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Topic: CH poem by our daughter (Read 171 times) |
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minnie
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my greatest joys are my daughters April & Beth
 
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CH poem by our daughter
« on: Feb 15th, 2006, 9:54am » |
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A poem by our Daughter April
When I'm outside or all tied up It creeps over like it wants to creep over my shoulder
You cry sometimes you wish it would die  . When I see this happen I wish it would go but we all
no. It slowly creeps away. All we can do is hope it doesn't come another day,for if it does All I can say
is it will slowly creep away.
Dear C.H. I don't get these headaches but I have seen it enough
times with my Dad (BillyJ) I know what it's like. Even for a 9 year old it still makes me sad All I can
say is it's OK 
Sincerly
April Billyj's 9 year old
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| « Last Edit: Feb 17th, 2006, 5:33pm by minnie » |
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Friends are Angels who lift us to our feet when our wings have trouble remembering how to fly
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You may only be one person to the world
but you may also be the world to one person.
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E-Double
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Are we ourselves?
 
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Re: CH poem by our daughter
« Reply #1 on: Feb 15th, 2006, 9:55am » |
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I still say the worst pain is knowing our loved ones feel its effects
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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PollyPocket
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Someone I am is waiting for my courage.
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Re: CH poem by our daughter
« Reply #2 on: Feb 15th, 2006, 9:57am » |
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If I could, I'd come there and wrap my arms around you and give you a kiss on your cheek and a great big HUG. 
Jen
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
"If I don't remember it happening, it never happened. " - Tori
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Carl_D
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Re: CH poem by our daughter
« Reply #3 on: Feb 15th, 2006, 10:05am » |
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Thanks April. You're right - it does slowly creep away. All we can do is hope for the day it has crept away for good. 
Peace,
Carl D
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The mad viking
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Always Look on The Bright Side of Life
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Re: CH poem by our daughter
« Reply #4 on: Feb 15th, 2006, 10:08am » |
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Have asked myself this question many times over the years.
Who has the worst pain of us?
We the clusterheads or our loved ones?
After all they just stay there and can do shit to help us no matter what they do.
Just watch us and thats about it.
If you ask me that has to be PAIN
Minnie,i also read your daughters poem as a tribute to our supporters who are priceless for us.
Hope you dont mind that
LOVE IT
Svenn
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Always Look on The Bright Side of Life
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: CH poem by our daughter
« Reply #5 on: Feb 15th, 2006, 11:16am » |
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on Feb 15th, 2006, 9:55am, E-Double wrote:| I still say the worst pain is knowing our loved ones feel its effects |
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Amen to that. That's why I've protected mine as much as possible.
April, thank you for that poem. Minnie, thanks for sharing it with us. 
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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no-one
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aude sapere cogito ergo disce pati
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Re: CH poem by our daughter
« Reply #6 on: Feb 15th, 2006, 11:31am » |
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April,
I love your poem, thank you for writing it for us. It means alot to us to have someone that we care about understand,what we are going thru. I just hate it that you have to watch Daddy getting hit. I know it hurts you as much as it does him.
B
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"Be who you are and say what you feel...Because those that matter....don't mind....And those that mind....don't matter."
Man is what he believes. Anton Chekhov
Unless you believe, you will not understand.
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nani
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Re: CH poem by our daughter
« Reply #7 on: Feb 15th, 2006, 12:14pm » |
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That's beautiful writing, April. I'm so sorry that you and your sisters have to watch Daddy have such a hard time. Naturally, I'd like to publish it. Please let me know if it's OK with you and your parents.
hugs and love to you and Beth, nani
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Others may come and go, but MY power is MINE.
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burnt-toast
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Re: CH poem by our daughter
« Reply #8 on: Feb 15th, 2006, 1:05pm » |
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Thanks for the lovely poem April,
CH does have a tendency to be as hard on the ones we love as it is on us.
Unfortunately, all to often we suffers fail to recognize this fact and need to be reminded.
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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aprilbee
CH.com Alumnus
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Ain't I a stinkah!!
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Re: CH poem by our daughter
« Reply #9 on: Feb 15th, 2006, 1:41pm » |
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Awesome poem April...you are such a special girl...
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Charlie
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Re: CH poem by our daughter
« Reply #10 on: Feb 15th, 2006, 6:43pm » |
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Nicely done!
I have to agree. I'll never get over seeing another have a cluster attack. It's no wonder that we have to just about tackle bellhops and security guards when they see one for the first time. 
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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