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Topic: Just a Quick Hello (Read 369 times) |
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Bamalady
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Just a Quick Hello
« on: Apr 9th, 2005, 1:36pm » |
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I have been lurking and reading for awhile, and thought I would take the time to say hello. It seems that I am another clusterhead, and I am so glad to find you all. It would also seem that I am now chronic....16 months without a break of more than a week without a headache.
I have taken the survey and recently seen a neurologist. He gave a diagnosis but really didn't seem to know much about the disorder. I may have to look farther, but am going to try some of the alternative treatments first.
I was at WalMart yesterday and looked for the Melatonin, but they did not have any. Any other places I can look?
My headaches began following a medical procedure, and were fairly easy to get under control. I tapered off the meds and was PF for 2 years, and then they returned. While they are pretty much controlled now (break through about once a week), I cannot get off the meds without them hitting me. UGH!!!!
I would especially like to chat with anyone whose headaches began following a medical procedure, although all are welcome.
I will be in and out as I am still doing some reading.
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Bama
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pattik
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Re: Just a Quick Hello
« Reply #1 on: Apr 9th, 2005, 1:51pm » |
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Hi Bamalady,
Sorry you needed to find this site, but welcome. You are doing the right thing by looking around this site. There is a lot to be learned here. And many of the members here are chronic and may be able to offer you some help. You might click on the cluster quiz link on the left to compare your symptoms, since your neuro isn't up on clusters. And if you check out the "where we live" link, you might find some people in your area to contact regarding doctors who can help you. As far as melatonin is concerned, most of the major national chain drug stores would probably carry melatonin in their natural supplement areas. It is certainly worth a try.
All the best to you. pk 
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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Bamalady
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Re: Just a Quick Hello
« Reply #2 on: Apr 9th, 2005, 2:09pm » |
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Hi Pattik-
Thanks for the welcome.
I took the quiz. The only answer that was off was for #9, because my headaches do occassionally change sides, although it is rare.
Thanks for the info on where to look for the Melatonin. I will find it next time I am out.
I am going to look for the Kudzu as well. It grows abundantly here, so if I am unable to find it in pill form, I can always dig some roots.
Thanks for the response.
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Bama
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E-Double
CH.com Alumnus
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Are we ourselves?
 
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Re: Just a Quick Hello
« Reply #3 on: Apr 9th, 2005, 5:29pm » |
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changing sides is not too rare...it's having an attack on both sides at the same time that rules out CH......
Welcome and wishing you relief!!!
Here is a great resource to know like the back of your hand
http://www.brightok.net/~mnjday/chtherapy.pdf
It will present the appropriate treatments that you should seek and your doctor should know!!! Print it out and give it to doctor to memorize!!!
Demand Oxygen for your house and for travel (can get different size tanks) read and print this out!!!
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
Wishing you the best !!
Best,
Eric
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Kris_in_SJ
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Re: Just a Quick Hello
« Reply #4 on: Apr 9th, 2005, 8:12pm » |
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Welcme Bamalady,
Sorry you had to find us, but glad you did.
Follow Eric's link. It's the best drug information available. And keep reading. With cluster headaches, knowledgeable sufferers are their own best advocates for the correct treatments. The frequent challenge is finding a doctor who will work WITH us, rather than try to play the part of an expert.
PF Wishes,
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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Bamalady
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Re: Just a Quick Hello
« Reply #5 on: Apr 9th, 2005, 10:15pm » |
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Hi Eric-
I had already read the info at the links you left...saw them on another post....., but thanks. I will run it off and take it to my next appointment with me.
Headache on both sides??!!! Oh my, I hate to even think about that. The one side is more than enough as far as I am concerned!! Nope, never had one that was on both sides.
Hi Kris-
I learned a long time ago that I have to advocate for myself. It really is a shame how some physicians behave, isn't it?
There certainly are enough females on this board to make me wonder why a Dr. would say this is a "man's problem", as I was told.
Thank you both for the welcome. I am still reading!!
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Bama
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Redneck
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Sorry you gotta be here, no one wants the "beast". glad you got here and found information that may help. As to (doctors) don't get me started, I fired more than I care to count 
Good luck and hope you find more treatments that work well for you.
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Bamalady
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Re: Just a Quick Hello
« Reply #7 on: Apr 10th, 2005, 9:25pm » |
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Hi Redneck-
Thanks for the kind words. I now have some of the Melatonin and am going to give that a try. It just seemed the logical choice since the majority of my headaches occur in the early morning hours. It is a horrible way to wake up.
I've fired a few Dr.s myself....including the one that started this whole thing. 
Wish me luck everybody. I will let everyone know how it goes.
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Bama
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