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Topic: New guy from Kansas (Read 314 times) |
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TKDFORCHRIST
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New guy from Kansas
« on: May 29th, 2005, 7:57pm » |
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Well, to start I cried the day I found this site. I wish I had stumbled on it years ago. I will turn 36 this summer and have dealt with this beast since I was 18, I cannot believe that have done this for half my life.
Your stories sound as if I was writing them myself. I found O2 in 2003 and that seems to help the lesser CH. Today I start week 6. My cycles started out yearly and then about 1997 they started jumping to 2 years, PRAISE THE LORD. The problem I face right now is I cannot remember a cycle lasting this long, mainly more than 4 weeks.
I feel for each of you that I have read about who has to deal with this for so long, either longer episodes or chronic.
Anyway I have spent more time reading this website over the past couple of weeks than it seems I have done anything else.
God Bless You All,
Troy
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"I have held many things in my hands and I have lost them all; but
whatever I have placed in God's hands, that I still posses."
Martin Luther
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Sean_C
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Welcome Troy, hope you get relief soon.
Sean......................
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TKDFORCHRIST
New Board Newbie
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Re: New guy from Kansas
« Reply #2 on: May 29th, 2005, 8:06pm » |
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Thanks Sean,
I have to rewrite something.
I pray for all of you no matter how long you have to deal with this.
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"I have held many things in my hands and I have lost them all; but
whatever I have placed in God's hands, that I still posses."
Martin Luther
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unsolved1
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Welcome to the messageboard Troy! Hope you end your cycle soon!
Unsolved
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KMT
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Re: New guy from Kansas
« Reply #4 on: May 29th, 2005, 11:49pm » |
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Welcome Troy. Glad to have you but sorry that you had to seek us out. I am from KS as well. Manhattan. There is a ton of information here and tons that are here anytime you need us. Soak it all up.
Hope you are PF soon.....Kim
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aka...................................................... KimY
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TKDFORCHRIST
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Re: New guy from Kansas
« Reply #5 on: May 30th, 2005, 12:23pm » |
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Thanks Kim,
Go Cats. I am a big K-State fan.
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"I have held many things in my hands and I have lost them all; but
whatever I have placed in God's hands, that I still posses."
Martin Luther
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Langa
CH.com Alumnus
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So many donuts, such little time...
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Re: New guy from Kansas
« Reply #6 on: May 30th, 2005, 12:41pm » |
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Hey Troy from Kansas... 
Welcome to the Family. It's unfortunate you have to be here, but glad you are.
Hope your cycle ends soon!
GBU2,
Langa
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When you saw only one set of footprints, it was then that I carried you.
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KMT
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Re: New guy from Kansas
« Reply #7 on: May 30th, 2005, 1:38pm » |
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Troy
Quote:| Go Cats. I am a big K-State fan. |
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Cats fan. Well must confess not from here originally. Am a Montana girl myself been here 4 years.
Kim
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aka...................................................... KimY
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TKDFORCHRIST
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Re: New guy from Kansas
« Reply #8 on: May 30th, 2005, 6:19pm » |
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Kim,
That is OK. I will stay a Cats fan though
Got a question, maybe the wrong place I do not know. I use O2 and Axert. My Dr. wouldn't let me try Verapamil. I am still kind of mad about that one. Something to do with my being tall skinny and having a mitral valve reflux.
Any way, I was originally given Axert because it had a longer ½ life than imitrex. I also couldn’t afford the shots anymore. I found that the Axert only has a ½ life about 1 hour longer than the trex did, according to the pharmacy.
Now my question, I have been reading a lot about Kudzu and how much help it was. Problem is the posts were back in February. Frankly I am worn out from reading posts today. I can’t seem to find any answer to mixing triptans and Kudzu.
Any thoughts on this? I want to try the Kudzu but I am afraid to give up what I know helps.
Troy, Cats fan
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"I have held many things in my hands and I have lost them all; but
whatever I have placed in God's hands, that I still posses."
Martin Luther
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Sean_C
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on May 30th, 2005, 6:19pm, TKDFORCHRIST wrote:| I can’t seem to find any answer to mixing triptans and Kudzu. |
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Troy try posting this question on the medications board or on the Kudzu thread itself. My understanding is that you should not mix triptans and kudzu. Sorry I couldn't be more helpful.
Sean.........................
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kimmeesue
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Re: New guy from Kansas
« Reply #10 on: Jun 2nd, 2005, 12:50pm » |
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on May 30th, 2005, 12:23pm, TKDFORCHRIST wrote:Thanks Kim,
Go Cats. I am a big K-State fan. |
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Wish to welcome you even though you are obviously misguided.
Jayhawks rule!!
Hope you find this site as helpful as I have.
Another Kim from Kansas.
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aprilbee
CH.com Alumnus
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Ain't I a stinkah!!
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Re: New guy from Kansas
« Reply #11 on: Jun 2nd, 2005, 3:03pm » |
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Welcome!
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TKDFORCHRIST
New Board Newbie
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Re: New guy from Kansas
« Reply #12 on: Jun 5th, 2005, 10:05am » |
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Hey all,
I have to say that after 6 long weeks, and about $1500.00 of meds and O2, I feel this cycle lifting. I finally slept last night without interruption. I want all to know that this website has touched me deeply. I have read a lot about a lot of you and although I do not wish to start this cycle over I wish I had stumbled on this site sooner. I will continue to check the board and I pray for pain free days for all.
God Bless,
Troy
Cats Rule
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"I have held many things in my hands and I have lost them all; but
whatever I have placed in God's hands, that I still posses."
Martin Luther
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