in here have dealed with the devil without them and all the suggestions and advices you guys have will be appreciated. 
I wish PF time to all my sisters & brothers in pain. Together we fight!
Best wishes & PF time to us all,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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alchemy
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get out of my head
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Re: No more PF days...
« Reply #1 on: Mar 22nd, 2006, 2:50pm » |
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sorry to hear the beast is back, hang in there jim
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Melissa
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Awesome optimism Sanna!  You'll make it through sweets, I know you will. 
As for me, I went med free last cycle just taking Kudzu as a prevent and O2 to abort. It was actually a pretty mild cycle when I got the Kudzu dosage right and ordered a Clustermasx.
If there's anything I can do, let me know!!
 mel
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maffumatt
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your stronger than it, it sounds like you have the upper hand on the situation. Keep that outlook, cause it suits you.
Matt
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imnotbub
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Re: No more PF days...
« Reply #4 on: Mar 22nd, 2006, 2:58pm » |
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Med free = 02 and Red Bull. Heres to hoping it's a short cycle.
Kick it's ass Sanna,
Steve
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Life may not be good, but I think it beats the alternative, and if it doesn't, we'll find out soon enough
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sandie99
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Re: No more PF days...
« Reply #5 on: Mar 22nd, 2006, 3:01pm » |
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I hope so very much that I'm back being episodic, though... But episodic or chronic, at least I have access to my support group daily and skype works, yahoo!
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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echo
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Re: No more PF days...
« Reply #6 on: Mar 22nd, 2006, 3:10pm » |
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Hope this is a short visit. Sorry to read that the beast is back.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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vig
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Re: No more PF days...
« Reply #7 on: Mar 22nd, 2006, 3:12pm » |
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we're here for you...
plenty of people to lean on.
be strong Sanna
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never, Never, NEVER quit. -Winston Churchill
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pattik
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Re: No more PF days...
« Reply #8 on: Mar 22nd, 2006, 3:16pm » |
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on Mar 22nd, 2006, 2:48pm, sandie99 wrote:
But, being the Miss Optimistic who I am, I kept on telling myself that what I'm experiencing is just reaction to the dentist appointment and nothing more. |
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..and here I thought I was the only queen of denial.
I know your frustration, cause there is no good time to have a CH episode reappear. I'm just hope you will lean on us as much as you need to. Fight the good fight! Pat
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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seasonalboomer
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Re: No more PF days...
« Reply #9 on: Mar 22nd, 2006, 3:27pm » |
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.......yeah, it was probably just a couple of those "stray hits" and not really a "cycle".............I've used that one on myself before.
I've been pretty lucky without the meds using Kudzu, red bull and O2 too. But, there are some hits where "med-free" is over-rated and a good ole' shot of trex can be the difference between a night's sleep and your "med-free girl scout badge". 
Scott
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Charlotte
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Re: No more PF days...
« Reply #10 on: Mar 22nd, 2006, 3:29pm » |
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I'm sorry it's back.
Second by second, minute by minute.
You have the right attitude, but I'm still sorry.
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tanner
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Re: No more PF days...
« Reply #11 on: Mar 22nd, 2006, 6:40pm » |
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Sanna, you are one of the strongest out there
but just in case you need a little help..............tim
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Jasmyn
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Re: No more PF days...
« Reply #12 on: Mar 22nd, 2006, 6:44pm » |
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A Bear Hug to you Girl! You hang in and hang on, may this one be short.
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Jazz
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nani
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Re: No more PF days...
« Reply #13 on: Mar 22nd, 2006, 6:58pm » |
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I'm praying it was just a reminder, and not a cycle, girl. You stay strong and tough. I know that, deep down, you're a bad-ass.  Let us know what you need and we're there.
hugs and love, nani
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Charlie
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Re: No more PF days...
« Reply #14 on: Mar 23rd, 2006, 12:51am » |
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Sorry that this thing is back but since you want to fight this horror without meds; try my technique. It has worked and the worst thing that can happen is that it won't. Keep trying it though. That's how I found out that it helped:
I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.
I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.
Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.
This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.
Charlie
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Kate in Oz
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Re: No more PF days...
« Reply #15 on: Mar 23rd, 2006, 7:42am » |
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 Sanna I'm really sorry to hear that you're getting hit.
Does sounds like you've got a good attitude tho' and that's gotta help some.
Goodluck with the no-meds, I'm hoping and praying for you that it will be a short cycle.
PFDAN
Kate
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Cathi04
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Re: No more PF days...
« Reply #16 on: Mar 23rd, 2006, 7:54am » |
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Changing your name to Toughie, Sanna! I sux t hat the beast has decided to visit you, but if anyone has their artillery ready and attitude blazing , it is YOU!
You know where to find us, and you should let us know how you're feeling, then lean when it gets tough, we will send you more strength!
Hang tight, girl...and show him who's boss!
Cathi
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Dragnlance
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Re: No more PF days...
« Reply #17 on: Mar 23rd, 2006, 9:01am » |
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Hey Sanna, You have been here for us so much, we are now here for you.
I was med free for most of my life. Here are some things I use.
Slam some kind of energy drink, like RedBull. (i have tried lots of others, but RedBull seems to work the best)
An herb tea, called "Thinko2. (it has ginko in it, which is supposed to help bring oxygen to the brain)
Kudzu Extract has been amazing. (I use Solaray, as it has 150 mg kudzu Extract, while the other I can get locally does not have much in it at all.)
O2 is something you should have.
I have tried the immetrex injection for the very first time this weekend. It took over 20 min for the hit to break, but finally did.
We are here for you, Sanna. You can do this.
Lance
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sandie99
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Re: No more PF days...
« Reply #18 on: Mar 23rd, 2006, 12:45pm » |
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Thank you all so much for your support and advices!
I've saved Charlie's method and that beautiful angel Tim posted. I'm thinking about stocking up Red Bull... It will be interesting to see how I react to it as I don't have caffeine in my diet. Can't wait to kick ch fairwell!
Wishing everyone PF time,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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LeLimey
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Re: No more PF days...
« Reply #19 on: Mar 23rd, 2006, 2:03pm » |
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The red bull is definitely worth a try Sanna and if you don't use O2 already.. get some" Its a life saver.
You'll be fine, you have a healthy attitude and you have us and you have my deepest wish that Nani is right and this was just a grumbling from afar.
Stick with us Sanna, we'll stick right by you too.
lots of love
Helen xxx
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Lizzie2
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Re: No more PF days...
« Reply #20 on: Mar 23rd, 2006, 2:53pm » |
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Hey Sanna!!
I'm sorry to hear the beast found your address again!! Couldn't have happened to a nicer person.... 
If you need anything, even if just to vent on MSN or whatever, just let me know!! Sometimes I'm asleep but my messenger is logged on, but if I'm awake and here, I'll answer it!! I'm often awake at all kinds of odd hours, so I may even fit your time zone...
Hugz and I sure hope the beast pays a very BRIEF visit for you!!
Carrie
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marlinsfan
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Re: No more PF days...
« Reply #21 on: Mar 23rd, 2006, 3:31pm » |
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I wish you a record-short cycle, Sanna. You're always here for us, please know we're here for you.
If I could take the beast away from you, believe me that I would. We stand behind you, and fight along with you.
PFDANs
Jose
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sandie99
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Re: No more PF days...
« Reply #22 on: Mar 24th, 2006, 11:34am » |
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The beast has picked three times it likes to attack this time around... Interesting. I hope that it's a sign that I'm episodic again and that the cycle ends in a few weeks/months time. 
Carrie, thank you. I'll bug you sometime soon, I'm sure of that.
Charlie, thanks once again for sharing that method. It helped me a lot last night! I got hit 23.45 and with the help of that technique I was PF at 23.55! It was hard to concentrade (I had a kip  , but it worked wonders!
Best wishes & PF days,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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