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Topic: I'm a new guy! (Read 245 times) |
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Kisoon
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I'm a new guy!
« on: May 11th, 2005, 11:39am » |
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hello,
Im new here so...
I thought id make a quick post. About 6months ago i had my first cycle, Last week it started again and i thought i was gonna die, plain and simple. I went to the doc who diagnosed me as suffering from CH (not the chronic variety thank god)
As i knew nothing about what it is i have i googled it and voila, found this site.
Im glad ive found some people who can grasp the concept of how much pain is involved. Luckily the medication they gave me seems to work well for me.
Stay cool
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E-Double
CH.com Alumnus
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Are we ourselves?
  
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Re: I'm a new guy!
« Reply #1 on: May 11th, 2005, 12:05pm » |
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Welcome to the funny farm!!!
You'll find a ton of support, education and many laughs.
Best to ya on your journey and PF wishes!!
Eric
Oh yeah ..you may want to check out the OUCH UK site since that is where you live 
http://www.clusterheadaches.org.uk/home/index2.cfm?address=../home/txt_w elcome.cfm&added=Dec2001&code=AD
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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LeLimey
CH.com Alumnus
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OUCH-US - Less "ME" and more "WE"
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Re: I'm a new guy!
« Reply #2 on: May 11th, 2005, 12:28pm » |
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Hello!
Nice to meet you! Are you in cycle at the moment? (I'm dead nosey - comes from being an ex-Londoner y'know ) What meds are you on when you are in cycle? Theres loads here for you to read up on and also on the OUCH UK site which is really good as it has the meds etc you can get prescribed in the UK as well as nice people of course! The OUCH UK annual conference is in London in June and it might be of interest to you to come along to that as well so do be sure and have a look.
In the meantime, pull up a pew and tell us a bit more about yourself
Best wishes for PFDANS
Helen (exiled in Nottinghamshire)
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Bob_Johnson
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Re: I'm a new guy!
« Reply #3 on: May 11th, 2005, 4:31pm » |
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Good information:
WWW.MELDRUM.DEMON.CO.UK/migraine. At bottom of home page, look for FAQ on clusters: four sections of extensive material; strong on treatment options.
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Bob Johnson
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Kisoon
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Re: I'm a new guy!
« Reply #4 on: May 12th, 2005, 9:45am » |
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Yes i am in a cycle  hopefully it will only last for another 7days, My first cycle lasted a little over 3weeks then i was fine for about 8 months.
During my cycle the big hitter tends to come at night. Waking up in tears at 2.00am is my speciality. Oh how i wish i could sleep,
I've been given tramadol. It helps good with the shadows but it dont think it makes a dent in the big boy.
I dont really know about treatments apart from that my doc said tramadol was good first med to try.
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| « Last Edit: May 12th, 2005, 9:46am by Kisoon » |
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LeLimey
CH.com Alumnus
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OUCH-US - Less "ME" and more "WE"
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Re: I'm a new guy!
« Reply #5 on: May 12th, 2005, 10:34am » |
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kisoon ask him to try o2 its unbelievable I promise you! Look on the OUCH uk site at the list of meds, you might want to consider imigran injections too if they won't conflict with your general health, they aren't suitable for everyone. Under o2 on ouchuk look at the CD oxygen. They are tanks with inbuilt regulators which are quite small but perfect for both trying o2 and for taking round and about with you. Its my first choice for an abortive every single time. Tramadol will potentially give you rebounds too and you don't want that!
Keep your chin up.. we'll help you get through this
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: I'm a new guy!
« Reply #6 on: May 12th, 2005, 10:48am » |
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Warm welcome to ch family!
I'm so sorry that you've got ch and you're in cycle. 
We're here for you... 
Best wishes & PF days'n'nights,
Sandie
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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KMT
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Re: I'm a new guy!
« Reply #7 on: May 12th, 2005, 11:07am » |
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Welcome to the family, sorry you have a reason to be here. But there is no greater place you could be for understanding and support. PF wishes........Kim
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aka...................................................... KimY
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E-Double
CH.com Alumnus
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Re: I'm a new guy!
« Reply #8 on: May 12th, 2005, 1:10pm » |
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This is a great resource to know like the back of your hand...print it out and give it to him
http://www.brightok.net/~mnjday/chtherapy.pdf
It will present the appropriate treatments that you should seek and your doctor should know!!!
FIGHT FOR Oxygen...
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
Educate your doc and/or find a CH familiar doc!
Best wishes,
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Kris_in_SJ
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There's no place like home.
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Re: I'm a new guy!
« Reply #9 on: May 12th, 2005, 8:37pm » |
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Ditto to Eric. Welcome to the family and warm wishes for PFDAN!
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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