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Topic: Long time, first time... (Read 303 times) |
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Joey_Joe
New Board Newbie
Faith is a verb.
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Long time, first time...
« on: Sep 28th, 2005, 12:51pm » |
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Hello all;
As a 14-year sufferer of this horrible monster I am so very glad to have found this board today. I can't believe there are so many people who "feel my pain". Currently, I'm in week four of my first cycle in almost 3 years. Some days no clusters, other days 4 or 5 clusters, almost always around an 8 on the Kip scale. No discernable triggers, but most cycles have happened in the spring or fall.
My Dr. told me 6 years ago that there wasn't much I could do about it. Exercise sometimes works, other times makes it worse. It looks like this board is filled with different tips and ideas - I plan to try all of them.
My heart really goes out to everyone on this board.
J.
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nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
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Posts: 7953
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Re: Long time, first time...
« Reply #1 on: Sep 28th, 2005, 7:07pm » |
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on Sep 28th, 2005, 12:51pm, Joey_Joe wrote:
My Dr. told me 6 years ago that there wasn't much I could do about it.
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Well, that's a crock! Welcome, Joe, and sorry you had to find us. There is no cure, but there's plenty you can do about it. Look here for traditional meds:
http://www.brightok.net/~mnjday/chtherapy.pdf
Look here for a promising alternative:
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action= display;num=1110584362
And, another very promising alternative:
www.clusterbusters.com
I suggest you find a good neurologist who has a clue about CH. In the meantime, read, read, read. There's lots of great info here.
pain free wishes, nani
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Others may come and go, but MY power is MINE.
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Kris_in_SJ
New Board Hall of Famer
There's no place like home.
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Re: Long time, first time...
« Reply #2 on: Sep 28th, 2005, 7:40pm » |
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Hi,
Nani gave you the best of the links there are in current existance! Please read them.
There are much better treatments available besides heat/cold/exercise/caffiene, etc. (though many here prefer these and I find them helpful for shadows).
If your doc has no suggestions for good abortives like Oxygen, Imitrex, etc., then find a new doctor first. There is a treatment or a combo of meds out there that can probably help you. Follow the links .....
Hugs,
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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