Author |
Topic: misery loves company (Read 465 times) |
|
lanna
New Board Newbie
I love YaBB 1G - SP1!
Posts: 6
|
 |
misery loves company
« on: Mar 21st, 2005, 9:38pm » |
 Quote  Modify
|
hi I am a female, currntly suffering from clusters i ould like to talk to someone else who understands
|
|
 IP Logged |
|
|
|
BobG
New Board Hall of Famer
Gender: 
Posts: 5747
|
|
Re: misery loves company
« Reply #1 on: Mar 21st, 2005, 9:59pm » |
Quote Modify
|
Hello lanna from Andover.
Welcome to the board. We all understand. What would you like to talk about?
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
Langa
CH.com Alumnus
New Board Hall of Famer
So many donuts, such little time...
Gender: 
Posts: 4179
|
|
Re: misery loves company
« Reply #2 on: Mar 21st, 2005, 9:59pm » |
Quote Modify
|
Hi Lanna and Welcome...
For starters, everyone here understands. Tell us more about yourself. Have you been diagnosed as a cluster sufferer? If so, what meds are you currently on?
I'm sorry that you're here, but glad you found this awesome family. 
Langa
|
|
IP Logged |
When you saw only one set of footprints, it was then that I carried you.
|
|
|
lanna
New Board Newbie
I love YaBB 1G - SP1!
Posts: 6
|
|
Re: misery loves company
« Reply #3 on: Mar 21st, 2005, 10:13pm » |
Quote Modify
|
hi I was diagnosed when I was 20 I'm 49 now. Ive been tlod recently by a doctor that they probably arn't clusters because I'm a woman. I used to go about 6 years between episode but, I'm in one now and I was in one 2 years ago.
|
|
IP Logged |
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: misery loves company
« Reply #4 on: Mar 21st, 2005, 10:47pm » |
Quote Modify
|
"Probably" aren't clusters? Did you ask him what they "probably" are? To clear up any doubts in your own mind there is a 'cluster quiz' button on the left side of your screen.
The idea that women don't have clusters was proved false many years ago. Your doctor needs a refresher course.
Women DO have clusters. After you get used to this board you will see that there are as many women as men here. And we have have many women that are supporters of clusterheads. Damned fine ladies, all of them.
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
jokrs2
New Board Old Timer
Eventually He will make us pain free!
Gender:
Posts: 480
|
|
Re: misery loves company
« Reply #5 on: Mar 21st, 2005, 11:26pm » |
Quote Modify
|
I'm ditto with Bob. We're here for you. The word probably should probably be taken out of the dictionary.
Just my opinion. Hang in there, lana
|
|
IP Logged |
Given strength, courage & a sound mind!
|
|
|
Charlie_-_Florida
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 7
|
|
Re: misery loves company
« Reply #6 on: Mar 21st, 2005, 11:48pm » |
Quote Modify
|
Well, welcome. Like you, if they are clusters, they are real demons.
What have you tried so far ?
|
|
IP Logged |
|
|
|
Charlie_-_Florida
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 7
|
|
Re: misery loves company
« Reply #7 on: Mar 21st, 2005, 11:50pm » |
Quote Modify
|
Anyone out there ? We cluster suffers, are family.
|
|
IP Logged |
|
|
|
BobG
New Board Hall of Famer
Gender:
Posts: 5747
|
|
Re: misery loves company
« Reply #8 on: Mar 22nd, 2005, 12:06am » |
Quote Modify
|
Hey Charlie Florida, Welcome.
There's lots of us out there. Whatcha need?
Please let us know how you're doing.
|
|
IP Logged |
Stay stressed. Never relax. Never sleep. Ever.
|
|
|
jokrs2
New Board Old Timer
Eventually He will make us pain free!
Gender:
Posts: 480
|
|
Re: misery loves company
« Reply #9 on: Mar 22nd, 2005, 2:57am » |
Quote Modify
|
Hello Charlie Florida. Yep I'm in here quite a bit. Stop in several times a day to see whats going on and read the new Joke posts  . Always seems to make my day better to have a good laugh. See you in the posts.
