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Topic: hello (Read 342 times) |
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skyboy
New Board Newbie
I love YaBB 1G - SP1!
Posts: 8
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Hi everyone I'm a newbie here I have had CH since I was 19 I'm 50 now and still get them but only in the spring and fall. It took doctors over 20 years before one found out what my headaches was. I have lost many jobs because of CH and got a few scars where I would beat my head against brick walls to try and releive the pain. I was woke up last night at 3 am with a CH then it occured to me its spring one of the dreded times of the year for me.
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Sean_C
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I've walked in your shoes Sky as did many others here, life wasn't easy thats for sure.
Do you have any meds, can you take any meds?
Sean........................
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jokrs2
New Board Old Timer
Eventually He will make us pain free!
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Posts: 480
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Re: hello
« Reply #2 on: Apr 3rd, 2005, 10:41pm » |
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Welcome aboard skyboy.
Hope that your pain abates soon. Lots of info and people who understand what you're going through in here. What meds are you taking? Blessings, Joe
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Given strength, courage & a sound mind!
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TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
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Posts: 3201
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Re: hello
« Reply #3 on: Apr 3rd, 2005, 11:53pm » |
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Welcome to the board.
You didn't mention any meds you take. You might check out the threads on Melatonin. You can buy it at Wally World, cheap.
Alot of us here have enjoyed some PF time when taking the Melatonin. You might have to play with the dosage. I started with 3mg, then increased a couple of times to 9mg, then back down again.
Worth a shot.....especially if you get the nightime hits.
Good luck....PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
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I adopted a Vietnam POW/MIA from El Paso, Texas! 
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mynm156
New Board Hall of Famer
hope life isn't a big joke, because I don't get it
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Re: hello
« Reply #4 on: Apr 4th, 2005, 12:43am » |
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Greetings Skyboy
Sorry that you ae one of us. I am glad that you found us. Welcome aboard!
Your Brother in Pain
MYNM156
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"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
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skyboy
New Board Newbie
I love YaBB 1G - SP1!
Posts: 8
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Re: hello
« Reply #5 on: Apr 4th, 2005, 9:02am » |
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No I have never taken meds I usually ride it out until they stop.
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jennybaby
New Board Newbie
"He without sin cast the first stone".
 
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Posts: 24
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Re: hello
« Reply #7 on: Apr 4th, 2005, 9:08am » |
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Hi,Welcome and sorry that some doctors have their head in their ass.It took me A while to get diagnosed too.Thank God you found this place for us clusterheads.I have been suffering with clusters for 14+years.I know now it might have been longer.I was sooo lost until I found this place.I had always wished I could meet even just one person that was like me.Now we have A whole family like us.Its just our circumstances really suck!!!Hey but at least we have us...Glad to meet you.And I know how it feels to lose plenty of jobs.It sucks too.  Anyway Welcome to Clusterville!!!!!  Jen
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And the Lord GOD will wipe away tears from all faces;Isaiah 25:8
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BobG
New Board Hall of Famer
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Re: hello
« Reply #8 on: Apr 4th, 2005, 9:25am » |
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on Apr 4th, 2005, 9:02am, skyboy wrote:| No I have never taken meds I usually ride it out until they stop. |
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There is something to say for the med-free route. Many here claim that some meds tend to extend the cluster period and some meds, like imitrex, may cause rebound headaches. I'm like you. I have taken almost no meds and just suffered through.
There are some non-med meds you can try though. Pure oxygen, melatonin, kuduz and the schroom treatment. Also ice packs or heat packs.
Welcome to the board.
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Stay stressed. Never relax. Never sleep. Ever.
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seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
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Re: hello
« Reply #9 on: Apr 4th, 2005, 9:52am » |
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Hey skyboy,
Your description of your cycle and your approach to it has mirrored mine. After watching my Dad take a variety store of meds that never seemed to help him I chose to go the "gut it out" route for the past 15 years.
This year was the first time I tried anything, when I read about the Kudzu. I gave it a go and feel as though it had a good effect by shortening or stopping my cycle --- without side effects of many of the meds you see written about on the boards.
I've also realized that "gutting it out" isn't the only approach and that some of the proactive treatments that seem to have some effect are worth getting in place before my next cycle -- particularly the O2. For myself, I'm still not going the route of all the meds, but I see I'm not taking advantage of some of the "easier" ones. So, as I learned this year, don't write off the idea that some appropriate relief measures may be worth trying.
I hope your cycle will be short.
Scott
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seasonal boomer
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skyboy
New Board Newbie
I love YaBB 1G - SP1!
Posts: 8
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Re: hello
« Reply #10 on: Apr 4th, 2005, 11:31am » |
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thanks everyone I will have to try some of the non med methods. right now I can't afford to go to a doctor I had a spinal fusion 2 years ago that left me with more pain than I had to begin with and now one of the screws is coming out. I had to quit my job and apply for disability been fighting that for over 2 years. I don't have any insurance so its pay as I can.
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thudpucker
New Board Junior
There's a shadow hanging over me.
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Re: hello
« Reply #11 on: Apr 4th, 2005, 5:14pm » |
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I'll second the recommendation for melatonin for nighttime hits.
I duked out two years without any meds at all, then this year tried 6mg melatonin, and it's kept me mostly pain free for this cycle (which should be ending Any Minute Now).
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Kris_in_SJ
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There's no place like home.
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Re: hello
« Reply #12 on: Apr 4th, 2005, 8:18pm » |
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Hi Skyboy,
Welcome to the board. Sorry you have to be here. Having clusters is bad enough, but living without insurance and with disability is a triple whammy!
Try the Melatonin if you're having night hits. Many of us take 6-9mg before bed (some take more). It's available OTC just about in any store. The Kudzu also seems to be helping many people here. Read the thread on it under Medications and Treatments. I haven't found it anywhere in my community, but it's readily available on-line for not much money.
If your suffering can be relieved even a little with natural, inexpensive methods, I encourage you to try them. No person should have to "suffer through" an entire cluster cycle if the relief is there somewhere.
Regardless, you've found a family of sufferers here. Keep posting.
Many Hugs,
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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skyboy
New Board Newbie
I love YaBB 1G - SP1!
Posts: 8
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Re: hello
« Reply #13 on: Apr 4th, 2005, 10:52pm » |
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thanks so much everyone I will try the melatonin this group has already been a blessing. haveing CH for 20 years and not knowing anyone else to have it has been hard. I'm really glad I found you.
Skyboy
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RichardN
New Board Hall of Famer
 
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Re: hello
« Reply #14 on: Apr 6th, 2005, 12:20am » |
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Hi Skyboy and Welcome
Make sure you check out the oxygen info link (left of screen). For those of us it works for . . . tis' a miracle . . . . can kill the beast in minutes and avoid many a dance.
Much info/caring/sharing here from folks who truly know your pain.
Be Safe, PFDANs
Richard
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I can live with the beast as long as I don't have to "dance" with the bastard.
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wifesupporter
New Board Newbie
Stronger day by day
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Posts: 24
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Re: hello
« Reply #15 on: Apr 8th, 2005, 6:42pm » |
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as a supporter who just found this site as well I had found that your local health food store should be able to order kudzu from their suppliers and going that way will save you the cost of shipping that occurs by online ordering. Its been 6 years for my wife with no real meds as the Dr's here didn't feel delving into the CH line was worth telling me. Research and all the support here is the best remedy. What doesn't kill us will only make us stronger. PF wishes to all.
Steve
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