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Topic: A big thank you to all (Read 682 times) |
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Opus
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A big thank you to all
« on: Jan 30th, 2006, 6:32pm » |
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who helped with the Cluster Headaches Wikipedia article.
It is obvious that some people from this group had a large part to play in it's factual presentation of Cluster Headaches.
Opus/Paul
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| « Last Edit: Jan 30th, 2006, 9:55pm by Opus » |
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Zed-Zed-nine plural-Zed alpha,
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E-Double
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Re: A big thank you to all
« Reply #1 on: Jan 30th, 2006, 7:20pm » |
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Did I miss something?
It seemed pretty well written.
I guess we can add to it pictures of us sucking O2 to make it more graphic
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Sean_C
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Re: A big thank you to all
« Reply #2 on: Jan 30th, 2006, 8:02pm » |
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Are those stats right? 4 in every 1000 people suffer from CH? That would mean 208 people have clusterheadaches in my home town? I have never met one if there even is one. I went 23 years without ever meeting/seeing/talking/ or knowing anyone who knew anyone with Ch, that stat has to be wrong. 
Sean........................................
That would also mean in the worse case scenario 120,000 people suffer from clusterheadaches in the United States? Can't be right guys.
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| « Last Edit: Jan 30th, 2006, 8:09pm by Sean_C » |
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Jonny
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Re: A big thank you to all
« Reply #3 on: Jan 30th, 2006, 8:13pm » |
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on Jan 30th, 2006, 8:02pm, Sean_C wrote:Are those stats right? 4 in every 1000 people suffer from CH?
Can't be right guys. |
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It seems their stats are way off
" CH is a rare neurological disorder, affecting approximately 0.1% of the population"
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Sean_C
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Re: A big thank you to all
« Reply #4 on: Jan 30th, 2006, 8:22pm » |
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0.1% is 1 in a thousand no? I have no idea, remember it takes me 185 seconds just to read the dumbass trivia, and another 100 seconds to figure out which dot to check off  Just doesn't seem right thats all .
Sean...................
(sp)
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| « Last Edit: Jan 30th, 2006, 8:23pm by Sean_C » |
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Jonny
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Re: A big thank you to all
« Reply #5 on: Jan 30th, 2006, 8:26pm » |
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I believe I read many times (But dont quote me) that its 1 in 69,000
Im searching for it, but the pillow is calling me......LMMFAO
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Sean_C
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Re: A big thank you to all
« Reply #6 on: Jan 30th, 2006, 8:29pm » |
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on Jan 30th, 2006, 8:13pm, Jonny wrote:
It seems their stats are way off
" CH is a rare neurological disorder, affecting approximately 0.1% of the population"
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As far as I'm concerned there's only 2 in Weymouth out of 53,998 people in a 2000 census of the population. I would say 54 which is 0.1% is even a bad number.
Sean..................................
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Sean_C
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Re: A big thank you to all
« Reply #7 on: Jan 30th, 2006, 8:30pm » |
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LMAO nite bro
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E-Double
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Re: A big thank you to all
« Reply #8 on: Jan 30th, 2006, 8:42pm » |
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oops missed that one
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vig
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Re: A big thank you to all
« Reply #9 on: Jan 30th, 2006, 8:55pm » |
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I remember seeing .069%...
which is about 7/10,000...
...at a packed Soldier Field for a game meant there were 50 more like me somewhere in the crowd....
we're not alone....
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never, Never, NEVER quit. -Winston Churchill
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Sean_C
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Re: A big thank you to all
« Reply #10 on: Jan 30th, 2006, 9:16pm » |
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Paul that would mean 7 in 100,000 right?
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Azrael
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Re: A big thank you to all
« Reply #11 on: Jan 30th, 2006, 9:42pm » |
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Hey... At least O.U.C.H., CH.com, and Clusterbusters are listed in the external links.
PFDAN........................................... Drk^Angel
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Opus
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Re: A big thank you to all
« Reply #12 on: Jan 30th, 2006, 9:59pm » |
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 sorry fixed the thumbs down.
It was suppose to be a complement. It looked pretty good to me. I was sure that people from here had a hand in it. If you see something wrong feel free to edit it to make it more clear. That's what Wikipedia is for.
Opus/Paul
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| « Last Edit: Jan 30th, 2006, 10:00pm by Opus » |
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Sean_C
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Re: A big thank you to all
« Reply #13 on: Jan 30th, 2006, 10:03pm » |
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I didn't mean anything by it Paul. I thought it was great I just was curious if those stats were right thats all
Awesome job bud honestly 
Cheers
Sean..........................................
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E-Double
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Re: A big thank you to all
« Reply #14 on: Jan 30th, 2006, 10:11pm » |
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Thought you were being sarcastic.......
We need some sleep...badly 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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BobG
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Re: A big thank you to all
« Reply #15 on: Jan 30th, 2006, 10:44pm » |
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Nice job Paul. Thanks.
