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jenk
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not sure its really a cluster
« on: Apr 29th, 2005, 10:51am » |
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ok, so the docs say these things are cluster headaches, but i can not find a single discription on the net that matches what i have! so... does anyone else suffer from quick, frightening, intensly painful bursts of pain? Sometimes, there is a dull ache in the back ground but nothing I can't live with. I can have up to 3 in a minute and 20 in an hr. They make me jump and cringe, sometimes I have to yell out. I have almost driven off the road (from taking my hands of the wheel and grabbing my head). After the 4th or 5th day, my left side of my face gets funny and my vision and reflexes slow. I also seem to loose some ability to choose words. This improves when they stop, but that could be weeks. Also after a few days, I run the risk of blacking out for a few seconds (again, makes driving difficult!). And the biggest difference from what I've read is that alcohol seems to slow them down. Does this sound familiar to anyone?
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pattik
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Re: not sure its really a cluster
« Reply #1 on: Apr 29th, 2005, 10:57am » |
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You are not describing cluster at all, that I can see. In fact, it sounds as if you need to get yourself to a neuro who knows headaches as soon as possible. Your symptoms sound dangerous. Alcohol is definitely a no-no for active clusters.
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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andy
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Re: not sure its really a cluster
« Reply #2 on: Apr 29th, 2005, 11:02am » |
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Sounds like it could be Trigeminal Neuralgia, TN
Very painful shock like pain that shoots up your face.
Do a google search on Trigeminal Neuralgia and see what you come up with.
http://www.mayoclinic.com/invoke.cfm?id=DS00446
Tegritol was the only med that helped me get through it.
............andy
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jenk
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Re: not sure its really a cluster
« Reply #3 on: Apr 29th, 2005, 11:03am » |
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thats what i keep telling them! they started back up again a few days ago.... everytime they start, its worse and last longer. I had a student in the next office who asked a co-worker if i had terrets (spelling may be wrong). I am willing to live with pain, but this is nuts. Thanks for you input!
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jenk
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Re: not sure its really a cluster
« Reply #4 on: Apr 29th, 2005, 11:07am » |
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thanks andy!! i'll check it out!
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andy
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Re: not sure its really a cluster
« Reply #5 on: Apr 29th, 2005, 11:13am » |
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Get to a neurologist. Its easier to diagnose TN than Cluster Headaches. Its also called "tic doloreaux"
Good luck and hope its something other than TN or CH
.........andy
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mcf69
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Re: not sure its really a cluster
« Reply #6 on: Apr 29th, 2005, 11:56am » |
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Jenk,
There is a third disorder related to the trigeminal nerve (which I can't think of right now), that will cause the symptoms you've mentioned, bouts of pain rapidly following one another, followed by remission, then over and over again. Check it out with a neuro, and I'll see if I can find any more info on it.
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mcf69
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Re: not sure its really a cluster
« Reply #7 on: Apr 29th, 2005, 12:05pm » |
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Just found it, Paroxysmal Hemicrania:
http://www.emedicine.com/NEURO/topic67.htm
It does share alot of symptoms with clusters, but is different in the frequency of attacks, and it is quite a bit rarer than clusters
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Bill-G
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Re: not sure its really a cluster
« Reply #8 on: Apr 29th, 2005, 12:35pm » |
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I've just been pooping on the read the boards but your symptoms stuck me as being something other than CH
you say:
I can have up to 3 in a minute and 20 in an hr.
You might try looking up 'Ice pick Headaches'
Hope this helps 
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Had heard about CH and wondered if anything could posiiblly be all that bad. Seriously thinking of having idiot tatoo done on my forehead now
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E-Double
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Re: not sure its really a cluster
« Reply #9 on: Apr 29th, 2005, 12:39pm » |
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Look up....
SUNCT
Idiopathic stabbing headaches...(icepicks)
Paroxysmal Hemicrania
In addition to CH I get icepicks......fun shit but completely undercontrol with indomethacin.
All the above HA's are treatable with indo.
Good luck!!
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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TonyG1
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Re: not sure its really a cluster
« Reply #11 on: Apr 30th, 2005, 8:07pm » |
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on Apr 29th, 2005, 10:51am, jenk wrote:| After the 4th or 5th day, my left side of my face gets funny and my vision and reflexes slow. I also seem to loose some ability to choose words. This improves when they stop, but that could be weeks. Also after a few days, I run the risk of blacking out for a few seconds (again, makes driving difficult!). |
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Hey Jenk -- Sorry you're having problems !! 
This is troublesome ...Consider this the 11th commandment ---  Get thee to a good Neuro to have this checked out !!!
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jenk
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Re: not sure its really a cluster
« Reply #12 on: May 2nd, 2005, 9:22am » |
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Thanks for all the helpful info! For those of you with the ice-pick headaches, any good home remedies? New job, no health insurance for awhile longer.... and curled up in a ball on my bedroom floor just isn't cutting it! Tried over the counter stuff, that of course is worthless... tried breathing deeper, vinegar on a warm cloth on my head, tried caffeine... My regular miagrain meds don't help a bit.... Suggestions?
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thomas
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Re: not sure its really a cluster
« Reply #13 on: May 2nd, 2005, 12:17pm » |
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Sounds an awful lot like CPH, which Eyes has listed a link for above.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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