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Topic: Saturday Night Special (Read 325 times) |
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Fig
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Let It Be
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Saturday Night Special
« on: Apr 2nd, 2005, 11:00pm » |
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Thanks, guys, for all your helpful replies. Let me fill you in a bit on me--it may help. Some years ago I did get a diagnosis of cluster headaches, but from everything I hear everyone saying I begin to wonder. I do get tension headaches and migraines and other real horrors---God knows what they are!! I grt those "lightning bolts" and brain crushers and....... I take a lot of meds---Celexa, Topomax, Buspar (for depression and anxiety) Inderal (for my heart) Ibuprofin (for arthritis, other pain) Fosomax (osteoporosis) Vicodin(pain--only when I really need it) Ambien (sleep--when I really need it). Yeah I know. I'm a pharmacy. I've had my headaches like forever. but they seem to be getting worse. I do suffer from depression (big time) and anxiety. I live alone, have a pretty quiet, lonely life. I have 7 birds ( 6 parrots and a Mourning Dove) whom I love dearly. I'm a strict vegetarian. I do volunteer work at the zoo 2 days a week..... That's about it. I hope you all are feeling fine and are pain free. Marion 
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BobG
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Re: Saturday Night Special
« Reply #1 on: Apr 3rd, 2005, 5:49am » |
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Welcome to the board Marion. Sorry you are hurting.
That's a lot of meds you're on. Hope you have cross-referenced them to be sure they are not fighting each other and causing more problems than they are fixing.
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Stay stressed. Never relax. Never sleep. Ever.
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Bob_Johnson
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Re: Saturday Night Special
« Reply #2 on: Apr 3rd, 2005, 9:31am » |
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This is why it's so critical to find a doc who knows headache--diagnosis and treatment.
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Headache. 2000 Oct;40(9):730-5. Related Articles, Links
The misdiagnosis of cluster headache: a nonclinic, population-based, Internet survey.
Klapper JA, Klapper A, Voss T.
Colorado Neurology and Headache Center, Denver 80218, USA.
OBJECTIVE: We conducted the first nonclinic, Internet-based survey of cluster headache to investigate this population with regard to diagnostic problems encountered, effective and ineffective medications, problems obtaining medications through third-party payers, and symptoms as they relate to International Headache Society criteria. BACKGROUND: Previous cluster headache surveys have been at specialty centers. These patients might be different from cluster headache sufferers in the general population. An Internet-based population of cluster headache sufferers who connected to a Web site responded to the questionnaire, and e-mailed it back to our site to be analyzed. We analyzed a total of 789 respondents, 76% men and 28% women. RESULTS: Eighty-seven percent of respondents qualified as having cluster headache according to International Headache Society criteria. However, diagnosis was delayed an average of 6.6 years from the onset of symptoms. The average number of physicians seen before the correct diagnosis was made was 4.3, and the average number of incorrect diagnoses was 3.9. Seventy-one percent of respondents had undergone unnecessary magnetic resonance or computed tomography scans, and 4% had unnecessary sinus or deviated septum surgery. We found that many inappropriate medications such as propranolol, amitriptyline, and antibiotics were prescribed and that successful medications for clusters such as sumatriptan and oxygen were often denied due to a failure to understand the nature of this disorder. Seventy-seven percent of respondents were smokers. Seventy-four percent stopped smoking in an attempt to improve their condition; however, only 3% experienced relief. CONCLUSIONS: The most alarming finding was the delay in diagnosing cluster headache in this population--an average of 6.6 years. The selection of medications demonstrated to be successful in the treatment of clusters proved effective for the majority of this population. Many respondents reported being denied some of these effective medications by their physicians or third-party payers. Using International Headache Society criteria for cluster headache, 87% of the respondents should have been correctly diagnosed by the first physician seen.
PMID: 11091291 [PubMed - indexed for MEDLINE]
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Bob Johnson
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jokrs2
New Board Old Timer
Eventually He will make us pain free!
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Re: Saturday Night Special
« Reply #3 on: Apr 3rd, 2005, 10:06pm » |
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Thanks for the report Bob. Because I've been under my wifes ins. under an hmo I have only been seen by 3 doctors in the last 20 years, so I would have had to see 1 1/2 more doctors to get the correct diagnosis. This website helped my doctor correctly diagnose me. PFD's, Joe
ps 31 hours out of shadow because of a small LSA dose (2 seeds) non-hallucinatory or trip. First time out of shadow in over 13 years.
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| « Last Edit: Apr 3rd, 2005, 10:07pm by jokrs2 » |
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Given strength, courage & a sound mind!
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mynm156
New Board Hall of Famer
hope life isn't a big joke, because I don't get it
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Re: Saturday Night Special
« Reply #4 on: Apr 4th, 2005, 12:46am » |
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Greeting FIG,
Glad that you were able to find us. However, I am sorry that you too are one of us.
Good Vibes and PF DAYS ahead for all of us.
Your Brother in pain
MYNM156
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"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
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javi_spain
New Board Newbie
I love YaBB 1G - SP1!
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Re: Saturday Night Special
« Reply #5 on: Apr 4th, 2005, 7:01am » |
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Hi Fig
Sorry that you are suffering such pains.
Sounds like a lot of meds. Hope you can find good alternative here.
As miapet would say:
Positive light and energy.
Regards
Javier
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KMT
New Board Hall of Famer
Fun loving @ heart
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Re: Saturday Night Special
« Reply #6 on: Apr 9th, 2005, 11:12am » |
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Welcome Marion, sorry you are hurting but glad that you found us. 
Hope you can start getting some relief. This is the place for tons of information and advise....
Kim
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aka...................................................... KimY
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