But,
Quote: Latitude plays a role in the occurrence of cluster headaches, which are more common as one moves away from the equator towards the poles. It is believed that greater changes in day length are responsible for the increase.
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Is this true? We have a lot of Canadians and Northern Europeans here. And few South Americans. Maybe because of the language barrier?
A few years ago there was a very long discussion about this topic. If I remember right it seemed to be people who's families (past generations) were white/European types that were in the majority.
But, I could be wrong. Hell, I don't know.
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Opus
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Re: A big thank you to all
« Reply #16 on: Jan 30th, 2006, 10:54pm » |
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on Jan 30th, 2006, 10:03pm, Sean_C wrote:I didn't mean anything by it Paul. I thought it was great I just was curious if those stats were right thats all
Awesome job bud honestly
Cheers
Sean.......................................... |
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on Jan 30th, 2006, 10:44pm, BobG wrote:
No, No, No, No!
I didn't write any of it! If something you feel needs to be fixed the edit yourself, or put it in discussions. Anyone is free to edit, whether you join or not.
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floridian
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Re: A big thank you to all
« Reply #17 on: Jan 30th, 2006, 11:03pm » |
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I wrote most of the wikipedia article, and Wendy/Pubgirl has also contributed. Since then, it has been comandeered by a wikipedia editor who is an MD, and he has repeatedly removed any link to my CH website www.med-owl.com/clusterheadaches/ ... last few times I tried, they were removed within a day or so.. But that editor loves links to migraine pages. 
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| « Last Edit: Jan 31st, 2006, 6:18am by floridian » |
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The mad viking
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Re: A big thank you to all
« Reply #18 on: Jan 31st, 2006, 1:59am » |
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We are 4,5mill people in Norway and the new stats says of that amount it should be around 4-5000 clusterheads.
I do not know what kind of stats they are operating with in USA though
Svenn
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Charlie
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Re: A big thank you to all
« Reply #19 on: Jan 31st, 2006, 2:03pm » |
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Very nice work kids. Very nice and it looks good too.
I've always read the 0.1% figure too but Jamestown has a population of about 35,000 and I've met two other clusterheads... one by phone who doesn't want to meet and the other in my neurologist's office. The doctor says he has several more patients too. The whole county has something like 130,00 the last I heard.
Charlie 
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aprilbee
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Re: A big thank you to all
« Reply #20 on: Jan 31st, 2006, 3:03pm » |
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Its a good article, but I really wish they'd leave the male to female ratio out of the equation...maybe I'm just bias here, but I wonder how many women go mis-diagnosed because some doctor looks at that ratio and figures it must be something else because of the gender...
just my  really good article other than that..
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BarbaraD
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Re: A big thank you to all
« Reply #21 on: Jan 31st, 2006, 3:30pm » |
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I guess Gladewater Texas had it's Over-Share cause after I wrote an article for the local newspaper people started popping up out of the woodwork. I knew of two before the article, but after that about 10 more popped into my office to tell me about being "alone" with their CH. The two I knew about committed suicide (yeah both of them - one a teenager and the other a 51 year old doctor). The population of Gladewater is only 6000. My neurologist treats about 35 CHers from the surrounding area of about 75,000 people.
I'm too tired of looking at numbers right now (tax season you know) to work up the statistics on this, but I think with more publicity on CH, we'll find more sufferers and more people getting diagnosed.
April, I have to disagree about the male/female ratio. I think this is very important to being diagnosed correctly for females. It's been a male disease for so long that docs need to realize that women get it too (we don't just have meegraines). The last time I checked it was about 75/25 male/female. That's up from 100% male 50 years ago.
Anyhow, that's my 2 cents....
Hugs BD
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floridian
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Re: A big thank you to all
« Reply #22 on: Jan 31st, 2006, 4:02pm » |
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on Jan 31st, 2006, 3:03pm, aprilbee wrote:Its a good article, but I really wish they'd leave the male to female ratio out of the equation...maybe I'm just bias here, but I wonder how many women go mis-diagnosed because some doctor looks at that ratio and figures it must be something else because of the gender...
just my really good article other than that.. |
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Now reads:
While migraines are diagnosed more often in women, cluster headaches are diagnosed in men at a rate 2.5 to 3 times greater than in women. This gap between the sexes has narrowed over the past few decades, and it is not clear whether cluster headaches are becoming more frequent in women, or whether they are merely being better diagnosed.
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Sean_C
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Re: A big thank you to all
« Reply #23 on: Jan 31st, 2006, 4:11pm » |
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aprilbee
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Re: A big thank you to all
« Reply #24 on: Jan 31st, 2006, 4:17pm » |
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on Jan 31st, 2006, 4:02pm, floridian wrote:
Now reads:
While migraines are diagnosed more often in women, cluster headaches are diagnosed in men at a rate 2.5 to 3 times greater than in women. This gap between the sexes has narrowed over the past few decades, and it is not clear whether cluster headaches are becoming more frequent in women, or whether they are merely being better diagnosed. |
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Awesome!! 
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