Joe
|
|
IP Logged |
Given strength, courage & a sound mind!
|
|
|
Charlie_-_Florida
New Board Newbie
I love YaBB 1G - SP1!
Gender:
Posts: 7
|
|
Re: misery loves company
« Reply #10 on: Mar 22nd, 2005, 3:08am » |
Quote Modify
|
Hi, guys.
Just picked some replies about Kudzu. What can you tell me about this....
Any interaction (negative), that you know about it ?
I am on Prednesone and Imitrex right now.
Also, I see this Kudzu comes in different forms.....? ? ?
Anything you can reply with, will be much appreciated.
|
|
IP Logged |
|
|
|
jokrs2
New Board Old Timer
Eventually He will make us pain free!
Gender:
Posts: 480
|
|
Re: misery loves company
« Reply #11 on: Mar 22nd, 2005, 12:53pm » |
Quote Modify
|
Hi Charlie
I would contact Floridian as wisdom abounds. I stopped taking Imitrex 24 hours before starting Kudzu therapy. I can certainly recommend Planetary Formulas Kudzu Recovery. I purchase mine online at vitacost.com or iherb.com. I noticed a difference within the first 24 hours on kudzu . Good luck! Joe
|
|
IP Logged |
Given strength, courage & a sound mind!
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: misery loves company
« Reply #12 on: Mar 22nd, 2005, 2:58pm » |
Quote Modify
|
Welcome!
I'm glad that you found us... Here everybody understands & supports you, no matter what the issue is, CH & not. 
Best wishes & PFdays,
Sandie
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
lanna
New Board Newbie
I love YaBB 1G - SP1!
Posts: 6
|
|
Re: misery loves company
« Reply #13 on: Mar 23rd, 2005, 6:57am » |
Quote Modify
|
thank you all for replying, i know they are clusters i did have one doctoer take them seriously about 15 years ago, he was the one who told me about clusres, i didn't know what the heck they were but i thought i was dying, i have had only five episodes in the past 15 years, so i guess im lucky. i am in one right now which lead me to this website, it's ncouraging to know there are people who understand. i am only taking imetrex and alleve. some nights i get 2 or three some nights like last night i only got one about an hour after i fell asleep i took an imetrex and didn't have one till 6 am, mine usually last about three weeks. i would like to meet somone in the mass area if your out ther to compare and talk. I havent seen a nuero yet should i?
|
|
IP Logged |
|
|
|
don
Guest
|
|
Re: misery loves company
« Reply #14 on: Mar 23rd, 2005, 7:35am » |
Quote Modify
 Remove
|
Quote:| Ive been tlod recently by a doctor that they probably arn't clusters because I'm a woman. |
|
Good Doc. Lose him fast.
If you choose to see a neuro, as you should, call this guy:
Dr. Brian Lieberman, Norwood, MA
|
|
IP Logged |
|
|
|
Kris_in_SJ
New Board Hall of Famer
There's no place like home.
Gender:
Posts: 1539
|
|
Re: misery loves company
« Reply #15 on: Mar 23rd, 2005, 8:42pm » |
Quote Modify
|
Hi, and welcome,
Don knows the docs in your area, so follow his advice if possible. I live in Michigan, so can't help with the doc question.
I am, however, a woman with episodic clusters (even though women don't get clusters!) Mine didn't start until I was 42 and my cycles are about 3-5 yrs. apart, lasting about 10-12 weeks each time.
You mentioned Imitrex. Pills, NS, or injects? Are you on any preventatives like Verapamil? Prednisone can also knock out a cycle. Please feel free to PM or email me at any time for questions or support. In the meantime, read as much as you can.
If your email is listed, check it tomorrow. I'll send you a couple of articles that you should read, print out and take with you to the next doctor's appointment. If your email isn't listed and you'd like the articles, PM me with your address and I'll send them.
Many Hugs,
Kris
|
|
IP Logged |
I'm a small woman in small town being chased by a VERY BIG BEAST!
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss