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   Author  Topic: Heart Survey  (Read 309 times)
floridatwo
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Heart Survey
« on: Feb 5th, 2006, 9:17pm »
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My wife ,who has been my life line during the last 20+ years of clusters, has a theory concerning the headaches. I had a heart attack 3 years ago and had to have 2 stints implanted. Immediately afterward, no more clusters after suffering since 1977. I recently had a little problem and was told the stints are about 30% clogged and may need replacement down the road. Guess what?? The clusters started again the middle of January 2006. Could there be a connection between circulation and clusters??
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florida42
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Re: Heart Survey
« Reply #1 on: Feb 5th, 2006, 9:34pm »
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Hmmm... I constantly have really cold hands & feet and a problem with varicous veins (all signs of circulation issues)
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Re: Heart Survey
« Reply #2 on: Feb 5th, 2006, 9:44pm »
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I came up with a theory about 6 or 7 years ago that maybe the reason they cannot find the cause of clusters is because the head is merely suffering the symptom of  a problem elsewhere in the body. If it is a vascular condition, could it be possible that the cause is maybe some minute flaw in the heart that goes undetected? (I talked the ears off a few people at convention in Nashville about my theory).  
 
I know there have been a couple of CHers who had heart issues and afterwards their CH's went away. So, this makes me question even more the possibility that the head is suffering the symptom of a problem elsewhere, most likely the heart.
 
Peace,
Carl D
 
 
*I have to add, I also have some circulation problems, and some major leg issues due to poor circulation. Hmmm.
« Last Edit: Feb 5th, 2006, 9:46pm by Carl_D » IP Logged
Jasmyn
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Re: Heart Survey
« Reply #3 on: Feb 6th, 2006, 12:04am »
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I'm the ice queen when it comes to cold hands and feet, so far with all the test done, no heart problem has been identified but it makes you wonder.
 
Like Carl said maybe some minute flaw?
 
Then again there are other symptoms that do not correlate with only a heart condition.
 
I hope someone finds the cause soon so that an active solution can be found.  It is good though to explore all avenues of probable cause.
 
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Re: Heart Survey
« Reply #4 on: Feb 6th, 2006, 3:05am »
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Well, I haven't had problems with my heart, yet, but my hands and feet are always cold. Even in the sauna!
When I was first diagnosed, that neuro said that cold hands and feet and ch are part of the same thing and that it's "a blood circulation thing". That was the official theory about ch in Finland in January 2002. Don't know it they have changed their minds since...
 
Sanna
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Re: Heart Survey
« Reply #5 on: Feb 6th, 2006, 3:28am »
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My CHer had  a stent put in Sept. 2004.  He also has w/o medication so pretty bad cholesterol.  As I said before he had a three or four day off after surgery and for him that is a vacation from clusters.
 
I don't know.....I know I am not a Dr. but there has to be some common thread that everyone is missing.
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Re: Heart Survey
« Reply #6 on: Feb 6th, 2006, 7:24am »
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This page deals with some of those observation and questions:  
 
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Anticoagulan ts
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PollyPocket
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Re: Heart Survey
« Reply #7 on: Feb 6th, 2006, 8:04am »
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ummm,   I have a heart murmur.  And in '83 or '84, damn near got frostbite to both feet.  Haven't been able to keep my feet warm since.  First known cluster cycle began in Oct '85.
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floridatwo
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Re: Heart Survey
« Reply #8 on: Feb 6th, 2006, 9:13am »
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on Feb 6th, 2006, 7:24am, floridian wrote:
This page deals with some of those observation and questions:  
 
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Anticoagulan ts

 
Thanks for the WEB site Floridian. I've been taking 7 mgs of coumadin daily due to problems with blood clots for 3 years. Blood stays pretty thin and yet CH's returned. Still might be something to do with circulation.
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florida42
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Re: Heart Survey
« Reply #9 on: Feb 6th, 2006, 9:32am »
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Yeah, I wouldn't say that thick blood is the cause, just that it aggravates or contributes to the clusters.
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aprilbee
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Re: Heart Survey
« Reply #10 on: Feb 6th, 2006, 9:47am »
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I had a heart murmer as a teenager, never made a difference to my headaches...(I've had them since I was 12) my hands and feet are always hot...???? Undecided  (there's an exception to every rule though..) might be interesting research...
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Re: Heart Survey
« Reply #11 on: Feb 6th, 2006, 11:36am »
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Wasn't there a study posted on the board a while back, suggesting a correlation between, not only CH patients and heart defects but migraine patients as well?
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Re: Heart Survey
« Reply #12 on: Feb 6th, 2006, 11:46am »
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on Feb 6th, 2006, 11:36am, Gena wrote:
Wasn't there a study posted on the board a while back, suggesting a correlation between, not only CH patients and heart defects but migraine patients as well?

 
There's a bunch of stuff on it online. I can't ever use the search on this board, so Google patent foramen ovale and migraine
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Re: Heart Survey
« Reply #13 on: Feb 6th, 2006, 12:02pm »
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Thanks Nani
 
I found this
 
http://www.w-h-a.org/wha2/NewSite/print.asp?idContentNews=791
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Re: Heart Survey
« Reply #14 on: Feb 6th, 2006, 2:35pm »
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Quote:
who has been my life line during the last 20+ years of clusters

 
If you've been at it for 20+ years, I would guess that you are old enough that your cluster cycles may just be changing and it has nothing to do with your heart.
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Re: Heart Survey
« Reply #15 on: Feb 6th, 2006, 3:12pm »
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I have no heart issues at all.
TomM
 
Edit: I'm also 43, have normal BP, very low cholesterol [139] but am a tad on the heavy side; 5'10" @ 212 lbs.
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135447360 135447360   mondocharlie   mondocharlie
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Re: Heart Survey
« Reply #16 on: Feb 7th, 2006, 11:31am »
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I have a theory that when serious trauma, childbirth, or big deal surgery take place, the body shifts to some form of high gear for self-preservation. This may be what happens but there is no way of proving it. I do know that it isn't ethereal or some form of wishful thinking; it's physical.
 
Just something to think about.
 
Charlie
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