Author |
Topic: is my medicine obsolete (Read 400 times) |
|
toadisland
New Board Newbie
It Hurts
 
Gender: 
Posts: 4
|
 |
is my medicine obsolete
« on: Jan 22nd, 2006, 9:20pm » |
 Quote  Modify
|
i haven't been back for nearly two years. i guess i'm one of the lucky ones. i've been taking sanserts (methysergide maleate) for maybe 30 years - as i need it. the pharmacies seem now onot to know what it is, so i can't go back to my general practitioner for my regular prescription. does anyone know an experienced neurologist in SW Florida, in Naples or Ft Myers? does anyone know if there's a methysergide equivalent?
|
|
 IP Logged |
Toad Island
|
|
|
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
  
Gender: 
Posts: 6721
|
|
Re: is my medicine obsolete
« Reply #1 on: Jan 22nd, 2006, 9:24pm » |
Quote Modify
|
If you'd have stuck around when you were Pain-Free...oh never mind..
http://www.ouch-us.org/medications/medications.htm
Linda
|
|
IP Logged |
Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
|
|
|
maffumatt
Guest
|
|
Re: is my medicine obsolete
« Reply #2 on: Jan 22nd, 2006, 10:57pm » |
Quote Modify
 Remove
|
I was told by my pharmacist you couldn't get it in the US any more. You can get it Canada, use a reputable pharmacy, perhaps one of our friends up north can help you in that regard.
|
|
IP Logged |
|
|
|
chewy
Guest
|
|
Re: is my medicine obsolete
« Reply #3 on: Jan 23rd, 2006, 7:55am » |
Quote Modify
Remove
|
Quote:| i guess i'm one of the lucky ones |
|
Others weren't quite as lucky. They still needed support. They got it from those that stuck around to give some.
|
|
IP Logged |
|
|
|
AussieBrian
New Board Hall of Famer
Got beer?
Gender:
Posts: 1695
|
|
Re: is my medicine obsolete
« Reply #4 on: Jan 23rd, 2006, 8:37am » |
Quote Modify
|
on Jan 23rd, 2006, 7:55am, chewy wrote:
Others weren't quite as lucky. They still needed support. They got it from those that stuck around to give some. |
|
Which just goes to show how different we are and how we all use this wonderful place to our own special advantage, as an answer to our own special needs.
There are those who drop in only when they're hurting, looking for a shoulder to cry on or perhaps an update on new treatments (in this case a re-named med). Other people choose to avoid us during that 'certain time' as they've problems of their own they're trying to cope with.
Either way, I reckon it's beaut that a bloke can drop in when it suits him, take the best and forget the rest, and try to get on with his life.
And he asked just the simplest question.
|
|
IP Logged |
Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
|
|
|
toadisland
New Board Newbie
It Hurts
Gender:
Posts: 4
|
|
Re: is my medicine obsolete
« Reply #5 on: Jan 23rd, 2006, 8:44am » |
Quote Modify
|
BOY O BOY. i'm getting a lot of jabs for "not sticking around". the situation is that i don't know much and i look for people that do know something. it seems we all still don't know much. i did the medicine survey in my earlier visit. the results still don't point us in any direction. methysergide helped me by reducing frequency and severity. i've tried breathing steam, sniffing camphor spirits, vibrating my temple and jaw vigorously with a motor thingie, taking hot showers. all these seemed to help a little. i tried oxygen once. it didn't work. i tried zomig once and it seemed to make things worse.
i don't know how i can support or help except by offering all this same information that i contributed earlier. i testify that one cannot expect to outgrow CH by age (near) 70.
my dad (now 96) doesn't have headaches any more, maybe not since he was 80. my grandfather still had them frequently when he died at about 75. what to do. we still don't know.
|
|
IP Logged |
Toad Island
|
|
|
Carl_D
Guest
|
|
Re: is my medicine obsolete
« Reply #6 on: Jan 23rd, 2006, 8:52am » |
Quote Modify
Remove
|
Have you tried Verapamil and Lithium as a prevent? It may be a good replacement for Sansert since it is no longer available. What about Imitrex injections?
You may want to talk to your neuro about options for abortives and prevents. I started Verapamil a few months ago and since the doc has been cranking it up over the months, it seems to be slowing down the CH's while not totally eliminating them. Being chronic though, I'll take whatever works.
Peace,
Carl D
|
|
IP Logged |
|
|
|
marlinsfan
New Board Hall of Famer
I love this place!
