Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 22nd, 2024, 5:34pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Neurofibromatosis--Any Connection? »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2004-2005 Getting to Know Ya Posts
(Moderator: DJ)
   Neurofibromatosis--Any Connection?
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Neurofibromatosis--Any Connection?  (Read 340 times)
Fig
New Board Newbie
USA 
*



Let It Be

   
Email

Gender: female
Posts: 17
Neurofibromatosis--Any Connection?
« on: Sep 21st, 2005, 8:48pm »
Quote Quote Modify Modify

Have you even heard of it? This is a neurological disorder/disease, involving the whole body. There are tumors--internal and external--overgrowths of nerve endings. It's genetic. Progressive, incurable--tho they have identified the marker on the gene that causes it and are working towards a cure.... It's terribly complicated. Anyway..I have it, I have numerous tumors (external) but one was found last year on the surface of my brain behind my right eye (headache side!!). These tumors, while generally begnign can become malignant. Oh how cheery! Anyway. I'm just wondering if anyone here is familiar with NF and has any thoughts as to  a connection.  Thanks. Marion
IP Logged
nani
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Got kudzu?

   
WWW

Gender: female
Posts: 7953
Re: Neurofibromatosis--Any Connection?
« Reply #1 on: Sep 21st, 2005, 9:12pm »
Quote Quote Modify Modify

Sad  I've never heard of it. I found a message board for it though.
http://brain.hastypastry.net/forums/forumdisplay.php?f=190
 
pain free wishes, nani
IP Logged

Others may come and go, but MY power is MINE.
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss