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freaksh0
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New guy from Oslo, Norway
« on: May 29th, 2005, 12:55pm »
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Hello.
 
Came across this site from wikipedia, looking for migraine. I've been diagnosed with migraine since I was a child. However, i've never quite had the symptoms as zig-zag vision and doublesided temple pain.
 
However, i came across an article in a popular newspaper about "Cluster Headaches" and i recognized the symptoms, which eventually brought me here.
 
I've had CH since i was a child.
 
Since my youthhood, I've had occasional CH attacks, mostly triggered by alcohol and tobacco. Some other triggers are when eating too little food during a day. The attacks usually last only 3 to 6 hours with pain in the temples and eyeballs on a single side. The sides vary from attack to attack. Right now i'm fending off the remaining CH from yesterday, when i got drunk and smoked cigarettes.
 
I find that drinking coca cola and eating chocolate or junkfood with lots of fat in it, helps take the CH away.
 
The attacks are also related to my state of mind. If I have a good time out when drinking, there are rarely CH attacks. However, if I'm bored during the party, chances of an attack the day after are quite high. Often, if i go on a holiday to a new place the CH attacks don't come.
 
I rarely get "other" types of headaches than cluster headaches.
 
 
 
 
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KMT
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Re: New guy from Oslo, Norway
« Reply #1 on: May 29th, 2005, 1:41pm »
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Welcome,
 
Sorry you have had to search us out but glad that you found us.
 
Read the information on the Left. Take the cluster quiz.  And most of all print out the valuble information and take it to your DR for a difinitive Dx.  Most of us spend a lot of time educating our Dr. on the right TX that we need.  
 
Quote:
on May 26th, 2005, 7:40am, E-Double wrote:
   
This is  a great resource to know like the back of your hand...print it out and give it to your doc  
   
   
http://www.brightok.net/~mnjday/chtherapy.pdf    
   
It will present the appropriate treatments that you should seek and your doctor should know!!!    
   
Ask for a script and if needed FIGHT fOR Oxygen...  
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm    
   
Educate your doctors!!!    
 
Good luck and stay strong!    
     
E  
 

 
Please keep us posted, we are here for you.
 
PF wishes......Kim
« Last Edit: May 29th, 2005, 1:44pm by KMT » IP Logged

aka...................................................... KimY
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Re: New guy from Oslo, Norway
« Reply #2 on: May 29th, 2005, 2:12pm »
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Anbefaler Dr Steinar Wilming ved Ullevåll Sykehus.Han er VELDIG oppegående på cluster og annen hodepine
 
Svenn
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Re: New guy from Oslo, Norway
« Reply #3 on: May 30th, 2005, 12:08am »
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on May 29th, 2005, 2:12pm, Svenn wrote:
Anbefaler Dr Steinar Wilming ved Ullevåll Sykehus.Han er VELDIG oppegående på cluster og annen hodepine
 
Svenn

 
Translation...................."Jonny gets those migraines too but thinks he gets clusters so don't say anything ok"
 
I'm just the translator, don't shoot me bro, I didn't say it Grin
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The  mad viking
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Re: New guy from Oslo, Norway
« Reply #4 on: May 30th, 2005, 2:21am »
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on May 30th, 2005, 12:08am, Sean_C wrote:

 
Translation...................."Jonny gets those migraines too but thinks he gets clusters so don't say anything ok"
 
I'm just the translator, don't shoot me bro, I didn't say it Grin

 
 
JUst reccomended him my neurollogist since we live in the same town Sean   Smiley  and since he is NOT diagnosed
 
 
Svenn
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Jonny
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Re: New guy from Oslo, Norway
« Reply #5 on: May 30th, 2005, 2:26am »
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Your a good man Svenn, thanks for helping the folks  Wink
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

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Re: New guy from Oslo, Norway
« Reply #6 on: May 30th, 2005, 6:23am »
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Grin
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Re: New guy from Oslo, Norway
« Reply #7 on: May 30th, 2005, 8:32pm »
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Welcome to the website, Freaksh0.  Looks like you got something going on there, but I wouldn't want to make bet on what.  Before you start asking for the ch meds, you should get a proper diagnosis from a neurologist well versed in ch.  An MRI would be a good idea as well.  None of us are doctors, so we can only tell you from our personal experiences what we think it sounds like and what has worked for us.  
 
Some of your symptoms sound like ch and others do not.  CH attacks don't usually last more than 3 hours and state of mind rarely has anything to do with getting or not getting an attack.  I've been happy as a clam one minute and banging my head the next.  CH typically stays one sided, with the odd slap on the opposite side or sometimes changing sides on subsequent cycles.  I don't think I've heard anyone here say theirs alternates from one side to the other on each subsequent attack.  The attacks aren't "occassional" either.  Typically, they come about the same time every year with attacks ranging from one every other day to eight times per day and lasting 15 minutes to 3 hours.  Either that or some of the "luckier" people (like gawd who did I piss off to deserve this) are chronic and just get hit every day, sometimes several times a day for years or decades on end.  
 
Get with Svenn and his neurologist.  They'll get you pointed in the right direction.  Svenn's a good man who has done a lot for clusterheads in your neck of the woods.
 
Good luck and keep us posted on what you find out.
 
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thomas
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Re: New guy from Oslo, Norway
« Reply #8 on: Jun 2nd, 2005, 11:21am »
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If you get a chance please meet with Svenn, he is a very smart, compassionate man.  He will guide you and offer more help than just about any one I know.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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Re: New guy from Oslo, Norway
« Reply #9 on: Jun 5th, 2005, 11:13am »
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Hello freaksh0,
Sorry to hear you're in pain. I have to go along with Gator on this one. Get to a good neurologist and have the tests done. Please let us know what you find out.  
Best of luck to you.
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Stay stressed. Never relax. Never sleep. Ever.
The  mad viking
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Re: New guy from Oslo, Norway
« Reply #10 on: Jun 6th, 2005, 1:02pm »
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on Jun 2nd, 2005, 11:21am, thomas wrote:
If you get a chance please meet with Svenn, he is a very smart, compassionate man.  He will guide you and offer more help than just about any one I know.

 
 
 
Thanx for those kind words Thomas.
 
He can contact me by mail anytime if he feels to have a meeting
 
Svenn
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