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Topic: This place is really something! (Read 583 times) |
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JLY
New Board Newbie
I love YaBB 1G - SP1!
Posts: 3
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This place is really something!
« on: Nov 18th, 2005, 1:19am » |
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Hello to all. I jut sort of stumbled onto this site and it was an instant "Wow!" moment. I'm 46 and have been having "visits" since I was 19 - an annual episodic i guess you'd call it. I remember when they first began I ended up at a Dentist's office where all my teeth were ground flat to "relieve the preasure of an improper bite on the facial nerve" - well needless to say it didn't work, but did make brushing easy. Over the years I've only metn 2 others with our special friend, one of whom is now free thanks to a pain pump for phantom limb syndrome (not a recomended technique !!!!) It is really cool to find a place where there are others that know, I don't envy us but there has got to be a reason. I absolutly loved the "devil" interview BTW - kudos for that. And by way of an invite, there's always room for another head in my freezer when times get tough !
Best wishes folks
John
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zanychef
New Board Newbie
i'm busting with a masx cant really go wrong can i
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Posts: 46
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Re: This place is really something!
« Reply #1 on: Nov 18th, 2005, 1:35am » |
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sorry you had to find us but glad you have this is the best place i know of for ch
all i can say is read read read ask questions and read again
welcome on board
ian
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plenty of time to sleep now me headaches aint too bad
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AussieBrian
New Board Hall of Famer
Got beer?
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Posts: 1695
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Re: This place is really something!
« Reply #2 on: Nov 18th, 2005, 1:37am » |
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Welcome home, John. There's plenty of places I'd rather have met you, but as it's here you might as join the fun. (I'm the sane one, everyone else is troppo.)
See you in the freezer,
Brian Down Under.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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jangus
New Board Newbie
From under the Redwood Canopy
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Posts: 19
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Re: This place is really something!
« Reply #3 on: Nov 18th, 2005, 1:41am » |
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I just found this site as well... pretty amazing... I've never known anyone that shared the same symptoms as I did.
Having my forth session of Quantum Energetics tomorrow. Drink lots of water... get an oxygen tank. That's what holds the "beast" at bay for Johnny A.
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"Don't 'cha touch hard liquor,
just a cup of cold coffee...
gonna get up in the morning
and go."
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JLY
New Board Newbie
I love YaBB 1G - SP1!
Posts: 3
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Re: This place is really something!
« Reply #4 on: Nov 18th, 2005, 2:00am » |
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What really got me is the number of ppl that describe a CH as sort of an external entity - ie "the beast".
I've felt that way for years!! Like what worked last wek won't work this week. It has to get you before it goes away - but will always be back and the game begins again. As an FY last nights' beat down oxycodon and i have never had to resort to opiates before.
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Barry_T_Coles
CH.com Alumnus
New Board Hall of Famer
 
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Posts: 1348
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Re: This place is really something!
« Reply #5 on: Nov 18th, 2005, 6:02am » |
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Welcome John.
Really sad that you have to be here but you are in the best place with the best people around, what you cant find here you won't find anywhere else.
Read and read again, what I have learn't from this wonderfull family over the last 12 month I could'nt have learn't in a lifetime.
Remember any time you need to talk to some'one at any time there will always be one of us around to listen, we may not be able to fix your immediate problem but at least we will be there.
And yes when the beast is not giving CHit to some'one elsewhere in the world the little shit comes down here and here I was thinking we were well hidden.
PFD's
Barry from down under
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
http://mushys.com/kiwi
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Bob_Johnson
New Board Hall of Famer
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Posts: 1796
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Re: This place is really something!
« Reply #6 on: Nov 18th, 2005, 11:34am » |
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Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. (2002)
http://www.brightok.net/~mnjday/chtherapy.pdf
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Bob Johnson
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Phil L
New Board Veteran
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Posts: 176
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Re: This place is really something!
« Reply #7 on: Nov 21st, 2005, 7:42pm » |
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Welcome John. I'm fairly new here myself, but it's the best spot in town for CHers. Read, read read. It's all here and when in doubt, just ask.
Phil
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When I get up in the morning and have to look down to see the grass
I know it's going to be a great day.
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