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Topic: Dylan's SP Survey PLEASE RESPOND!! (Read 2122 times) |
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Dylan
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God Damn Headaches
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Dylan's SP Survey PLEASE RESPOND!!
« on: Nov 25th, 2005, 2:19pm » |
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As you all know I have been planning to post a survey for some time now and it is finally ready  . You guys can either just post your reply's on this message board, or if you do not want to have all of the information public, you can send me a private message or e-mail your reply to dhoseas06@yahoo.com.
I am extremely thankful to everybody who completes this survey and i am looking forward to seeing the results.
Dylan
Dylan's Cluster Survey
1. What is your age?
2. What is your gender?
3. What is your race?
4. What is your weight and height?
5. At what age did you first experience cluster headaches?
6. How did you come to realize that the headaches that you experience are cluster headaches and not some other condition? Explain.
7. How long have you been suffering?
8. Have you ever been misdiagnosed? If so, what were you diagnosed with?
9. Which side of your head do your headaches occur?
10. Are you an episodic or chronic sufferer?
11. If episodic, what is the pattern and duration of your cycles?
12. During an episode, how many headaches do you have per day?
13. If you are a chronic sufferer, how many headaches do you have per day?
14. Which preventative treatments have you tried? Which have been successful? Which have not? Explain.
15. Which abortive treatments have you tried? Which have been successful? Which have not? Explain.
16. Do you prefer pharmaceutical or alternative treatments? Explain.
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DonnaHar
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #1 on: Nov 25th, 2005, 2:48pm » |
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Dylan,
While you're waiting for answers to your survey, you might find a lot of useful information in the links to the left of the page.....check out, for one, the medication survey.
There's a lot of good info here already.
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Dylan
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God Damn Headaches
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #2 on: Nov 25th, 2005, 5:06pm » |
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I realize that there is a ton of excelent information on this website already, however my assignment requires me to do something that is my own for the senior project. I will post a description of my assignment on this topic again just incase some people havn't read it yet.
-Dylan
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Dylan
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God Damn Headaches
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #3 on: Nov 25th, 2005, 5:10pm » |
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For people who do not know what i am doing this survey for, i reposted my senior project description:
Hello, my name is Dylan and I am a 17 year old senior in high school who has been suffering from cluster headache since I was in 8th grade (13).
Every year at my school Clark Montessori, the seniors do what is called a senior project. This is no ordinary high school project, however. Every senior gets to choose a topic and will research it over the whole year.
With this project, there are several different parts: One part is a paper. For this paper, we will have to write 20+ pages (mine will most likely be closer to 30) on the topic that we choose. Along with the paper, we are required to do what is called a “senior product.” For this product, our goal is to create something that captures the research investigation. Last, in May, we will give a presentation of our projects.
If you have not already guessed it, my senior project topic is cluster headache with the research question, “What are the most effective treatments for cluster headache?”
Since it is already pretty late in the year, I already have the first draft of my introduction complete which just introduces cluster headaches (I am having trouble attaching it to this response; I will post my intro on a later date).
For my product, I am conducting a survey of people who experience cluster headache. The primary purpose of my product is to provide information about other cluster headache sufferers and their experiences with different treatments, both pharmaceutical and alternative. I want to be able to compare and contrast the different treatments that cluster victims have used and look for patterns in the data.
-Dylan
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Racer1_NC
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #4 on: Nov 25th, 2005, 5:33pm » |
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Completed survey sent to email provided.
Bill
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"Everybody's Gotta Learn Sometime."
Eventus stultorum magister.
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chewy
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #5 on: Nov 25th, 2005, 6:20pm » |
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Sent to email
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MJ
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #6 on: Nov 25th, 2005, 8:36pm » |
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Dylans Cluster Survey
1) 47
2) Male
3) Caucasian
4) 6' 210 lbs
5) 18
6) Medical diagnosis by nuerologist.
7) allmost 30 years
8 ) Yes. multiple things ranging from migraine to allergic reactions
9) Right
10) Variable episodic. or both
11) 4 months to years
12) 8- 12
13)
14) too many to remember all. Oxygen, Prednisone, Cafergot, Sansert, Imitrex, Valium, Ergomine tartrate, Verapamil, Propanolol, morphine, Antihistamines, Nuerontin, Percoset and many other pain meds, Extreme doses of Ibuprofen and tylenol, Naprosen, Ephedrine, other steroids. LSA.
All have failed except Prednisone, ephedrine and LSA.
Prednisone has temporarily stopped a cycle.
Ephedrine has helped to make attacks easier.
LSA recent use suggests some positive results.
15) See above. I dont remember the differences between abortives and Preventatives in the meds
16) Have not used pharma in nearly 10 years, Alternatives preferred.
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MJ
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AussieBrian
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Got beer?
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #7 on: Nov 25th, 2005, 9:45pm » |
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Done my bit.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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unsolved1
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #8 on: Nov 25th, 2005, 11:49pm » |
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Done deal. Check your e-mail. Hope it helps.
UNsolved
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Jasmyn
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #9 on: Nov 26th, 2005, 2:41am » |
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Sending it 
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Jazz
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Gator
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #10 on: Nov 26th, 2005, 3:55am » |
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Done! Good luck with it!!!
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zanychef
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #11 on: Nov 26th, 2005, 4:39am » |
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sent 
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plenty of time to sleep now me headaches aint too bad
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Dave_Emond
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #12 on: Nov 26th, 2005, 4:43am » |
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Cool thing you're doing Dylan!
Dylan's Cluster Survey
1. What is your age? 45
2. What is your gender? M
3. What is your race? Caucasian
4. What is your weight and height? 5'8" 150lbs.
5. At what age did you first experience cluster headaches? 35
6. How did you come to realize that the headaches that you experience are cluster headaches and not some other condition? Explain.
3 years of dumb doctors, finally a Neuro pinned it, found new website (CH.com) and instantly knew I wasn't alone.
7. How long have you been suffering? 10 years
8. Have you ever been misdiagnosed? If so, what were you diagnosed with? Yes: Sinus, TMJ, junkie!
9. Which side of your head do your headaches occur? Right side
10. Are you an episodic or chronic sufferer?
Chronic
11. If episodic, what is the pattern and duration of your cycles? N/A
12. During an episode, how many headaches do you have per day? N/A
13. If you are a chronic sufferer, how many headaches do you have per day? Minimum 4 - Max 10
14. Which preventative treatments have you tried? Which have been successful? Which have not? Explain.
All ... that I know of: no success
15. Which abortive treatments have you tried? Which have been successful? Which have not? Explain.
All ... that I know of: no success
16. Do you prefer pharmaceutical or alternative treatments? Explain.
Neither ... don't respond well to either. Will be trying Nerve Blocks though this month.
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burnt-toast
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #13 on: Nov 26th, 2005, 9:09am » |
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1. What is your age? 46
2. What is your gender? Male
3. What is your race? Caucasian
4. What is your weight and height? 228#; 6' 6"
5. At what age did you first experience cluster headaches? 35
6. How did you come to realize that the headaches that you experience are cluster headaches and not some other condition? Explain. Neurological exams, battery of neurological tests/scans, self research.
7. How long have you been suffering? 11 years
8. Have you ever been misdiagnosed? If so, what were you diagnosed with? Yes, by G/P and Neurologist with A-Typical Migranes for first two years.
9. Which side of your head do your headaches occur? Right
10. Are you an episodic or chronic sufferer? Chronic from the get go but experience predictable chronic cycles.
11. If episodic, what is the pattern and duration of your cycles?
Chronic Cycles - Oct. through June - high frequency/severity, mostly night attacks, Kip 5 - 10 most common, one day break every now and then.
July through Sept. lower frequency/severity, mostly evening attacks, Kip 2 - 5 most common, four day breaks possible.
12. During an episode, how many headaches do you have per day?
13. If you are a chronic sufferer, how many headaches do you have per day?
Oct. through June - average 5 attacks per night with up to 8 possible.
July through Sept. average just less than one attack per evening, with up to 3 possible.
14. Which preventative treatments have you tried? Which have been successful? Which have not? Explain.
Lithium Carbonate, Verapamil, Caffergot (taken as a preventative), Melatonin, Prednesone tapers, various Steroid injections, condensed Cinnamon tea (made from natural bark). Found nothing to prevent - mix of Lithium Carbonate 1200mg, Verapamil 720mg and Melatonin 9mg help. Have not tried the many meds. that have too many/too dangerous side effects. Prednesone was a stretch that I tried in the hopes of finding relief.
15. Which abortive treatments have you tried? Which have been successful? Which have not? Explain. Oxygen, Zomig, Imitrex; 1million extra strenght Excedrin Valium, Percoset (taken during 1st two years) - have not responded to abortives - currently use very hot tea/intense concentration on lighted objects to endure the pain of attacks.
16. Do you prefer pharmaceutical or alternative treatments? Explain. Prefer neither, take pharmaceuticals but haven't done much research into alternatives.
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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LadyElaine
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #14 on: Nov 26th, 2005, 11:02am » |
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I also emailed to the above address.
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Charlie
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #15 on: Nov 26th, 2005, 12:17pm » |
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Hopefully my message made it.
Good luck Dylan.
Charlie
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maffumatt
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #16 on: Nov 26th, 2005, 12:21pm » |
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in the mail
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cootie
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #17 on: Nov 26th, 2005, 2:22pm » |
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Did it done that.....had trouble gettin it to send so HOPE it went thru ok ?? Brad's was thru a second party.......me Pam
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john_d
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #18 on: Nov 26th, 2005, 5:30pm » |
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Dylan's Cluster Survey
1. What is your age?
36
2. What is your gender?
Male
3. What is your race?
White
4. What is your weight and height?
215-220 76"
5. At what age did you first experience cluster headaches?
17 or so
6. How did you come to realize that the headaches that you experience are cluster headaches and not some other condition? Explain.
Diagnosed in the military, had not heard of them before that
7. How long have you been suffering?
that would make it about 20 years, but sporadically
8. Have you ever been misdiagnosed? If so, what were you diagnosed with?
I diagnosed myself as sinus headaches, hated doctors
9. Which side of your head do your headaches occur?
left
10. Are you an episodic or chronic sufferer?
episodic
11. If episodic, what is the pattern and duration of your cycles?
4-6 weeks
12. During an episode, how many headaches do you have per day?
about 3 a night, sometimes more
13. If you are a chronic sufferer, how many headaches do you have per day?
NA
14. Which preventative treatments have you tried? Which have been successful? Which have not? Explain.
None
15. Which abortive treatments have you tried? Which have been successful? Which have not? Explain.
Lidocaine, oxygen, oxygen worked great
16. Do you prefer pharmaceutical or alternative treatments? Explain.
alternative
good luck
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MJ
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #19 on: Nov 27th, 2005, 2:46pm » |
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Helping Dylan a fellow clusterhead with a bump. there must be more than 18 people here. His grade depends on you.
Of course its probably in the mail if all 228 readers responded.
Dylan how goes the responses?
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MJ
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cazman
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #20 on: Nov 27th, 2005, 3:41pm » |
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1. What is your age? 37
2. What is your gender? M
3. What is your race? ITALIAN\AMERICAN INDIAN
4. What is your weight and height? 145 6'
5. At what age did you first experience cluster headaches? 19
6. How did you come to realize that the headaches that you experience are cluster headaches and not some other condition? Explain. LOTS OF DOCTORS OVER 15 YEARS
7. How long have you been suffering? LITTLE OVER 15 YEARS
8. Have you ever been misdiagnosed? If so, what were you diagnosed with? YES SINUS INFECTION/TEETH/LAZY EYE/NECK PROBLEM
9. Which side of your head do your headaches occur? RIGHT
10. Are you an episodic or chronic sufferer?
WENT CRONIC THIS PAST WINTER
11. If episodic, what is the pattern and duration of your cycles?
12. During an episode, how many headaches do you have per day?
13. If you are a chronic sufferer, how many headaches do you have per day? NONE NOW THANKS TO LSA TREATMENTS, BUT IT WAS ANY WHERE FROM 6 TO 10 A DAY
14. Which preventative treatments have you tried? Which have been successful? Which have not? Explain.NEURONTIN- DID NOTHING TO STOP HA'S, ADDERALL- STOPPED HEADACHES FOR AWHILE BUT I COULD NOT EAT OR SLEEP ON IT SO I DROPPED, LITHIUM- WASTE OF TIME NO HELP AT ALL, LSA RULES ITS SAVED MY LIFE, IM 3 MONTHS PF THANKS TO IT
15. Which abortive treatments have you tried? Which have been successful? Which have not? Explain.O2- CAUSED REAL BAD REBOUND HA'S, RELPAX TO EXPENSIVE FOR A DRUG THAT RARELY WORKS FOR ANYONE MORE THAN ONE MONTH THAN IT STOPPS WORKING,COCAINE WORKED GREAT BUT CAUSED MANY ODVIOUS PROBLEMS AND RISKS.SHOWERS, HEAT, COLD, ALL THE EXTERNAL TRICKS THEY HELP A BIT BUT NOT CLOSE TO ENOUGH
16. Do you prefer pharmaceutical or alternative treatments? Explain.I THINK THE DRUG COMPANIES ARE RIPPING US ALL OFF AND THE PRODUCTS THEY PUT OUT CAN HURT MORE THAN THEY HELP IN THE LONG RUN THEY ARE ONLY INTERESTED IN MONEY NOT OUR HEALTH, IM A TOTAL AND FIRM BELIEVER IN THE ALTERNATIVES WHY CAUSE THEY ACCTUALLY WORK AND THE SIDE EFFECTS IN THE LONG RUN ARE VERY TINY IF AT ALL
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Dylan
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God Damn Headaches
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #21 on: Nov 27th, 2005, 4:25pm » |
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Awsome stuff so far, keep em' comming
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Redrum
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Doh!
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #22 on: Nov 28th, 2005, 10:08am » |
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Dylan's Cluster Survey
1. What is your age?
-42
2. What is your gender?
-Male
3. What is your race?
-Caucasian (jewish)
4. What is your weight and height?
-5'6" 125 lbs.
5. At what age did you first experience cluster headaches?
-20 ish
6. How did you come to realize that the headaches that you experience are cluster headaches and not some other condition? Explain.
-This website...I had eventually been "diagnosed" by my neuro as migrane and was on verapimal with limited success. then about 6 or 7 years ago I found this site and bingo.
7. How long have you been suffering?
-about 22 years
8. Have you ever been misdiagnosed? If so, what were you diagnosed with?
-Yes:
-eye strain
-tension headaches
-TMJ
-sinus infection
-allergies
9. Which side of your head do your headaches occur?
-Right
10. Are you an episodic or chronic sufferer?
-I was chronic for the first 14 years or so then switched to episodic now (thank god)
11. If episodic, what is the pattern and duration of your cycles?
-No hard set patterns but in general go into cluster late spring and/or late fall for 8 to 12 weeks. usually get hit late afternoon (4:00~6:00 pm) and late evening (10:00~11:00 pm) with occasional wakeups at 1 or 2 am
12. During an episode, how many headaches do you have per day?
-usually 1 or 2 but as many as 3 or 4
13. If you are a chronic sufferer, how many headaches do you have per day?
-When i was chronic it would swing from 1 or 2 to as many as 4 or 5
14. Which preventative treatments have you tried? Which have been successful? Which have not? Explain.
-Verapimal helped reduce the number of daily HAs but lowered my blood pressure to much
-quit drinking (alchohol) during episodes...definate trigger
-had one doc tell me to eat a daily bran muffen with local honey...no help
-chiro treatments...no help
15. Which abortive treatments have you tried? Which have been successful? Which have not? Explain.
-no help at all: OTC pain killers, Stadol, cafergot
-Definate help: OXYGEN 8-12 lpm pure (clustermasx)
-somehelp: Imitrix nasal seemed to help sometimes but not consistantly or fast enough (haven't tried injecting), Lidocane doesn't really help the HA but can sometimes make squeezing the O2 mask to my face more comfortable. Ice packs, heat packs, stretching, walking relxation/breathing techniques etc. don't do much to help the pain but make a difference psychologicaly, at least i feel like Im doing something and help me get through
16. Do you prefer pharmaceutical or alternative treatments? Explain.
I prefer Oxygen (is that Pharm or Alt?)...it works
~Andy
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It's hard to be an optimist when the glass is shattered on the floor!
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Melissa
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #23 on: Nov 28th, 2005, 10:41am » |
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sent to email
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Ghost
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Re: Dylan's SP Survey PLEASE RESPOND!!
« Reply #24 on: Nov 28th, 2005, 10:43am » |
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on Nov 25th, 2005, 2:19pm, Dylan wrote:
Dylan's Cluster Survey
1. What is your age? 43
2. What is your gender? Male
3. What is your race? Multi
4. What is your weight and height? 5'8" 170lbs
5. At what age did you first experience cluster headaches? approx age 10-11
6. How did you come to realize that the headaches that you experience are cluster headaches and not some other condition? Explain. diagnosed in 93-94 time and never even head of clusters till then.
7. How long have you been suffering? approx 33 years
8. Have you ever been misdiagnosed? If so, what were you diagnosed with? migreens, sinus headaches/infections, Got several teeth pulled, sinuses scrapped,
9. Which side of your head do your headaches occur? Right
10. Are you an episodic or chronic sufferer? Chronic as of Oct 13th
11. If episodic, what is the pattern and duration of your cycles?
12. During an episode, how many headaches do you have per day? 4-8 when I was Episodic
13. If you are a chronic sufferer, how many headaches do you have per day? 3-8
14. Which preventative treatments have you tried? Which have been successful? Which have not? Explain.
Lsa seeds no effect, Started Kudzu, no effect yet.
15. Which abortive treatments have you tried? Which have been successful? Which have not? Explain.
Caffine(coke),some help/ Ice packs, little help/ O2, Helps pretty fast(10-15 min)
16. Do you prefer pharmaceutical or alternative treatments? Explain. Some of each O2, Caffine, Ice packs,
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Hope this helps
Mike (Goast,Goat)
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Illigitimus Non Tatum Carborundum
If all men are endowed by their creator, why was mine so short sighted?
***WARNING*** Oxygen will rust your pipes!
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