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alchemy
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I was wondering if anyone out there has ever blackedout during a cycle. i had just come off a ch and was at my wife's store. i had just started laughing at a joke to cheer me up when the next i knew i was laying on the floor not knowing where i was. my blood pressure went to 180 over 110. the er said it was due to my cluster which i got another in the ambulance and laughing. has anyone heard of this or am i just totally breaking down. jim
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E-Double
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Re: blackouts
« Reply #1 on: May 16th, 2005, 3:42pm » |
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No clue......never happened to me but that is not to say that it hasn't to some others
What meds r ya on??
The only thing that I can come close to is passing out from the exhaustion of "battle"
Sorry and I hope it is nothing serious!!
E
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nani
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Re: blackouts
« Reply #2 on: May 16th, 2005, 3:44pm » |
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Some folks have reported passing out at the peak of a cluster, however, I haven't seen them describe what you have described. Frankly, it sounds concerning. Please follow this up with your dr. That BP was dangerously high.
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LeLimey
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Re: blackouts
« Reply #3 on: May 16th, 2005, 4:04pm » |
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on May 16th, 2005, 3:25pm, alchemy wrote:| I was wondering if anyone out there has ever blackedout during a cycle. i had just come off a ch and was at my wife's store. i had just started laughing at a joke to cheer me up when the next i knew i was laying on the floor not knowing where i was. my blood pressure went to 180 over 110. the er said it was due to my cluster which i got another in the ambulance and laughing. has anyone heard of this or am i just totally breaking down. jim |
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That is terrifying. Has it ever happend before? Please please please go straight to the doctor and get it checked out. It may have nothing to do with the ch and as Nani says that BP is extremely worrying.
Let us know how you get on okay cos I'm going to be worrying now
Regards
Helen
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alchemy
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Re: blackouts
« Reply #4 on: May 16th, 2005, 4:18pm » |
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its never happened before. i saw the neuro a few days after (this happened a week ago) and they said it was a combo of the ch and laughing. i think it was to much meds. they increased my verap to 960mg.
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LeLimey
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Re: blackouts
« Reply #5 on: May 16th, 2005, 4:21pm » |
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have you had an ECG?
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alchemy
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Re: blackouts
« Reply #6 on: May 16th, 2005, 4:51pm » |
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not sure, i was pretty confused in the hospital, and for a few days after
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LeLimey
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Re: blackouts
« Reply #7 on: May 16th, 2005, 5:27pm » |
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Thats a high dose. (not unusually high, there are others on similar doses) I would strongly urge you to find out of you have had an ECG and if not to have one. In light of the black outs I don't think you can be too careful.
Seee????! Its like having an extra mum having me nagging you isn't it?! 
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alchemy
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Re: blackouts
« Reply #8 on: May 16th, 2005, 5:53pm » |
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i wouldn't call it nagging. i'm afraid i'm asking to many questions. i've had noone to talk to about this and i'm afraid i'm bugging all of you with my dumb questions and situation
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LeLimey
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Re: blackouts
« Reply #9 on: May 16th, 2005, 5:57pm » |
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on May 16th, 2005, 5:53pm, alchemy wrote:| i wouldn't call it nagging. i'm afraid i'm asking to many questions. i've had noone to talk to about this and i'm afraid i'm bugging all of you with my dumb questions and situation |
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OK Jim - hold that thought......................
Now kick it 'til its dead!! 
You can't ask too many questions, and don't forget, each and every one of us was new here once. Its quite a ride when you first sign up.. you alternate between exhilaration and confusion, there is alot to take in and we all want to run before we can walk
We are here to help you though, others were here for me and I can never repay the lifeline they gave me. All I can do is try and pay it forward. I know once you find your feet you will be doing the same!
Now.. ask away, the only stupid question is the one you are afraid to ask (I read that here BTW!)
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alchemy
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Re: blackouts
« Reply #10 on: May 16th, 2005, 6:03pm » |
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i really appreciate the support and hope i can do the same for anyone out there. you guys are really special people
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Ghost
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Re: blackouts
« Reply #11 on: May 17th, 2005, 12:55pm » |
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Well good news I too have blacked out from the pain and bp shot up fast. according to the doc at the er here the body shut down to fight the pain and bp shot up because of the reaction of the pain. I have only had it happen 1 time also but once is enough. Basically you had (as the doc told me) ran a marathon without taking a step. the body will shut down occasionally from that amount of stress/abuse. I like you seemed to have ramped to full pain limits way to fast. Well hope that helped and I hope you dont get hit that hard ever again. Good luck
Mike
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alchemy
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Re: blackouts
« Reply #12 on: May 17th, 2005, 6:17pm » |
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Thanks for the info. I thought I was just totally breaking down physically. probably stil am, but the info helps. my docs said about the same as yours, to much pain, nowhere for it to go. wishing you and everyone pfdann jim
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Jonny
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Re: blackouts
« Reply #13 on: May 25th, 2005, 6:25pm » |
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on May 16th, 2005, 5:57pm, LeLimey wrote:| each and every one of us was new here once. Its quite a ride when you first sign up.. you alternate between exhilaration and confusion |
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Speak for yourself Brit, I came and put my boot in a few asses....thats why you all now call me your KING!!! 
Or have you forgoten that 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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LeLimey
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Re: blackouts
« Reply #14 on: May 26th, 2005, 8:33am » |
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on May 25th, 2005, 6:25pm, Jonny wrote:
Speak for yourself Brit, I came and put my boot in a few asses....thats why you all now call me your KING!!!
Or have you forgoten that |
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Jeez Jonny... How can I forget when you won't let me?! Now shuddup and get back on your throne.....
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drwalker
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Re: blackouts
« Reply #15 on: May 27th, 2005, 7:08am » |
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I myself frequently black out from CH...sometimes they're brief, sometimes they're fairly long. I believe that the extreme pain and high blood pressure (mine occasionally goes over 200 over 130) may be triggering an "Absence Seizure" as defined on Webmd. I myself am a chronic CH sufferer, and I have tried all preventative medications except lithium, and none of them have helped. I have a prescription for Oxygen, but Medicare refuses to pay for it because I don't have emphesima, and the CH are debilitating enough that I can't hardly leave my house, much less work. I usually suffer 8-10 attacks per day, and since Jan 2nd, 2004, I only recall 5 days that I DIDN'T have an attack. If anyone has suggestions, I am all ears. I also have a symptom that I can't find documentation on, but I was wondering if anyone has uncontrollable muscle spasms during KIP 9 or 10's as I do (they almost seem like DT's or seizures).
Sincerely stuck in 9-10,
DougLass Walker
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KMT
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Re: blackouts
« Reply #16 on: May 27th, 2005, 2:19pm » |
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THE ONLY STUPID QUESTION IS AN UNASKED ONE.
Sorry just wanted you to know that if you don't ask then how can we help.
No blackouts here but have hyperventilated a few times. BP has gone 151/105 due to the pain though. I think that is the only reason that the staff at the ER believed I was in pain. 
Take care PF wishes and welcome...Kim
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aka...................................................... KimY
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