Gender:
Posts: 876
|
|
Re: is my medicine obsolete
« Reply #7 on: Jan 23rd, 2006, 10:30am » |
Quote Modify
|
If you can't find a doc over there and don't mind driving to Hollywood across alligator alley, I can give you the name of my neuro.
Dr. Mayur Maniar
Sunrise Medical Group
Neurologist
(954) 981-3850
4925 Sheridan Street, #200
Hollywood, FL 33021
|
|
IP Logged |
|
|
|
Lizzie2
CH.com Alumnus
New Board Hall of Famer
"L'Chaim"~Hebre w Toast~"To Life"
Gender:
Posts: 4458
|
|
Re: is my medicine obsolete
« Reply #8 on: Jan 23rd, 2006, 10:43am » |
Quote Modify
|
The above is true about Sansert no longer being available in the US. However, it is still available through a compounding pharmacist if you're able to get a prescription for it, find a compounding pharmacist, and pay for it! 
In the meantime - the sister drug to Sansert is something called Methergine (Methylergonavine). If Sansert worked that well for you, then that's always an option.
Good luck,
Carrie
|
|
IP Logged |
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2703
|
|
Re: is my medicine obsolete
« Reply #9 on: Jan 23rd, 2006, 11:01am » |
Quote Modify
|
I'm like you, when I'm off cycle I hide from the beast. Visiting the board scares me into thinking they'll come back. Probably not the most logical thought process but the best way I can explain it. I've been a cop for 26 years, been stabbed, shot at, beaten up, stitched up more times then I can recall but nothing scares me like these stupid head aches. (Rest asurred I'll get nailed now from a few of the regulars!!!)
If you haven't tried lithium you might wanna ask your doctor about it. It causes me very few side effects and blocks 70-80 percent of my ha's the ones that break through I can knock down with oxygen and cafergot. Do hope you find something that helps.
Guiseppi
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: is my medicine obsolete
« Reply #10 on: Jan 23rd, 2006, 11:21am » |
Quote Modify
|
on Jan 23rd, 2006, 8:44am, toadisland wrote:| i tried oxygen once. it didn't work. |
|
Once? What was the flow setting? What mask did you use?
Once?
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
chewy
Guest
|
|
Re: is my medicine obsolete
« Reply #11 on: Jan 23rd, 2006, 12:08pm » |
Quote Modify
Remove
|
Quote:| i tried oxygen once. it didn't work. |
|
How did you administer the O2. That technique has changed (for the better) quite a bit just over the last year or so.
|
|
IP Logged |
|
|
|
Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
Gender:
Posts: 6721
|
|
Re: is my medicine obsolete
« Reply #12 on: Jan 23rd, 2006, 12:16pm » |
Quote Modify
|
Quote:| And he asked just the simplest question. |
|
And he was given an answer/reply within 24 mins.
He was also given other advice about 02, etc. from others who do their homework AND stick around to offer support. Visiting the board will NOT...repeat NOT, bring on an attack.
Linda
|
|
IP Logged |
Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
|
|
|
Racer1_NC
CH.com Alumnus
New Board Hall of Famer
"Beeeyul the Cat"
Gender:
Posts: 1887
|
|
Re: is my medicine obsolete
« Reply #13 on: Jan 23rd, 2006, 12:23pm » |
Quote Modify
|
on Jan 22nd, 2006, 9:20pm, toadisland wrote:| i've been taking sanserts (methysergide maleate) for maybe 30 years - as i need it. the pharmacies seem now onot to know what it is, |
|
If you can find a compounding pharmacy, they can make the med for you.
Bill
|
|
IP Logged |
"Everybody's Gotta Learn Sometime."
Eventus stultorum magister.
|
|
|
floridian
Guest
|
|
Re: is my medicine obsolete
« Reply #14 on: Jan 23rd, 2006, 1:38pm » |
Quote Modify
Remove
|
That med is obsolete. It has been replaced by the product at www.clusterbusters.com
|
|
IP Logged |
|
|
|
Ghost
CH.com Alumnus
New Board Hall of Famer
Farting relieves the pressure
Gender:
Posts: 4024
|
|
Re: is my medicine obsolete
« Reply #15 on: Jan 23rd, 2006, 7:13pm » |
Quote Modify
|
Remember stick and jab, stick and jab. Oh yea dont forget to duck!!!
|
|
IP Logged |
Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss