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   Author  Topic: newbie  (Read 570 times)
doxie
New Board Newbie
USA 
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Posts: 1
newbie
« on: Nov 18th, 2005, 11:19pm »
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Hi I am new to this board. I have been getting clusters for about 15 yaers now. I got to the point that I hate to go to sleep. How do some of you people deal with them. I drift off to another world. I pretty much leave my mind and think of stuff that makes me amazingly happy. I have a couple of horse and I picture myself somewhere amazing atop my horses. Also what sucks is most people think "oh she can't handle a little headache" or why is it such a big deal" "how come you can't go to work" It is really frustrating!!!!!!! Angry
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AussieBrian
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Australia 
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Got beer?

   


Gender: male
Posts: 1695
Re: newbie
« Reply #1 on: Nov 18th, 2005, 11:35pm »
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Never mind, Doxie.  We know what you're up against and sympathise completely.    
 
Welcome aboard.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
MJ
New Board Hall of Famer
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Gender: male
Posts: 911
Re: newbie
« Reply #2 on: Nov 18th, 2005, 11:49pm »
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Hi Dox.
 
You just rode your horses into one of the most amazing places on earth for clusterheads.
 
 We know you "can" handle it. 15 years says so.
It aint easy sometimes but we all do.
 
Everyone here understands and we just never sleep. At least that Aussie fella allways seems to be up
 
Welcome
MJ
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MJ
Barry_T_Coles
CH.com Alumnus
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Australia 
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  http://mushys.com/kiwi  
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Gender: male
Posts: 1348
Re: newbie
« Reply #3 on: Nov 19th, 2005, 1:28am »
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Hi Doxie
Welcome to the board.
 
Here's the other Aussie bloke whose always up, well not really Brian is 15 hours ahead of the states & I am 13 hours ahead so while you lot are trying to get some ZZZ we are probably looking towaed our next beer.
It's 2:20 pm in West Aust now
 
Through my last cluster I found the only way I had any chance of getting any sleep was to prop myself up nearly to the sitting position with as many pillows as I could find.
As for people not understanding what we go through, the only way they will is to get it themselves but we wouldn't want that for anyone, there is a link here somewhere that is worth printing off and giving to those close to you and anyone you think needs to understand I cant lay my hands on it right now as I am working from my kids puter in Pert & dont have my favourites tacked in, i'll have a look around & when I find it I will tack it on to you post.
 
Kind Regards & PFDs
Barry
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
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zanychef
New Board Newbie
England 
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i'm busting with a masx cant really go wrong can i

   


Gender: male
Posts: 46
Re: newbie
« Reply #4 on: Nov 19th, 2005, 3:02am »
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the link for the letter is not that hard its in this section of ch.com and is fixed in the second post down
and before you think i'm some impolite limey  
WELCOME ABOARD!!
i too hate sleep at times and end up sleeping in my chair but hey its comfy Wink
ian
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plenty of time to sleep now me headaches aint too badSmiley
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